MRF Blog

Guest Post: A Promise to My Daughter

January 6, 2014 | Categories: Prevention

Our Education Program Manager Shelby Moneer writes, “I'd always heard that 'everything changes when you have a baby.' While I expected that to be true, I never thought I would be impacted in so many ways by the presence of a little, blue-eyed, chubby-cheeked baby girl named Ava."

Guest Post: Not Pretty? No Problem. Buy a Tan!

November 14, 2013 | Categories: Prevention

Our National Director of Volunteer Services, Mary Antonucci, writes: "How’s this for a business strategy— take the fact some women tend to suffer from low self-esteem, particularly when it comes to their appearance, find out when women are likely to be feeling the worst about themselves, then launch an advertising campaign for beauty products meant to make people feel more attractive during those times!"

Government Shutdown - Essential Personnel

October 3, 2013 | Categories: News

For the first time in 2 decades, the U.S. government has shut down. Media have focused a great deal of attention on the closure of national parks and restrictions to veterans’ benefits. In social media, the outrage over the National Zoo’s “Panda Cam” has run high. Yet, the impact this shutdown will have on the health of Americans, and particularly those with cancer, is largely being overlooked.

Guest Post: Pale Girl Tips for a Sun Safe School Year

September 11, 2013 | Categories: Prevention

Pale Girl SPEAKS' Hillary Fogelson shares tips for teaching important sunscreen habits in time for the new school year.

The Many Faces of Melanoma

March 26, 2013 | Categories: Treatment

We’ve heard the story before: a woman is treated successfully for her melanoma, only to have the cancer come back after ten years. How? Why? One explanation is something called “tumor heterogeneity.”

Expanding Knowledge

March 4, 2013 | Categories: Treatment

I recently met with a company called Delcath, which has a procedure designed to combat metastases to the liver. It works by infusing high doses of chemotherapy directly into the liver through the bloodstream. As the blood exits the liver, it is shunted outside the body and run through special filters that remove the majority of the toxic chemotherapy compound. The blood then goes back into the body’s general circulation.

Knowledge is Power

February 12, 2013 | Categories: Treatment

Yesterday, the MRF hosted a live webinar focusing on how to manage melanoma treatment in a rapidly changing landscape. As we prepared for the webinar, I heard disturbing stories of many patients receiving care that is sloppy, outdated, or just wrong:

Children and Melanoma

January 30, 2013 | Categories: Research

Years ago I worked at a hospital for children, raising money for pediatric medical research. The importance of this work was evident every time I walked the halls of the hospital. Seeing young children transported in little red wagons outfitted with IV poles was a powerful motivation to work harder for better therapies and cures.

FDA to Consider Patient Perspective in Drug Development

November 8, 2012 | Categories: News, Treatment, Research

The FDA is launching a new program in which they will consider and incorporate the patient perspective into drug development.  They will choose 20 diseases for the program and the MRF is lobbying to have melanoma be one of them.  As we all know, the patient perspective is important in any disease, but it is especially true with melanoma. 

Here is my letter to the FDA expressing this great need in the field of melanoma.

Lessons in Good and Bad

October 29, 2012 | Categories: Treatment

Several years ago, country comedians Archie Campbell and Roy Clark made famous a sketch based on the phrases “that’s good” and “that’s bad”.  Archie:  My uncle died.

Roy: That’s bad.

Archie: No, that’s good.

Roy:  How come?

Archie:  He left me $50,000!

Roy:  Oh, that’s good.

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