Some of you may have read my posts in the past. Please bear with me on this...I am very confused and appreciate all the support. I have finally been told that I am Stage 4. Confusing part....here we go....in April 2011 I had a bump removed from my right cheek that my derm thought was cyst. Well it mas melanoma and pathology said it was meatstatic melanoma. My derm was shocked to say the least as he has never noticed anything on my skin. He was concerned obviously but felt this was odd case.
I found a specialist and he did protocol of getting pathology slides and ordered WLE of cheek and SLNB. Surgey path came back with clear margins (diameter was 5.7mm) and SLNB was negative. He had felt intially that this wasn't metastatic but rare presentation with no epidermal component. I since have had numerous moles removed...a few dysplastic but mostly benign. I have had a chest/neck, abdomen/pelvis and brain MRI in Nov/Dec 2011....all negative, though there was a spot on liver where I had an MRI and it was determined to be a hemangioma. There was also a cyst in sinus area that was of no concern. I went to another specialist as I am not comfortable...and was told today that I am stage 4 since there was no epidermal component. Doc feels I'm low risk for recurrence but I will follow stage 4 treatment protocol without any immunotherapy/chemotherapy as I am about 8 months out for surgery and there is no benefit. The pathologist is ordering up unstained slides to do own testing. He also wants me to do annual eye exams and have a mucosal exam. I'm not sure about my prognosis and wonder if anyone out there has had a similar experience. Thanks.
Let's work for better treatments....for a cure!!!!