I want to apologize if I don't use the correct terms or phrases, I'm new and would like to know if anyone has had endured the side effects of Ipi.
My husband was diagnosed stage !V metastatic melanoma in 4/2011. The pet scans show it's spread to his liver, spleen, lymph nodes, etc. We were told 4-6 months.
The good news is his MRI was clear and he is BRAF positve.
He had a small "mole" removed 10 years ago and would return for blood work every 6 months and was cleared and told it was all removed. In all honesty, I believed it was fine because he went to his dermatologist regularly and seemed on top of it. I can't give more details about the surgery 10 years ago (size of mole or diagnosis) because the records were archived and we don't have those reports. I am working on getting them.
He had his first Yervoy treatment with no side effects. He had his 2nd treatment three weeks ;ater. Now. he has been unable to leave the house for the past two weeks due to the diarrhea. He is taking lomodil and steroid for it but had to go in the hospital overnight for fluids last week. Since we came home Thursday, the diarrhea is still bad and he is so drained.
We are scheduled for the third treatment this Thursday but his doctor said he can't recieve it if we can't reduce the predisone and get the bowels under control.
He had such a positive outlook after he recieved his treatments and I am terrified that he will be devastated if he can't recieve #3.
We live outside of Charlotte, NC and his doctors are Charlotte Oncology. We recieved a second opinion from Blumenthal at Carolinas Medical center that said he is on the right path.
We have children-- 7, 10 and 13 year olds and been married for 15 years. I lost my Dad two years ago (only 60) to lung cancer. This has been overwhelming and I'm very grateful to find this site.