The results are in.

Posted By
2/18/2011 1:47am
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Replies: 21

Well, they told me that this months scans show about another total decrease of about 10% since last months scans. So now to about 20% decrease overall. There's nothing new and my brain is still clear. So this is good news. :)

I'm not sure what this means or what to expect as far the future goes. I don't know if typically I can/should expect to see the same/similar results next month of if this stuff stops working after a couple of months.. I don't know. Probably varies person to person. But, I've made it another month and I guess we'll just see what next month says. So... that's it. That's my update. Sorry they're not quite as interesting these days. Not much going on but waiting for monthly scans. Which I should be happy about, and I am. But hopefully these updates put some hope and good feelings in some readers thoughts and minds. I met a guy today, who went to the NIH with advanced melanoma 17 years ago. They're cured him. He'd been going back for yearly checkups and they finally told him this visit he doesn't need to come back anymore. When the guy told me his story with tears of joy, and how thankful he was to overcome his situation.  It sure me feel good, and hopeful, like anything is possible. And hopefully my updates can do the same for any of you readers. Just as yours have done for me.  Anyway I'm home now after a long day of traveling and am going to catch up on some sleep. It's been a long couple of days. I'll be browsing the boards as usual,  and will have another update in a month. :) Take care everyone.

-Kevin

dawn dion - (2/18/2011 - 4:01am)

Congrats!!! I am always - happy to hear good news.  Like you said makes things a little more hopeful.   The best to you.

I refuse to let this beat me. I WILL NOT LEAVE MY GIRLS! MELANOMA CAN BITE ME!

KellieSue - (2/18/2011 - 8:37am)

Congrats! That is great to hear. I'm so happy for you! May you have continued good scans!!!

Kellie(from Iowa) Stage IV since June 2008

Cancer Sucks. I'm so not done kicking cancers ass!
I have a lot of life left to live

molly - (2/18/2011 - 9:35am)

Kevin, so happy for your good news!! Yes, good news is wonderful and inspiring here...keep it coming!!!

molly

Carmon in NM - (2/18/2011 - 9:59am)

Thanks so much for sharing such good news! We all need inspiration when we can get it. Hopefully things will continue like this for you! Carmon in NM

Carmon in NM: Stage IIIB 9/2008; Stage IV 6/2010 with brain and adrenal mets; NED since 4/13/2011.
It’s not what happens to you, but how you react to it that matters. ~ Epictetus

skysar - (2/18/2011 - 10:13am)

Kevin

Wonderful news and continued success with the next set of scans. My next appt at MDA is March 22 for scans and meeting with doc to discuss TIL. What a great story about the other warrior at NIH. Gives me hope!

Take care

Sue
Hotlanta

Bonnie Lea - (2/18/2011 - 10:41am)

Kevin, this is very good news indeed.   One step at a time.  I know its hard doing it this slow, but hey it gives us all a boost when the doctors tell us,  this news.

when you write it here, I bet the whoops of joy sound each time someone reads it.  I know in my house, the kitties jump up with my hoops and yells at good news I read.

Congrats.

Bonnie Lea

Just Keep on Hanging In

mimi0201 - (2/18/2011 - 10:53am)

Kevin;  May we follow in your footsteps.  We are headed to NIH for Tues Feb 22 appt.  Keep your fingers crossed.

mimi0201 - (2/18/2011 - 10:53am)

Kevin;  May we follow in your footsteps.  We are headed to NIH for Tues Feb 22 appt.  Keep your fingers crossed.

CLPrice31 - (2/18/2011 - 12:17pm)

Kevin,

I love reading updates like yours! Congratulations on the good news! Hoping to hear more good news in the future!

"The odds are that the...the odds mean crap. So people should face it, and they should fight." ~Grey's Anatomy.
http://adventurewithmelanoma.blogspot.com

Rebecca and Bob - (2/18/2011 - 1:53pm)

Kevin,

 

When my husband did IL-2 one of the tumors in his lung stayed for year and only changed the first few months after treatment, so we waited and then he had surgery to remove it. The tissue was completely necrotic. Do they ever discuss PETScans to see if there is activity or do they have a certain amount of time they give it until they see if it's just shrinking and still active?

Great news!!!

 

Rebecca

 

 

Believe

glewis923 - (2/18/2011 - 9:40pm)

Hey Kevin-

Decrease or even stable is very good news !    I'm very happy for you.  Let's hope it goes down another 10%.  Sooner or later, the 10's will add up to ZERO !

Sleep Well, Grady.

 

I'm Here for Now, I've got the rest of my life to die; and if so, old age could be overated and God does exist.

BethA in VA - (2/19/2011 - 9:52am)

I love hearing your good news.  Keep up the good work...and as far as what to expect in the future...A GOOD LIFE!  FREE OF MM.  You have done so good...and it will continue.  Lots of prayers sent your way.  Beth 3/B 

Melanoma tends to cut into your looks!!

 

jag - (2/19/2011 - 2:06pm)

Good to hear Kevin.  Very happy for you, may the rest of your tumors shrink like ice cubes in the desert.

Insert Generic Inspirational Motto Here

paul - (2/19/2011 - 2:14pm)

That's a very encouraging report; thanks for posting it. Wishing you continued strength and good spirits.

Paul

If you have time to chatter
Read Books.
If if you have time to read
Walk in the mountains, desert and ocean
If you have time to walk
Sing song and dance
Sit quietly, you happy Lucky Idiot--Nanao Sakaki

paul - (2/19/2011 - 2:14pm)

That's a very encouraging report; thanks for posting it. Wishing you continued strength and good spirits.

Paul

If you have time to chatter
Read Books.
If if you have time to read
Walk in the mountains, desert and ocean
If you have time to walk
Sing song and dance
Sit quietly, you happy Lucky Idiot--Nanao Sakaki

Vermont_Donna - (2/19/2011 - 3:12pm)

Good news Kevin, steady steps forward!

Vermont_Donna, stage 3a

stable after 4 rounds of Ipi

Sharyn - (2/19/2011 - 8:02pm)

Hi Kevin! Great report! Keep up those positive thoughts and energy. We're shooting for 30% reduction next month.

Hugs

Sharyn, Stage IV

WLE, SNB, ILP, LND, PV-10, Uterine mets (Hysterectomy), GM-CSF, WBR, RT, Temodar, B-RAF negative, SRS (Novalis) to brain, Breast mets (Mastectomy), currently on Ipilimumab compassionate use trial
Mets to brain, lung and sub-qs. Craniotomy.

ValinMtl - (2/20/2011 - 11:32am)

Thanks for the update Kevin.  You always know we are on your team and cheering for you to win against the beast.  It's nice to hear things like the 17 year survivor...I"m sure it made you feel stronger to know there is a light a the end of the tunnel.  Val

Live Laugh Love
Nothing is worth more than this day!

Suzan AB - (2/21/2011 - 9:00am)

Kevin,

Thank you for sharing your strength and hope with us! 

My best,

Suzan AB

Stage IV, lung mets...in a holding pattern...

Presently...One Day At A Time.

himynameiskevin - (2/25/2011 - 10:56pm)

"...kitties jumping with hoops..."  ha.
"...sooner or later 10s add up to zero..."
"...tumors shrink like ice cubes in the desert..."
among all the others.

Thank you for all the encouraging and thoughtful words. It really means a lot.
Brings a smile to this face.

MRFUser2011 - (2/27/2011 - 6:20am)

Kevin, so glad to check in and get to read your good news.  I so rarely read the board but seems whenever I am feeling really low or apprehensive, I sign on and someone has posted something that makes me feel good for them and gives me hope for all of us.  May you keep seeing these decreases and thanks so much for taking the time to share (traveling can be so exhausting).

Blessings,

Shari

Game on. I am going to win! (The thought I had when I heard the doctor say I had melanoma.)