TEST/TEST

Posted By
4/5/2014 7:54am
View other posts by
Activity
Replies: 6

March 29th, I had my PET scan, and of course the Doctor told me He was concern with two spots.  One on my right side, and one on my lungs.  So I am fixing to do a MRI, appointment with a heart lung Doctor.  My doctor at this point in time, said first they was going to look at the place on my side that he called "HOT".  And they are wanting to do a biopsy on the spot on the lung.  don't know which lung, just know my lung.    He stated He didn't know at this point in time what I am looking at, and depending upon what is found, He might recommend a clinical trial, Interferon, or Yervoy.   I have come this far without drugs.  I don't like the idea of drugs, especially one that could kill you, which I was told that Yervoy could do.  My question is why do doctors want to give you a drug that could kill you, just for data so they could possible help other patients?  I am not a human pig to be tested on.  I refuse to be that pig.  Sorry guys, but that is the way I feel.

 

So, I go april 11, to see the heart-lung doctor, a MRI on Friday, and waiting for the surgeon to call me about that place on my right side.

 

I still have a strong faith and  believe in God, and the fact He is the one that has kept me this far in this walk, and will continue to help me make the right decisions.  Is there anyone out there that has success on a drug?  and if so?  What?   Call me weighing my options.

 

Thank You for any input.  Robbie

I believe in God and his son Jesus, I know that this is not everyones belief. I know that God has me in his hand, I might not like what I am going through but God is the one that gives me strength fromd day to day.

LuckyMan51 - (4/5/2014 - 8:03am)

Robbie, 

I did the Yervoy treatment twice and am definitely alive and kicking, as are many on this web site. My side effects were not bad ex some itching and stomach issues which were treatable quickly. There are different degrees of side effects and if you keep your doctor informed of any changes in how you feel they can deal with it. Are you seeing a melanoma specialist currently? I would urge you to do so if you are not. You should also ask about the newer Anti PD-1drug which has even fewer side effects than yervoy and has had some great results. Good luck. 

Anonymous - (4/5/2014 - 8:54am)

Robbie,

I have troubles following your arguments. I also believe in god and believe that he has me in his hand but also all the chances modern medicine opens up for us were in the end given to us by god in my belief.

As concerns the risk of dying my idea is that when I know I would surely be dying from cancer without medication I would take everything that at least gibes me a small chance to survive. And if I die from this medication I died fighting for my life insteadt of awaiting death. Also think of how many things you do during the course of your life that might end deadly. Driving a car is a good example for that.

I am on BRAF / MEK without any side effects at the moment and I thank god everyday for it!

robbier - (4/5/2014 - 9:33am)

I have what I call the cancer doctor, a dermatologist, Can't tell you if there is such a thing here in the state of alabama as a Melanoma specialist.  Like most of you out there, I don't like what I call the waiting game.  That doesn't mean I still don't believe in God, and His son Jesus.  We as individuals have to make sound deciisons on what to do when the time is correct for us.  I do not want to offend anyone with what I believe in, that doesn't mean I don't do my research and think, and pray about the sitiuation before making a decision.  At this time that is waht I am doing, praying and doing research before making any decision I need to make.

 

I look at it this way, I do the best I kow how to stay positive, and that one is a easy thing to do regardless of what one believes and does not believe.  For me, staying positive, pryaing and researching is what I do before making decisions.  When my cancer doctor, and I have a new one, told me he would recommend a certain drug for his data research, I personally went no way.  I am not a human pig just so he can have his research.  That is where I am coming from.  I don't think anyone would do that.

 

Robbie

 

 

I believe in God and his son Jesus, I know that this is not everyones belief. I know that God has me in his hand, I might not like what I am going through but God is the one that gives me strength fromd day to day.

Gene_S - (4/5/2014 - 10:13am)

Hello Robbie,

My husband took Yervoy (Ipi) and he is alive and as a matter of fact he is NED (no evidence of disease).

Did you know thousands of people die every day from properly prescribed drugs?  Included is blood pressure medicine, blood thinners, kidney medication, bowel medications.  Much more die of this than the drugs they are using to help fight cancer.  Then with all the pesiticides being used, GMO, sugar substitutes (which most are rat poison), mercury in vaccinations, chlorine, fluoride and the list goes on, you are in harms way anyway.  Or like was mentioned more people die in car accidents (within 5 miles of home) on any given day.  You have much to fear just living life only God knows when it is your time.

I think it was wrong of your doctor to say he wanted to give you a drug for data as it might be the very drug that could put your cancer in remission.

Judy (loving wife of Gene Stage IV and now NED)

Live 4 today. Thank God for all he has done for us. Looking forward to enjoying tomorrow.

Anonymous - (4/5/2014 - 1:38pm)

Im not sure i totally understand. If either of these spots are confirmed melanoma, then you are stage 4 and any mention of interferon is silly and yervoy is NOT a trial drug. It is FDA approved for stage 4 melanoma. So you wouldnt be a "pig" (not my word) in a trial. Not everyone is helped by it and yes there is a very small chance one can die from that treatment, but that chance is very small and if treated at a Melanoma Center of Excellence(UAB for example) they likely have significant experience with it and will be able to deal with the side effects. 

It sound like you would really need to get to a Melanoma specialist.

robbier - (4/7/2014 - 11:44am)

I was diagnosis with Stage 3 B Melanoma August 2011, and have been in remission ever since according to test,until this last test of march 2014, showed what the Dr. is calling hot spots. The Doctor still doesn't know what these spots are, or if they are anything. That's why at this point in time, we are doing more tests, and going in for a surgeon to do that spot on the right side.  Can't say, because I don't know at this point in time, what I am looking at..  That is what I know. 

 

robbie

I believe in God and his son Jesus, I know that this is not everyones belief. I know that God has me in his hand, I might not like what I am going through but God is the one that gives me strength fromd day to day.