I am a first time poster! My husband had his first Melanoma removed 8 years ago. One on his back, below left breast and lower left abdomen. Nothing else was ever done and margins were considered clear. We have kept up with Dermatology appointments through the years and had no other instance of melanomas, just pre cancerous moles. Back in February 2014 he was increasingly becoming short of breath. An X-ray showed a Mass in his upper right lung and a CT Scan confirmed the tumor. Infact, the whole upper right lobe was involved. A PET scan was scheduled and showed 12 Brain leas ions, involvement of the Lymph nodes, Adrenal glands, gall bladder, lining of his stomach and an EGD showed his colon is fully involved as well as multiple subcutaneous melanomas all over his body. He has gone through 10 rounds of whole brain radiation and lung radiation. He has had to have a bronchoscopy done due to the lung tumor growing so fast they were afraid it would fully involve his whole right lung. So therefore they froze some of the tumor to halt the growth before the radiation could start to shrink it. He was told another Bronch would be necessary in another 30 days. His oncologist was very optimistic and started him on Ipi. Stating there had been 10 year survival rates with this. I am concerned giving my husbands weakened state this is a little overly optimistic. He has already had to have 3 blood transfusions as well. He had his first Ipi treatment a week ago. We were also told by his Doctor that patients develop a "spring" in their step by the third treatment, but this is also when side effects are likely to happen. At this point my husbands life consists of Bedroom, and chair and Doctor appointments.
Sorry this is long but I was hoping to have some input on what I can expect good or bad. Or, if anyone else has had this much involvement. It's so hard to see him like this. Prior to him going downhill he was a runner 3 days a week and now he can't even dress himself!
Thanks for letting vent and post!