MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

atavistic chemotherapy for melanoma

 An Invitation to Witness the Regression of a Stage IV Melanoma (a cure?)

 

http://www.atavisticchemotherapy.com//content/cancer_treatments#case_inf...

Snb results, what next?

I just got a call that the wide excision of my right upper arm and sentinel node biopsy came back clear.  Which is good.  But I still feel like I'm holding my breathe.   I know this cancer is vigilant and always wants a way back in, and I will be just as determined in my follow ups.  But after all that I've been reading there are so many stories that begin like mine, all clear and then boom,6 months or 6years later one little guy got away and now it's stage IV.

Anyone on Braf/MEK inhibitors also on Herceptin?

I am a seven year stage 4 survivor on /Vemurafenib/cobimetinib combo as part of the Phase 1 trial. Have been NED for the past 18 months or so, have had a wonderful response to the Braf/MEK combo.

Have lived long enough to have developed breast cancer! Looks like it is HER2+ so treatment will consist of targeted therapy, probably Herceptin.  

Anyone out there on a Braf/MEK combo being treated for a second cancer with targeted therapy? My oncologist hasn't heard of anyone in my position but believes it can be done without drug interactions since the targets are so different!

New to this and scared - age 28

Hi Everyone

I have my first mole removal coming up and am very nervous!

 

i have been a regular sun bed user with fair skin that burns easily.

Has a new mole appear on my chest but wasn't worried as heard that it is common to develop new moles up till your 30's.

However, in the space of the last few weeks it has evolved, changed colour, got darker and is getting more raised by the day, nothing like any of my other moles.

am very scared at what the outcome may be. 

Any advice you can give would be really appreciated.

Thank you all

Yervoy & Cyberknife Side Effects? Help...

Hi everyone,

Please read prior posts for history of the patient...

Need a little advice, really confused and in the dark. Best friend had cyberknife sometime in early August... Started Yervoy August 14th. Only on 2nd treatment now. Her condition has declined 110%. 

 At first, she was tired... Still allowed visitors, communicated via text & answered phone calls. Then the texts got jumbled, didn't make sense. Then those stopped. Now, she can no longer walk or talk on most days.

Alternative therapies

 

Hi all,

I recently read the avemar research and was surprised that most of it was never followed up with larger studies or trials over longer time in the west. Most fowhat I read came from Russia or Hungary. Maybe there is more research but I haven't found it.

I'm also awareof a clinical trial currently recruiting for high dose vitamin D supplements for those at stage 3 - at least it is in Australia.

Starting Ipi Monday, looking for guidance

Stage IV, BRAF positive, active mets in brain and breast.

Started on Zelbarof for nearly a year after brain excision and gamma knife. Developed a met in shoulder and was switched to Mek/Taf as soon as it was approved. New mets in brain and in dermal lining of brain, as well as in left breast. Gamma knife has not shown to have worked on brain lesions a month ago.

Superficial spreading in-situ Melanoma

Hi all,

I'm a 36y.o. Female from Australia. I know I've been very lucky in catching my Melanoma early, I was just hoping someone could put my biopsy report into layman terms for me, for my own understanding. I have to have more skin cut out tomorrow to be certain it's all gone. The part that worries me is that it seems like it was right on the margin & things I've read online say things like, when too close to the margin, cells can be pushed further in. I refuse to google anymore as I'll just make myself paranoid.

SNB done today - question

Hello all... My fiance got his SNB done today.  His melanoma was 1.2mm thick and on his jawline.  They removed one lymoh node from his collarbone area. 

How many lymph nodes are usually removed during a SNB? Is the fact that only one was aremoved a good thing? 

 

Now we wait and pray for results... The hardest part :( 

2 Cancers at once

So I finished Ipi and they did a scan with shows some growth in my tumor but I don't have any new tumors so both good and not so good news. I have something on my left ovary and now they are worried I might have ovarian cancer along with stage 4 melanoma. Can't see to catch a break. Anyone out there with a similiar problem? 
Thanks

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