What are the odds of long term NED with surgical route?

Posted By
Anonymous
5/17/2014 1:10am
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Replies: 4

Anyone go surgical route alone and get long term success (say, 5 years NED)? If you went surgical only route, what has been your experience?

I'm stage III - now NED for a week now after surgery. Since there are so many promissing treatments coming down the pipeline, I'm considering making a gamble and waiting for a few years until better treatments are more available. How big of a gamble would this be?

Statistically speaking, what how long does it take for the melanoma to return?

Congrats on the NED status!

It will be gamble, but I think pretty much anything is with melanoma. There are plenty of folks who are Stage III and have remained so for years and this includes those who've done interferon and who have done "watch and wait". "Watch and wait" means your only treatment has been surgery and now you're under close doctor observation that will involve PET and/or CT scans done at regularly scheduled intervals.

Melanoma is a tricky beast. For some folks it has returned in under a year, for others it's returned years later. I would presume that some never had to deal with it again, but these folks don't post here very often.

This is from some notes I too during one visit with an oncologist: if you opt for interferon it would delay relapse by only about a year. You only increase your chances of it never coming back by 5%.

From that same visit I learned that if you opted for "watch and wait" it's really not all that different.

The other statistic that was discussed was, the longer you go without the melanoma returning, the less the odds are that it will return.

Before you make your final decision, make sure your doctor has discussed all options with you, including clinical trials.

 

 

Stage III, Unknown Primary; 1 positive node in left axilla; currently participating in GSK DERMA (MAGE A3 vaccine) trial

It depends on a number of factors.  Where your orginal mole was, exactly what stage you were in 3a, b or c.  And then of course the fact that as anyone will tell you, Melanoma seems to have a mind of it's own, I don't know that anyone knows for sure.  I can tell you I am stage 3a, I opted for "wait and watch" and I am 4 years NED.  My mole was on my trunk which is a fairly good place to have it.

Life is too short to be anything but happy. Falling down is a part of life, getting back up is living.

I have had mets surgically removed from each lung, brain and small intestine.  My last surgery was 4 1/2 years ago and I have been NED since.

I've had two surgeries-to remove tumor and radical pelvic lymphadenectomy.Lymph nodes came back clear so no further treatment at this point.Unfortunately local recurrence 10 months later.I've had third surgery to remove it .This time around I chose to do 25 rounds of external radiation/3 rounds of internal/brachy therapy/ radiation for preventive local control.

I have been NED for 3 1/2 years.Just be vigilant and follow  up with regular check ups.You might never have to deal with melanoma again, but is something ever shows up/hopefully not/ ,better catch it as early as possible.

Congrats on being NED.

Teodora Chasse