I had scans yesterday--mixed results. From the neck down my numerous, multiple, and widespread lesions are stable or shrinking by tiny amounts (there is one new one in the neck). Overall, Dr. Weber feels this is an indication that ipi is working, and wants to do nothing unless there is progression, in which case he thinks another ipi induction would be in order. I agree, except that I would love to have a re-induction of ipi right now and not wait for progression. But it's not my call.
The bad news is that the 4mm lesion in my brain, noted 3 months ago is now 6mm. Also there is a 1mm spot in the brain which is non-enhancing (therefore not clear whether it is melanoma or not); this is new. Tomorrow I will have a fancy MRI, a Novalis, which makes 1mm cuts of images rather then the usual 5mm. So, stereotactic radiation is in order, at least for the 6mm one, and maybe both. I have no symptoms whatsoever from any of the lesions, brain or otherwise.
I will follow up on stereotactic radiation at Moffitt asap.
Bad news, but no complaints. It has been 9 1/2 years since my first liver lesions. Life has been good to me during that time. Life is still good, though I must say that these ups and downs are wearing...
I wish the best for all of you,