Does anyone have any experience of using clinicaltrials.gov. I want to get on a clinical trial and wonder if there is someone i should contact?
ClinicalTrials.gov gives you the info - you get to do the legwork. Call the "contact person" at the location you desire. They can tell you if they are still recruiting and if you might be eligible. There are also a clinical trial finder linked to on this site: http://www.emergingmed.com/networks/MRF/. You might also have your oncologist help you get into a trial if you are eligible.
ok thanks for letting me know but i cant get your link to work
There was a recent thread on this forum that was talking about various places to get information about clinical trials. A link to the Emerging Med site that Janner refered to is mentioned there, too-- it is available from the Melanoma International Foundation web site. You can read the whole thread at: http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/new-clinical-trial-finder
If you look at the top of the screen and go to the "Understand Melanoma" item, the link for the Clinical Trial finder is under that heading. Also some other good links.
It is also possible to find clinical trials by going directly to a melanoma center's website. I am currently in a PD-1 trial at Moffitt. My wife, bless her soul, went directly to:
. . . I assume you could try the websites of the other big centers and look for trials.
Meet and talk to others about melanoma in our forums:
See also: History of the MPIP Forum
–CURE OM Forum
Or, visit the MRF Chat Room!
Submit your own patient story or read about the experiences of others.
Submit a memorial of a loved one to be posted on the MRF’s memorial wall.
Get updates about melanoma & the MRF’s work in research, education & advocacy.
Helpline: (877) 673-6460
1411 K Street, NW Suite 800
Washington, DC 20005
(800) 673-1290 Office
(202) 347-9678 Fax
The Melanoma Research Foundation (MRF) is leading the melanoma community to transform melanoma from one of the deadliest cancers to one of the most treatable through research, education and advocacy.
The Melanoma Research Foundation is a 501(c)(3) non-profit organization.