Been a while since I've posted here as I have had the luxury of being NED since Aug 2009, however a recent appt has unfortunately changed that. Last week a routine blood test showed that I was anemic and had very low red blood cell counts. Doc ordered immediate Pet/CT which showed an active mass in my small intestine, near my liver. I have been experiencing some side pain for the last few weeks but wrote it off due to holiday diet. A subsequent CT showed that indeed there is a mass, likely melanoma in the small intestine, approx 3.6 x 2.9 cm large.
I am in NYC, being treated at Sloan Kettering (Dr. Carvajal) and NY Presbyterian (Dr. Taback). Was recommended that since I am symptomatic, surgery would be the best course of action. Curious to know if anyone else out there has had surgery on the small bowel before to remove melanoma? This appears to be a single lesion.
My brief history:
Aug 2007: DX with melanoma on left knee. Wide area excision and positive sentinel node.
Sept 2007: Lymph node dissection, rest of nodes came back negative.
Nov 2007-Nov 2008 - high dose / low dose Interferon
April 2009: VATS on left upper lobe of lung with 1cm tumor removed. Same surgery had a sub q removed from thigh.
Aug 2009: had another sub q removed from left thigh. Been NED until last week.
Getting an opinion at NY Presbyterian as well.
If you have had surgery on the bowel (small intestine) I would like to hear from others about recovery time, complications, how difficult surgery was etc.