Stage 1b and terrified

Posted By
Anonymous
4/27/2014 4:05pm
Activity
Replies: 9

 I have recently been diagnosed stage 1b.  The melanoma was 1.8 mm- no ulceration- mitotic rate of 3- which I know is bad!  I guess I just read everywhere about all of these stage 1 and 2 patients who 10 years later have it return. Is there no chance of long      Term survival?  I already had lymph nodes check and they came back negative.  I guess I'm just not seeing to much positive about this and feel like I am just waiting for it to progress to stage 4.  I'm a terrified new mom and afraid I won't be here see my little girl blow out her birthday candles. 

Momrn5 - (4/27/2014 - 5:29pm)

I was 1b for a little while, exact same pathology as yours, until we found micro mets in the lymph node. Something like 90% of people with 1b do just fine.  My husband was diagnosed with a bleeding melanoma 25 years ago.  Huge skin graft on his back. No other treatment.  He is just fine.  Grab onto the 90% who don't progress at stage 1b.   It is really scary and shocking to get the diagnosis, yes it is. Most people on this board say stay off the internet as there have been so many great leaps and bounds in the treatment of melanoma over the past five years, most things you read are now outdated.  Good Luck and enjoy that little girl!  There is a great chance that you will see her blow out those candles for decades to come. :)

JerryfromFauq - (4/27/2014 - 6:00pm)

Don't scare my, I've only been at the stage IV level with live tumors for 7 years now.  Still enjoying life and new grand kids and new great grandkids.  At stage Ib, you've got great statistics to look at and even at Stage IV, you have much better odds than the 30 to 180 days I was given in Feb 2007.  Be vigilant, but don't let melanoma win by paranoia controlling your life.  Learn, fight and live.

I'm me, not a statistic. Praying to not be one for years yet.

Anonymous - (4/28/2014 - 7:56pm)

Thank you! You sound like you have so much courage!

kab07011 - (4/27/2014 - 6:27pm)

Stage 1B'er female here too, October 2009. .97 ulcerated lower back. No recurrence. Negative SNB.

2 pregnancies since then. Live life, eat healthy! I was scared and still question recurrence, but chances are SLIM.

Any questions please ask :)

 

Anonymous - (4/28/2014 - 6:15pm)

How did you feel about getting pregnant? Did it scare you at all?

Anonymous - (4/27/2014 - 7:09pm)

Hi,

Take deep breath and do a bit of research. You hare highly likely to be around for a long time. Current statistics show 1b 5yr and 10yr survival rates at 92 and 86% respectively. Bear in mind those are now outdated stats as many of the breakthrough melanoma drugs have only been around for a couple of years. The pace of new drug discoveries is very fast and I think it's highly likely that your survival stats will be well above those. Type NED in the search box and you will find many people who have had long lives even while stage IV. You got bad news but as far as bad news goes its about the best bad news you could have gotten. Stay diligent around your health, stay informed on new treatments and give your little girl lots of hugs and kisses for many years. 

Janner - (4/27/2014 - 7:27pm)

Stage 1B since 1992, 3 melanoma primaries.

Anonymous - (4/28/2014 - 12:36pm)

Thank you everyone for the encouragement. It helps me believe that this is not a death sentence- but a life style change.  I am working on choosing to believe I will be in the 90%.... No reason to believe otherwise.  I'm hoping time helps heal. 

MacMac - (8/22/2014 - 2:04pm)

I was just diagnosed with 1B myself.  Still have to go through the sentinel lymph node biopsy and wide excision.  It is hard to stay positive but I just keep telling myself - well if I am not smiling and living what I am going to do cry every day????  Then what?  So I have my bad moments but I'm trying to smile....

I have never been more scared though.......