Tomorrow is the final cycle!

Posted By
3/1/2011 10:34pm
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Replies: 4

I have blood work at 745- see Dr Weber  around 8 and do the last regular cycle in my trial- tah dah I am now going on to my 12 month of Stage 4 melanoma NED...oh NED is my best buddy!

I get scans and apheresis next week  then I guess every 3 months I will get scans, blood work and booster IV of  Anti PD-1 for 2 years if I remain NED.

wow...I also returned to work and nearing my 3rd week -it is still so exhausting but hoping as I get farther awhile from the trial meds the less tired I will be...

Advocate for your own treatment.. Stage 4 Melanoma NED Surgery,Radiation, Temodar 300Mg July 2009-March 2010, then Thorocotomy...now "Phase I Study of Anti-PD-1 Human Monoclonal Antibody MDX-1106 and Vaccine Therapy"

Lucy,

Congrats!!!!!!! on your acheivement. LIfe is Good!!!!

 

Jimmy B

NicOz - (3/2/2011 - 6:06pm)

Hooray! Way to go :) Great to hear!!

Meh. Get on with it.

Do not feed rabid monkeys.

To fear is one thing. To let fear grab you by the tail and swing you around is another

Congratulations! I am so happy for you! I will be in your place on March 14th when I get my last infusion on this drug trial and I can hardly supress the excitement of having this six month trial behind me!

I hope that this is the beginning of years and years of being NED for all of us! Carmon in NM

Carmon in NM: Stage IIIB 9/2008; Stage IV 6/2010 with brain and adrenal mets; NED since 4/13/2011.
It’s not what happens to you, but how you react to it that matters. ~ Epictetus

LynnLuc - (3/5/2011 - 10:36pm)

Are you going to do boosters too? I will get  the anti-pd-1 every 3 months for at least 2 years...Dr Weber says he thinks it maybe approved in 2 years(never know about the FDA) and then the option of staying on it  might also be an option if I remain NED.

A side note about the FDA...you would think that any drug that gives even a slight benefit should be available to a patient using it and perhaps if they sign a waiver to remove any liability from the manufacturer...should have access to it...just my feeling!!

Hoping we all get to be NED and stay that way!!

Advocate for your own treatment.. Stage 4 Melanoma NED Surgery,Radiation, Temodar 300Mg July 2009-March 2010, then Thorocotomy...now "Phase I Study of Anti-PD-1 Human Monoclonal Antibody MDX-1106 and Vaccine Therapy"