Spread Rate of Melanoma?

Posted By
5/18/2014 5:23pm
View other posts by
Activity
Replies: 8

I am trying to find some information in regards to how fast melanoma spreads in the body. I cannot find much online so figured I would turn to people with experience.

I first had a mole removed in July or 2013 that was a superficial spreading melanoma .97mm deep. My general practitioner removed it a biopsied and found it was melignet but since the margins were clear he said I was fine. No more tests. 8 month later I found a lump under my arm and was diagnosed with early stage 4 shorty after. My big question is what stage I was at when the mole was removed? I know it had already started to spread I have no clue how to figure out how much worse my situation has become becasue the doctor didn't do any further testing. Does any have any input they can give me?

Philippians 4:13 "I can do all things through Christ who strenghtens me"

Teochasse - (5/18/2014 - 6:57pm)

Did you have any diagnostic imaging done when first diagnosed?CAT,PET?Considering how expensive scans are,I  know that routinely they are not given to patients  considered to be at an early stage.However the problem with this protocol  is that the melanoma could have spread to distant organs by that time of diagnosis. There is really no way to know  unless the patient becomes symptomatic later on/ the disease had progressed.I was assigned both CAT and PET when first diagnosed 4 years ago at stage IIB.There was no problem with our insurance company covering both tests.However I would  insist   and pay  for  diagnostic image out of my pocket if I had to, in order to confirm or  rule out further /internal/ disease.

Best,

Teodora Chasse

MixtaJones - (5/18/2014 - 7:37pm)

I did not have any scans when the mole was first taken out so there is no proff of what stage I was in. I only hat a PET done when the lumps showed up 8 month later.

 

Philippians 4:13 "I can do all things through Christ who strenghtens me"

Teochasse - (5/18/2014 - 9:26pm)

By the time your mole was removed you could have some melanoma cells from the original tumor  circulating in your blood/lymph system or such  that could have  already established new  colony at the  location where your lumps showed up.PET scans  are known  for false positives/negatives,but  they  are good diagnostic tools to detect abnormal activities  above 6 mm.Without scans done at the time of excision, there is no way to know if you cancer grew from microscopic level to lump in 8 months/pretty fast/,or you've had already another growth by the time of your mole removal.

 

Teodora Chasse

The mitotic rate that should have been provided from the patholgy report is one of the first guides as to how fast one should expect melanoma to metastsize.

Each person cn be different. 

After 3 1/2 years of mis-diangnosis by my GP, I went from initial diagnosis to stage III in 4 months and then after the lympnode operation in late January with nothiing seen on a PET scan, I had innumerable lung tumors by March of the same year.

I'm me, not a statistic. Praying to not be one for years yet.

Anonymous - (5/20/2014 - 5:08am)

so a low mitotic rate will metastasize, but just really slowly?

hbecker - (5/20/2014 - 8:24am)

No, a low mitotic rate just means that particular tumor is dividing (growing) at that rate. There's simply no way to know whether it had already spread beyond the primary. Sorry there are no easy answers here.

Wishing you well in fighting the disease. I know you would like to know what was going on in your body then and whether anything more could/should have been done at that time. But fighting melanoma under the current circumstances might be a better way to spend your energy right now. Please keep us posted on your progress.

~Hazel

blogging at www.hazelbecker.com

When Dr Wen Jen Hwu was asked in February about the mitotic rate changing between the primaries anad later metastises,s                        Wen Jen Hwo said that "the mitosis rate tends to stay the same from
the primary thru metastasis".

I'm me, not a statistic. Praying to not be one for years yet.

MixtaJones - (5/21/2014 - 9:41am)

I don't focus on this too much but I do have a law suit open against the GP who didn't follow through on the mole. In California the big thing they look at in settlements is if you went from 50% or higher chance of survival to 49% or lower because of the missed diagnosis. If I was stage 3A or higher when the mole was discovered and am now stage 4 it would make a big impact

Philippians 4:13 "I can do all things through Christ who strenghtens me"