MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Help with Second opinion

Hi everyone!

I'm new to the forum. Really glad this resource is available. I caught a stage 4 melanoma diagnosis this Monday. We met with Dr. Stergios Moscos today at UNC Chapel Hill--very nice, informed melanoma specialist. He suggested a treatment plan but was supportive of our desire to get a second opinion.He offered six suggestions. I'd be grateful for any input that could help us decide about which choice to make for deciding about how to proceed.

Dr. Stephen Hodie at Dana Farber

Dr. Keith Flaherty at Mass General

Dr. Jedd Wolchok at Sloan Kettering

Stage II C Considering Radiation and Interferon

I had surgery to remove a Melanoma on the top of my head. It was 5.46MM deep with a Mitotic index of 12 and ulcerated. A SNB was performed at the time of surgery along with a skin graft. The biopsy results were negative for the SN and two additional lymph nodes in the neck. The deep  margin at excision and at periphary are negative for Melanoma. Due to depth of Melanoma and location the probability of recurrance is indicated high. I was recommended to have 5 Radiation treatments on area of excision and take the Interferon Alfa regimen.

Ipi treatment

For those who have took Yervoy.  I have a few questions and I know eveyone is different.  My husband is 34 yrs old.  He have taken 3 rounds of Yervoy so far and had brain radioation twice.  He gets his last round of yervoy this coming tuesday.  Until this past sunday, he has not had any major symptoms, he has still been able to work 20-50 hours a week depending on how fatigue he is.  Sunday he started having right side abdominal pains, they come and go.  No diarhea, no fever etc.  Just real tired and abdominal pains.

Recommendation for Melanoma Surgeon in SoCal needed

I was diagnosed with MIS on the center of my nose and after my initial shock thought this would be straightforward: excision with some reconstruction. 

It turns out that an melanoma excision on the nose is challenging: Excision requires experience with the proper technique that not every dermatologist has and many plastic surgeons don't want to do any melanoma related reconstruction. 

SNB Question/Concern

Am confused about melanoma surgical oncologist's recommenation about whether or not to do SNB on LO (over 70).  Tumor is at least 6mm, report says "ulcertaion not seen" but doctor thought it looked ulcerated (of course, this was after the shave biopsy), and mitotic rate is 6.  No evidence of disease in external examination of lymph nodes at all. 

Dad's journey is over, but thankful for support

We held my Dad as he took the last steps in his battle with melanoma last Thursday at his home.  I haven't posted much on here, but I've read and learned a ton, lurking on a near daily basis during the most stressful parts of this journey and weekly during the longer periods of "no changes to report."  Without fail, this site has been a great source of knowledge, inspiration, and comfort.  In the obituary, we requested that donations be made to MRF in lieue of flowers.  Thank you all, and best wishes with your battles, which I hope have better outcomes than my Dad's.

Braf combo working so far

My husband has Braf stage IV metastatic melanoma. It is in his duodenum, and spots along his small intestine and pelvic area.  He has been on the Tafinlar/Mekinist Combo for three months now.  After a CT scan yesterday he has some spots that are not there and others shrinking.

Chemosaturation and ablation treatment

Hi, have been looking at ways of getting rid of tumours in liver, lungs. I know mel pops up everywhere. Has anyone had this kind of treatment or knows much if it is suitable for us guys coping with mel.when I have read about it, it does state tumours that have spread to other parts of organs. Not sure if due to still having cancer in lymph nodes would still be able to have it done. Just a thought on other ways of treating this horrible disease. 

What to eat during interferon treatment

Hi, everyone!  I'm new here.  My husband has Stage 3C metastatic melanoma and just finished his 4 week course of 5 days a week IV interferon treatments.  Now we're on the 3 a week injections.

He's down to 126 pounds.  He's 6'1".  The nausea has been bad, but so has the metallic taste in his mouth which makes everything he eats taste horrible and creates more nausea.

Any tips or tricks from those who have travelled this road before us?

Thanks in advance!