MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Newbie, needing answers

Diagnosed w melanoma at the end of October. T3 3.25 and Clark level 4.  

Ok so WEL/SNB were completed on Thursday.  Ended up both underarms were done.  My back feels fine but wow, underarms are tough!  Doctor says I can't wear a bra or deodorant until post op. 

How do you do this in the business world?  I went out and bought big button down shirts and sweaters.  Do people stay home or go to work?  I have long term sick/short term disability insurance but I don't know if this is appropriate or not.  

Ant practicle advice is truly appreciated!  

Could we get faster approvalsif we had four legs?

Melanoma Vaccine has been approved for Dogs, now it lookes like one is coming for horses as well.          
http://www.abcactionnews.com/news/health/morphogenesis-announces-usda-sa...
 

Yervoy 10 mg vs 3 mg

Hi,

My husband just recently started Yervoy, he is getting 300mg, he is 220lbs. Is there data out there to show the difference in reponse between the two doses. It seems like your longer responders were on the 10 mg? Thanks for any and all info.

Jewel

My opinion - Why do people say we over react to melanoma and even Stage IV?

I have read on closed boards lately about also many people being told they are over reacting by being worried about their skin cancer diagnosis.  After all melanoma is just a skin cancer and there have been so much advancement that we shouldn't really worry aabout  it.  Here is some comments I have to make about the optomisim in the latest article I have seen. 

My opinion - Why do people say we over react to melanoma and even Stage IV?

I have read on closed boards lately about also many people being told they are over reacting by being worried about their skin cancer diagnosis.  After all melanoma is just a skin cancer and there have been so much advancement that we shouldn't really worry aabout  it.  Here is some comments I have to make about the optomisim in the latest article I have seen. 

Cannabis Experiences

Hi, all -- still struggling with my 83-year-old dad's pain management. He was taking 15 mg Oxycodone as needed for pain because he didn't want the 12-hour Oxycontin, but that wasn't helping and he lost about 6 lbs. between his first and second infusion, I think because he didn't have much appetite due to the pain.

Great news but afraid husband could be taken out of trial- need advice please!

Hi everyone, 

     It's been awhile since I've posted, but I do read MRF every day and my heart goes out to the people who have died or are struggling now. My prayers go out to everyone fighting this battle. It's so wonderful to know though that there are so many people who care and truly have wonderful knowledge on this board. Thanks Tim too for providing this format!

     First, thanks Janner for your wonderful advice on my son. His three colorless bumps were nothing. It was incredible news for us!!!!

How long on Yervoy before you experienced side effects?

Hi,

My husband started Yervoy on Wed 11/19. Can you please tell me how long it took for you to experience side effects? Were they able to be contolled by medication? So far my husband feels fine. Thank you so much

Jewel

12 year and 9 year anniversary -my two primary melanomas

When I was first diagnosed with melanoma (stage 3a) 12 years ago, when my 22 year old daughter was 10, I remember scanning this wonderful support forum for hopeful messages.  I thought it useful to remind people that many of us stop visiting this website as time goes on.  I had my second melanoma (caught early because I continue to be monitored )9 years ago.  I am not complacent as the future for all of us is unpredictable, yet it is important especially for newbies to know there are many like me out in the world. 

 

Jackie

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