Was told today I have 2 small mets in my brain. I know this is devastating, but I would prefer people not to make me feel how horrible this is. Yes, it sucks, but there are people on this board who've had or have brain mets and are still here.
Gamma Knife is not in the cards for me considering 1 of them has already bled. They're both in very good spots in the brain not causing any problems right now. Because I'd have to wait a month for the bleeding to absorb, they suggested WBR and then Gamma Knife. I know people have been very against this treatment, but I was told that most younger people tolerate this treatment quite well and only 1% of people get severe side effects. The goal is to start WBR next Wednesday for 10 days in a row and then if they're still there, they'll be able to gamma knife them out of there. Apparently there is just above 80% chance of eliminating the tumours and possible mircroscopic cells. I know nothing is guaranteed, but I'll take these odds at the moment. I know many people have had success from gamma knife (SRS) so WBR should also prove successful. IPI and radiation could continue to keep the brain mets from coming back for a while - you just never know.
Yes, I'll lose all my hair, but they have some pretty divine wigs! I have read on this board that people who've had brain mets are still hear - some years later, some working, etc, etc. There is always hope and I'm not giving up! I still feel fantastic and I'm happy that I'll still enjoy life going through radiaion.
Anybody done WBR which kept the mets away for a while?? I know lots of you have had gamma knife which has worked, so that's a great thing!!