Stage IV NED since May 2001

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5/29/2014 3:18am
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Replies: 6

We recently celebrated my husband's "NED anniversary". 13 years ago, I was on the MPIP almost daily as my husband endured bio chemotherapy. This site was a life-line.  We are so thankful to all of the people from this site who helped us figure out how to deal with side effects and gave us moral support. May God bless you all as you battle this disease.

Dana R

JoshF - (5/29/2014 - 6:18am)

Dana-

So happy for you!!! Being Stage 4 myself it gives hope.

Curious as to what treatment your husband did...assuming IL-2?

 

Josh

Let's work for better treatments....for a cure!!!!

Dana R. - (5/29/2014 - 10:49am)

In 2001, Dr Sewa Legha was doing trials at MDA on a bio chemo protocol: cisplatin, vinblastine, dacarbazine, high dose IL-2, and interferon. It was brutal. We elected to do this off-study, because our youngest was 2 years old at the time, and we wanted as much time together as a family as possible. At that time, we were told that 5 year survival was about 3-5%. After 4 cycles, Steve's lungs were clear. Our onc then recommended an immunotherapy protocol that was in trials at JWCI. It was specifically for bio chemo follow-up. More IL-2, GM-CSF, more interferon...monthly cycles, 12 months worth. Quality of life was pretty good after the initial blast of high dose IL-2. We even traveled some during that year. Did a cross-country "see America" trip with our 4 kids with a cooler of IL-2 and interferon for daily injections. 

Praying that melanoma finds you to be a disagreeable host and LEAVES!

 

Dana R

Thats fantastic !

 

thanks for the update !

 

peace

Shane

So happy for you.

I was diagnosed stage IV in January we need to hear these types of success stories!

I plan on being one of them.

Charlie

Thank You for speading the Hope.If this board needs more than anythyng, is to know that there is Hope.Wishing you and your husband a lifetime of NED!

Teodora Chasse

AWESOME! Thanks for coming back and sharing.