I have been reading the posts on this site for quite some time now and have gotten much hope and inspiration from them. I never felt like I needed to post, but now I do. I was diagnosed with a choroidal melanoma (in the eye) in 1/09. I opted for enulceation (removal of the eye) in 2/09 and was fitted for a prosthetic in 4/09. On my first round of rescans in June of 09 a small spot was found on my right temporal lobe. My neurosurgeon was able to remove the spot by doing a craniotomy and get 2mm clean margins. In August of 09 I was given the choice of gamma knife for added precaution. I chose to do it and all was going along well. I was getting tested every 2 months, mainly MRI's of my head and PET scans. In March of 10, a very small spot was found on my left temporal lobe which was too small for surgery and we were able to hit it with gamma knife and that took care of it. My head MRI's have been clean since. I just had a PET scan because it had been about 10 months since my whole body had been checked. Well, they found increased uptake in the liver. Had a CT scan and it confirmed what the PET found. The doc was ready to lay out a plan for treatment but thought I looked too good for what the scan showed, so he did a liver biopsy and of course they confirmed melanoma.
I am freaking out. It has taken 4 weeks up to now for all the tests and results. I see Dr. Donald Lawrence at Mass General next week and will start clinical trials, but of what, I'm not sure. I haven't really been this scared since my initial diagnosis. I even mention the word liver to people and just the look on their faces makes me feel like I have a death sentence. I have 3 kids, 17,14 and 8 and am just not ready or willing to leave them yet. I know this will be the hardest part of the fight, but I am ready for it. At this point, I just want things to get started.
Does anyone have any advice to offer, I have told the docs I will do anything and everything, any suggestions??