My father was diagnosed with stage iv melanoma last November after a lump in his skull turned out to be melanoma. They could not find a primary on his skin. He has had a spot behind his retina for 20 years or more, which had undergone a very tiny change, but an eye specialist ruled out ocular melanoma on inspection. After his surgery to remove the skull met, his scans were clear. Fast forward to his latest scans from last week, and he has two spots on the right lobe of his liver, as well as apparent lesions on various bones. Today his oncologist, in combination with a different eye specialist who hasn't seen him for nine months, says that it's ocular melanoma, based solely on the fact that it has metastasized to the liver. I'm not convinced it's OM. He has good vision, so we would rather not have him lose an eye just to check on the OM status, when it's already spread anyway.
The doctor also said that the mets were progressing too rapidly for ipi or IL-2 to work. He is B-RAF negative. She recommends Temodar but says it isn't much use. We are collecting his records as quickly as possible to get a specialist's opinion. He is otherwise in pretty good health and is in no pain; sure ipi can take awhile to work, but don't some people respond within a month or two? I am also looking at clinicaltrials.gov. Any comments on treatment would also be appreciated. Thank you so much. I also cross-posted this to MPIP.