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3/24/2014 6:59pm
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Replies: 4

Hello Everyone. My husband Jay was diagnosed with melanomia last May 28 2013. We will always remember the date it was our 19 wedding anniversary . The surge said he got all the cancer so we didn't see an oncologist . In July  he had to have his aortic valve replaced.  Afterwards the shortness of breath didn't get better. Long story short, he has stage 4 melanomia. It's in his lungs and liver. He's had a round of chemo . They are now going to try to get him on the Tafinlar drug. We're going to the doctor tomorrow to see if he can take it.

 That's how I found this group, researching the drug. He is 54 will be 55 next month and this has been a nightmare year for us. He's on his disability and that's a blessing. He's never been sick he's one of those folks that is never ever sick. This cancer has forever changed how we look at life. I'm so very glad I found all of you . I found a post of a lady who husband had stage 4 and she was talking about this drug. I can't recall her name but she's the reason I'm on here. It was something wife of . I hope she's still on here. Her post was last year and she talked about the things I'm worried about also. 

I'm sorry for being so long winded . Thank God for this group. Thank you one and all .Juanita , wife of Jay .

Now faith is the substance of things hoped for, evidence of things not seen.

Hebrews 11:1 

Gene_S - (3/24/2014 - 7:20pm)

Hi Juanita,

First let me say I am sorry you have to join us here but on the other hand we are informative, caring and supportive.

Are you seeing a Melanoma Specialist?  That is my first recommendation as there are many clinical trials out there.  Also to get copies of all his surgeries notes, scans, blood tests and pathology reports and keep in a file of your own.  If you do go to another doctor for a second opinion it will save you much time if you already have them.  Also a melanoma specialist knows more about the side effects and how to treat them if you are in a clinical trial or on anyone of the medications for melanoma better than a regular doctor or oncologist.

If you state where you live someone might be able to help you with a melanoma specialist in your area.

My husband like yours was never a sick person.  He had 4 surgeries and then an unresectable lesion and metastisis to the liver and lungs as well.  You can read about him in his profile if you would like.

Judy (loving wife of Gene Stage IV and now NED ((no evidence of disease)) for over 1 year)

 

Live 4 today. Thank God for all he has done for us. Looking forward to enjoying tomorrow.

Marianne quinn - (3/24/2014 - 9:57pm)

Judy- thanks for always answering these new posts. It was helpful to me to have someone care. 

Gene_S - (3/25/2014 - 9:34am)

you are very welcome

 

Live 4 today. Thank God for all he has done for us. Looking forward to enjoying tomorrow.

SABKLYN - (3/25/2014 - 10:44am)

Hi Juanita,

looks like you may be in the Tupelo area.  I don't know if Dr. kellum is a melanoma specialist.  If not, you may want to consider having your husband seen at Vanderbilt.  A little farther away is MD Anderson in Houston.  However, both do specialize in Melanoma and as tricky as this disease can be, you may want to give this some thought.  All the best