Anyone require Tremodar that has to pay

Posted By
12/21/2013 1:59am
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Replies: 2

I have one cycle worth of tremodar I paid $3k for which my husband did not take. He sadly passed away last month and i've been wondering what to do with it.

I wish everyone success with their treatment with this awful disease.

Please send me a private message.

Anonymous - (12/21/2013 - 12:31pm)

 

The original poster may be an extremely kind and generous person who is trying to help someone out. Unfortunately, this could equally well be a scam. Since we get posts like this from time to time, maybe we should think about some things:

1. It is highly illegal in the US for individuals to buy or sell presecription medicines. I don't know what the law says about giving them away, but I doubt that it is legal, either.

2. Havng said that, there are situations where it is morally good even if illegal to share life-saving medications. If you're willing to risk it, then any and all communications should be private and handled via the Private Message function on this web site. Neither the offeror nor the recipient should post their private contact information.

3. I, personallly, would only consider such an offer from someone who has been actively participating on this forum for some time. They should be "known" to us with a profile and periodic posts where we have been able to track the progress of someone's disease and treatments over time. Some who pops up suddenly and says, "Hey, I've got this expensive medicine. Give me some money and I'll be happy to send it to you." raises my suspicions. 

4. NEVER send ANYONE money in advance. If the offeror really has kindness and generousity at heart, they will send the medicine to you and once you have determined that it is correct, then pay them back for any shipping charges. That is what a friend of mine did with her extra Zelboraf. Yes, the offeror will run some small risk of not getting paid back. But that's better than scores of people sending $30 or $40 for "shipping" and never getting any medication. 

5. I have no idea who this poster is and I certainly don't mean to offend him if he is making an honest attempt to help people. However, these medications are just too important and too expensive to escape the notice of scam artists. Please, everybody, beware. 

This is not a scam and I am not asking for people to send money. I'm not even sure if this can be posted but i'm willing to give it a shot to help someone in need.

My husband was supposed to start PD1 with Dr Hamid in LA and was asked to bring this drug as he would be randomized and then would receive treatment on the same visit. He turned up and didn't qualify due to a severe drop in hemoglobin and platelets. We were stuck in LA for a week leaving our 20 month old son with my mother in Canada. We eventually returned and my husband was admitted to hospital again and never came out - he went down hill so fast.

He had mets to lungs, liver, bone - rib and spinal vertabre and during last 3 weeks lost mobility due to spinal compression to T3. He already had radiation to T8-T12.

His medical team sadly saw no hope for him even before the spine/bone involvement but he fought and believed to the very end.

This is a terrifying illness and only since my husband's job passing that I have found out my friends and family know scores of people who have died of it.

I have read this board for a long time but never posted as was too scared to be told the reality of my husbands situation.

We have already donated 1 IPI to our local hospital since he could not tolerate the drug.