Hey everybody! I was in on the teleconference, but didn't get a chance to ask my question, mostly because I was trying to figure out the best way to ask it. I really enjoyed listening to Dr. Harbour and Dr. Flarety.
Here's my question. My mother in law passed away from metastatic OM in March of this year. There is a strong family history of cancer in her family. Her father died of bone cancer, her brother died from either brain or lung cancer, but was also in Viet Nam. Now that gene mutations have been identified, would it make sense for her siblings and her children to be tested for the same mutations? Is there even a test out there that is known in the general physican community for them to request?
I was also so irritaited during the phone conference because there was talk of doing biopsy's of the OM tumors upon diagnosing. I asked my mother in laws doctor about doing a biopsy and was told "oh no, we don't do that for fear of the cancer breaking out and spreading to other places." Just goes to prove even more about the lack of education on this disease.
The battle was lost, but the war must go on until a cure is found.