So sad to be joining this club...
I have been reading the posts for weeks now, but just finally joining. So, here's the story. I am a 37 yr old happily-married mom of 2 toddlers. The Melanoma bomb hit our lives almost 2 months ago. I was diagnosed in August w/ Melanoma Stage 1C (1.2mm with mitosis) on my arm and had the WLE a month ago w/ Sentinal Node Biopsy in New York. Lymph nodes were not involved... thank God. Then, my Melanoma team tells me that I should be "focused on survival" for the next 2-3 yrs & need to be monitored for 6-10 yrs due to the mitosis. WHAAAA?!?!?!?!?! Needless to say, I almost fell off my chair!!! I thought my news of lymph nodes being clear was starting to sound pretty good.... well, I don't mean "good" but you know, not "survival" discussions. Then they told me that we should not pursue having another child (as were in the midst of trying & really hoping for).
Sounds pretty scary & even scarier when I go online to research more. Not sure what to think.... or which part of this should be keeping me up at night. Also, I got a second opinion from another Mela specialist & he said Mitosis is only relevant if primary is less than 1mm & you are determining whether or not to do SNB. Have you heard this? I have mitosis, which one group seems really concerned about in terms of risk for recurrence. Other doc said no longer relevant. What have you heard? Should I really be "focused on survival" and also halt the baby plans?
Thank you! You all seem like an amazing group of people -sorry we have to meet this way! :)