Measuring tumors for trials!

Posted By
Anonymous
10/24/2010 3:00pm
Activity
Replies: 2

Hi,

As luck would have it, I had full head to toe PET/CT scans in 9/10 to get into a trial but I did not have a 1cm tumor. I had 2 tumors 6mm & 4mm on thigh

Now, I have another recurrence on my thigh that is growing very fast.

I really do not want to have scans again  until I am ready to qualify for a trial and the scans are part of the trial requirement.

Question: Has anyone had their tumors measured by other macines besides CT like ultrasound or anything else that can measure the size of the tumor? Are these machine reliable/definitive??

If I can just determine when my tumor is 1 CM then I can contact trials I might qualify for!! I do not want to sign up for a trial assuming that my tumors are 1cm then go through the scans & not qualify because the scans come back with less than 1 CM tumors.

Thanks for taking the time to repsond to my post. Wishing everyone a NED status.

Sharyn - (10/24/2010 - 10:37pm)

I'm now in my 3rd clinical trial, and most measurements were done by using a ruler. They all did an initial CT scan to obtain precise measurements as a baseline, but that was more for internal mets, not cutaneous or sub-cutaneous mets. So when your new tumor gets to 1cm, then apply for your trial, and they'll cover the cost of the scan. Good luck

Sharyn, Stage IV

WLE, SNB, ILP, LND, PV-10, Uterine mets (Hysterectomy), GM-CSF, WBR, RT, Temodar, B-RAF negative, SRS (Novalis) to brain, Breast mets (Mastectomy), currently on Ipilimumab compassionate use trial
Mets to brain, lung and sub-qs. Craniotomy.

lhaley - (10/25/2010 - 8:51pm)

I just came back from my Dr. appointment with my pathology. The ultrasound had shown 1.7 cm. The biopsy showed 2.9 cm. I was told yes it probably had grown but ultrasounds are not exact enough to count on.

Wishing you he best,

Linda