Just checking in on you and how your first days are going, I meet with everybody today and start treatment on the trial tomorrow.
Returned home late last night (Wednesday) after 1st treatment on Tuesday. Feeling great with no side effects of any kind from either Ipi or Temador. Had to stay and extra hour on saline solution after 90 minutes for the Ipi infusion. I am taking the Temador at bedtime (10 pm or so) with the anti naseua medication 30 minutes before. I have been told to NEVER skip the anti naseau medicine (Zofran), so it seems to do its job. The Temador goes for 4 days, with 4 pills each dose.
From what I have learned, you can have more and/or different side effects as you move forward. So things may happen the 2nd or 3rd course that did not happen the first time around. My attitude is - so far, so good! I watched the Ipi drip and said to myself "now let's go kick Mels butt!". Wishing you the best - be strong and stay in touch. You can also reach me at firstname.lastname@example.org
Jim in Denver
Just wanted to send both of you well wishes for your treatments. You can do it & are going to kick mel.'s butt back to hell and seal the door forever. Stay strong and keep kickin' it. love, Sharon in Reno, Stage IV
To Thy Own Self Be True & Move Fast When You "Know" You Have To!!
Sending lots of love back your way - thanks for your fabulous support. You are an amazing lady :)
Sorry for my sudden exit from the chat room last night. I just hit the wrong button accidentally, but by the time I got back you were already gone.
Good Luck to you on your treatment...and you too David!
Just getting up and around (sleeping in) I go in at noon and stat the drip and then go home tomorrow we live in Springfield Mo(11 HOURS). no big deal since I drive to my back yard near Jim to Estes Park 3 to 5 time a year to play. I will report later if i have any issues. Thanx Sharon for the kind words.
Fully rely on GOD & try not to ruin today by worrying about tomorrow
Hope you are feeling well - any side effects? Wow - thats a long drive to Houston - do you have any help with that? So you go to Estes Park regularly - maybe we should meet for coffee sometime you are passing through Denver.
Meet and talk to others about melanoma in our forums:
See also: History of the MPIP Forum
–CURE OM Forum
Or, visit the MRF Chat Room!
Submit your own patient story or read about the experiences of others.
Submit a memorial of a loved one to be posted on the MRF’s memorial wall.
Get updates about melanoma & the MRF’s work in research, education & advocacy.
Helpline: (877) 673-6460
1411 K Street, NW Suite 800
Washington, DC 20005
(800) 673-1290 Office
(202) 347-9678 Fax
The Melanoma Research Foundation (MRF) is leading the melanoma community to transform melanoma from one of the deadliest cancers to one of the most treatable through research, education and advocacy.
The Melanoma Research Foundation is a 501(c)(3) non-profit organization.