Been a while since I have posted, but the nerves have driven me back to the site, partially looking for answers, partially just for a little comraderie.
So, quick update on me - I was NED for 18 months until this past Feb, when I had a lesion develop in my small intestine. Had surgery to remove it and all was looking well until complications from the surgery struck with an intestinal obstruction. 3 hospital stays later, I finally had surgery again to remove a ton of scar tissue that had formed (and was the cause of the obstruction). At the time of my 2nd hospital visit, prior to surgery, a small lesion was detected in my liver by CT.
So, instead of surgery right away, I opted to go on Ipi. I go in for my last treatment on Tuesday next week and will get scanned shortly thereafter. However, this week I started having very bad headaches. They have not gone away since they started on Monday. I am scheduled for a Brain MRI tomorrow, and obviously a bit of a nervous wreck over this fearing the worst.
Question - Has anyone else experienced headaches while on Ipi? I'm assuming headaches are a symptom of a brain lesion, are there others I should be on the look out for? I don't get results until Tuesday.
Bummed and nervous.