Hi there everyone,
Thank you for taking the time to read my words and hopefully giving me some guidance. I want to beat this horrible monster, I have so much to live for, and much determination, love and faith to rely upon.... Im just a little lost atm and wondering If I am being realistic in thinking I can beat this.
My name is Simone, im 34, and live in Melbourne, Australia. I was first diagnosed stage IIc in 2005 & remained NED until 6 weeks ago when I found a lump under my arm. It was confirmed mel and scans showed many spots on my liver as well, making me a stage IV suddenly :-(
I was immediately tested and found positive for the V600E BRAF Mutation and therefore went into the BRIM 3 Phase III Study for patients with this gene to receive R05185426 or Dacarbazine. Obviously my oncologist, myself and my family were hoping and praying that I got the R05185426.... BUT unfortunately Ive ended up with the Dacarbazine. I was shattered but had to pull myself together quickly to start chemo.
Ive now had 2 rounds of chemo, have handled it very well, and the lump under my arm does feel to have shrunk, BUT I am just SOOO SCARED. I am having a scan done in 2 weeks, and I am dreading it... What if the results are worse? Could I still beat this? Apart from melanoma, I am in excellent health and fitness, and am eating well and exercising.
I am wondering 'Is this the best treatment for me atm?', "Would i be receiving the same or better treatment options if i was in the US or Europe?' "What have other patients tried who have been in my situation?' "Any success stories with Dacarbazine? or other chemo?'
Please help me, Im feeling so alone and frightened :-(