Hi All. As Don was finishing up his 16 radiation treatments to his pelvic/groin area, he developed new pain and they found another tumor, so he had an additional 10 treatments to this new area. The goal of our awesome radiation oncologist was to get his pain diminished and get us to Florida for a break from this horrific, cold, snowy, icy winter.
We got to Florida and the weather has been gorgeous. Don is feeling ok. He developed a blood clot in his leg, but that was taken care of by medication (after 12 grueling hours in the ER and admission to a strange hospital!).
Don is apparently having a "partial response" to Yervoy/Ipi (areas above the waist and in the brain have been stable since the end of August!). But below the waist, not so good.
Our next step will be to find a PD-1 or Anti-PD1 trial that seems most appropriate for him.
My question: what exactly is involved in taking part in a trial? I know there can be a lot of paperwork and tests and scans, etc. to qualify. But I'm wondering if the trial necessarily has to be local. Do all infusions have to be at the geographical location of the trial, or can they be given at another site?
Thanks for your help!