Stable Scans Again!

Posted By
2/19/2011 6:03pm
View other posts by
Activity
Replies: 4

Hi to everyone. Haven't been on the boards in months and I see lots of new names. For all of you newly diagnosed folks, you have found the best place to get support and information. When I was first diagnosed stage IV in September, 2007 this board saved my butt!

I got results of my every four month scans this week and I continue to be stable. I have a few small tumors on my lungs and one on my adrenal gland. All have just been hanging out without any growth for the past two years. Oncologist has now recommended going to scans every six months, which I am OK with at this point.

For those who don't know me, I originally received a course of chemo (carbo/taxol) coupled with a drug called sorefenib/Nexavar. Sorefenib/nexavar is a BRAF inhibitor as well as an anti-angiogenic, FDA approved for kidney and liver cancer. Didn't prove effective for melanoma during Phase III trials, but a few of us lucky devils responded to it.  So I have been on the sorefenib/nexavar for over three years now!

Happy weekend to all!

Eileen L

Stage IV

 

 

 

lhaley - (2/19/2011 - 7:37pm)

Fantastic news!!!!   Your news should give so many hope!

I know your out there traveling and living life to the fullest!  Love the news!!

Linda

Sharyn - (2/19/2011 - 7:40pm)

Hi Eileen! Nice to hear from you, and your good news. It's wonderful response you're having to the drug! I hope it  continues for a long time! I'm going in for a craniotomy on Monday morning. I posted about it a few days ago, so check it out. Keep on holding mel at bay!

Hugs

Sharyn, Stage IV 

WLE, SNB, ILP, LND, PV-10, Uterine mets (Hysterectomy), GM-CSF, WBR, RT, Temodar, B-RAF negative, SRS (Novalis) to brain, Breast mets (Mastectomy), currently on Ipilimumab compassionate use trial
Mets to brain, lung and sub-qs. Craniotomy.

dawn dion - (2/20/2011 - 8:36am)

Great news!!! So happy for you!

I refuse to let this beat me. I WILL NOT LEAVE MY GIRLS! MELANOMA CAN BITE ME!

jag - (2/20/2011 - 10:43am)

Very happy to hear it Eileen, not everybody who got the Nexavar treatment is still alive, you are very lucky.  Glad to see that there is some longevity w/the BRAF inhibitors.

John 

Insert Generic Inspirational Motto Here