Just returned home from looong 2 days of scans, bloodwork and office visits. Wish I could say results were good but I'd be lying. After 6 months of following the Ipi trial I hate to report John was definitely not a responder..... I really didn't need thousands of dollars in scans and bloodwork to tell us this. We kind of felt it all along. I'm really not on here to criticize the use of Ipi. it was a crap shot and we lost this round. I pray it helps others and please do not be discouraged we would do it all again. This melanoma that got into my husband must be a fierce thing because from the very beginning it has literally resisted everything we have thrown at it up until now. We also found out on top of tumor progression that he has a blood clot in his lung.... we now have to deal with.
So here we are now back to square one...... My question is after surgery not an option, failed high dose IL-2 and now Ipi. We may be looking at some type of Chemo as bad as I hate to say it. Has anybody had any luck with chemo working at all? We are also seriously thinking about the Novalis radiation (along with chemo) which is a very precise beam and works on bone,liver, lung. Our oncologist today told us not to even consider DTIC. He said Taxol/Carboplatin was a possible choice. I have not researched any chemo therapies due to being told they usually don't work, well ok.......neither did the other one's we tried. Sorry not had a very good day~
Thanks for any advise given.