My husband Scott was diagnosed a little over a month ago with stage 4 mucosal. The cancer has spread to the liver, but not big time. The source (primary) is the esophagus and it's inoperable.
We found out that he was C-Kit positive and that there was a Dasatinib trial for C-kit patients going on 2 miles from our house at IU methodist in Indy.
He started taking his pills Friday. So far no side effects. Has anyone else tried this and how did it go? How long do you think it takes to do anything? They will do blood tests soon and then every 2 weeks. Scans will be every 6 weeks.
He is so uncomfortable sometimes. He is still working and carrying on as usual, but I know it's exhausting and painful at times. It's so hard to know this misery is going on and that I can't do anything to help. He doesn't say anything about it but it's not hard to see. I hope this stuff works!
For now he's just taking hydrocodone for pain and it works fairly well, but he's already getting used to it in just over a week. Any suggestions??