Just wanted to give you a quick update in what's going on with me. I'm stage 3c with intransit mets near my SNB scar. I've now had all 4 Ipi infusions and tollerated them reasonably well (though toward the end they were starting to kick my butt and so I was on a short steroid course).
Three weeks ago I had my first post-ipi scan, and it showed that I have no new mets. So I have stable disease. However, in the last 3 weeks I think I've had more intransit mets popup. It's tough to say because these new ones are still small, but they itch like crazy.
So here's my question: How long does it take for ipi to kick in? I'm 5 weeks out from my last infusion. Shouldn't I be seeing my intransits melt away by now if it was working?
Thanks for sharing your insight and experiences!
2009 Stage 3a, primary on hand, WLE & SNB (twice), LND, HD-INF, GM-CSF
2014 Stage 3c imultiple ntransit mets near SNB and WLE scar.