MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Thank God. SCAN clean. 2 years and 4 months NED

You always gave me their support in difficult times so today I want to share this good news. Today we visited the oncologist with the result of SCAN, and everything is clean !! Thankfully, my husband two years and four months which is NED ago. Also my husband could finish with pegylated interferon tramiento, so now let's try to do a little more normal life.
 

Progress on combo

Hi all,

After the Stage IV melanoma diagnosis in early June (2 days after our daughter was born), my wife has been put on the BRAF/MEK combo with immediate results: the skin lesions disappeared in days, the first scan in August showed a significant reduction in tumor load and in October the PET scan was fully negative. We had hoped to be on our way to NED or at least to have a long run on the combo.

Stage IV update

I wanted to give all you warriors and caregivers an update on Kevin (stage IV since Feb 2014).  After a scare in August with a clean CT scan, Kevin had his routine PET scan and MRI today.  Both were clear to the doctor and one of his staff members.  A radiologist has to confirm, but according to the doc, Kevin is still NED!  Praise God!!!  He did get the opportunity to speak to one of the team members about a clinical trial that involves Yervoy and a vaccine.  Kevin has decided (with my blessing and the support of all medical staff) to hold onto any ammunition for when he has a high tumor l

Let's Give Thanks!

I just wanted to say I'm thankful for family, friends, and this forum, and for being alive today. I know so many of you are going through terrible and difficult times, but I wanted to say stay strong, love every day, fight hard, and win!! Win for us, win for yourselves, and win for those of the future! May God give you peace, happiness, and endurance, but above all may He give you complete healing in mind, soul, and body. May Every One Have A Wonderfully Blessed Thanksgiving Day with lots of laughs, love, and memorable moments.

Palliative Care

My sister is a family Dr. in Ontario, and she was visiting me last week. She suggested that I research palliative care now when I am still not feeling symptoms from the cancer. I thought palliative care was the same as hospice, but she said they were different, with palliative care more about pain management and quality of life.

Anything I should know before getting a port?

I was wondering if there is anything I should know before getting a port? Basically I understand it is a minor surgery. They put the thing in under my skin. It attaches to a vein that they said goes to my heart. It's under the skin so no problems with showering and things. After the surgery heals there should be little risk of infection. They can puncture the silicone thing hundreds of times so I can get my medicine and blood work that way now. It's just a little bump under the skin.

Just checking in and as always praying for you all!

Rudy is still doing well and taking it one day at a time.  He is still on combo two weeks on, one week off and continues to take a maintenance dosage of cannabis oil daily.  I try to check this site at least once a week. I used to be a daily visitor but I am now trying to spend as much time living in a world outside melanoma and enjoying this time that my husband remains NED.

MPIP Forum and Chat

HI Everyone,

I am a stage IV patient currently NED 13 YRS AND 9 MONTHS  MPIP was a saving grace for me for sooooo many years and I hope all of you will find the love and support I found here.  I am still in touch witih many patients and caregivers I met here  We formed a bond of a lifetime together,

MPIP is a place to find a WEALTH OF INFORMATION,,  IF you have any questions ask JANNER or Jerry from Fauquat,  They know more than most doctors  lol  not kidding,  

Amelanotic hutchibsons freckle

I have been diagnosed with  stage IV in my lungs and lymph nodes and the doctors can't find the primary. In 2005 I had an amelanotic hutchinsons freckle removed. I had had it on my left upper arm for 2 years and various Drs told me it was nothing until I changed dermatologist. By then it was about two inches diameter        After that I was checked regularly for new melanomas and the dr always checked the glands in my armpits but that was it. Is it possible that I have had this melanoma for the past 10 years?

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