MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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kwahlbin's picture
Replies 1
Last reply 8/19/2011 - 11:28am
Replies by: kylez

Welcome to the oldest interactive online community for melanoma patients. Once you have been touched by melanoma—either as a patient, family member or friend of a patient—you become part of a community. Over the years, tens of thousands of people have turned to the bulletin board for information, support, comfort, and friendship. Now that you have joined this network, we hope you will find this a safe place to share your hopes and fears, to ask questions and to offer suggestions to others.    Through your participation in this group you can find the tools you need to help you though your journey with melanoma, and the friends who can make your journey more bearable.

To learn how to use the bulletin board and the new features, please see the Bulletin Board FAQs

Today, the bulletin board was upgraded to a new platform. If you are looking for your posts, please see the archived bulletin board.

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kwahlbin's picture
Replies 4
Last reply 4/25/2012 - 9:35pm

As you may have noticed, today we have upgraded the bulletin board with a new look and additional functions.  Unfortunately, we were not able to move over the posts from the previous bulletin board system to the new bulletin board.  As such, all posts from the older bulletin board have been archived and will remain on the site for reference purposes.

To view old bulletin board posts, visit the archived bulletin board.  Once you arrive at the archived bulletin board, click on the tab titled “Archive,” and you will be able to view all posts based on the month they were created.  While you will not be able to respond to these posts, you can view the responses that have already been left. 

If you would like to continue the conversation, please post your topic to the new bulletin board.  Please note, as part of the bulletin board’s updates, you will no longer be able to post a comment without first logging-in.  While you can still post anonymously, you will have to be logged-in and then select the option to post anonymously.  The change is due to issues with inappropriate posts, and by requiring participants to log-in before postings we can address this problem.  If you do not have an account with melanoma.org, please register.

If you have any issues or concerns, please feel free to contact the Melanoma Research Foundation.

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kwahlbin's picture
Replies 4
Last reply 8/3/2010 - 2:19am
Replies by: Anonymous, kwahlbin, ValinMtl

The bulletin board has been updated with new a new look and additional functions. To learn how to use the bulletin board and the new features, please see the Bulletin Board FAQs.

If you have additional questions, please contact us using the contact form.

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Charlie S's picture
Replies 14
Last reply 7/2/2011 - 12:26am

Guess I didn't get the memo about ALL the posts being moved to the archive.  Ouch.  Here's hoping everybody catches on pretty quick.

 

Charlie S

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Tim--MRF's picture
Replies 1
Last reply 11/23/2011 - 5:15pm
Replies by: phyllispj

I have been contacted by a national reporter interested in speaking with a couple of patients who are currently enrolled in the Phase III study of the BRAF inhibiter in development from Roche/Plexxikon.  This reporter wants to hear a patient's perspective on the trial.  This is a great opportunity to have unfiltered patient input into the clinical trial process.

If you are please send me an e-mail and I will forward it along to the reporter.

Thanks

Tim--MRF

tturnham@melanoma.org

 

 

 

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Carver's picture
Replies 4
Last reply 12/20/2011 - 5:39pm
Replies by: LaneyMcg, Carver, Kimmer

I noticed someone below asked how to start a new topic so I thought I'd test that out. After I logged in I looked on the right, I saw I had the option of starting a new topic with my name or anonymously. For the record I'm not 3 years old but for now I'm using a VERY old shot of me as a young girl for my profile. I tried changing it to a cropped one that didn't cut my head off but once I saved my profile shot it didn't seem to let me change it so for now you might want to be careful what you upload.

"A closed mind is a wonderful thing to lose"

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Tim--MRF's picture
Replies 1
Last reply 10/2/2011 - 4:02am
Replies by: JerryfromFauq

MRF has established a partnership with Cosmopolitan Magazine.  As part of that we have created a web page for donations.  Anyone who gives $10 or more gets a special bracelet Cosmo designed. 

Here's the neat part.  When you make the donation you have the option of leaving a comment.  The comments people have left are amazing.  Just a few words, but a lot of passion.  We have comments from patients, friends, family members. 

Might be worth taking a minute or two to read through them.  I found it inspiring.  One person is 23 year survivor of Stage III melanoma!

Here's the link:  www.firstgiving.com/cosmopolitan

Tim

 

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dian's picture
Replies 5
Last reply 7/30/2010 - 1:23am
Replies by: mlittle, dian, DonW, Anonymous, Janner

I don't seem to have a ..well..bottom, to the screen when I open a post..so I can't scroll from left to right, only up and down. So I can't see a whole post. The right side is cut off for me. To read Janis' reply to Charlie down below, I had to actually hit the 'reply to' button, then it showed up above the reply spot.

am I alone in this? does everyone else have a horizontal scroll bar along the bottom of the posts?

dian

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Sherron's picture
Replies 0

Just testing this out, to be sure I am understanding all this correctlly.

Take Care,

Sherron

 

 

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MaryBZ's picture
Replies 0

Just playing around with the new set up!

You don't know what your future holds but you know who holds your future!

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admin's picture
Replies 4
Last reply 7/29/2010 - 12:10pm
Replies by: kwahlbin, W., admin

from miket

 

On the main board, the topics are not in chronological order.

 

Is there any way I can alter this?

 

What is the logic for the current order?

 

Also when I click on the back button, it takes me two windows back and the I have to click on the bulletin board to go one window forward to the main board.

 

I am using firefox rather than ie6. Does this make a difference?

 

I appreciate the effort in trying to improve the format and I guess an old f--t like me will have to learn some new tricks.

 

regards

 

miket

 

ps I am double spacing right now as single spacing does not work for me and all my sentences run into one another

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Tim D's picture
Replies 0

Testing 123

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Hope it works.

Cancer Sucks Shit Happens Nothing is ever 100% bad, there is a reason and silver lining in everything. Sometimes I need a good light and my glasses to find it though. You can't fix stupid.

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Kim K's picture
Replies 1
Last reply 8/15/2013 - 12:30am
Replies by: JerryfromFauq

But if it did, I should be seeing double

Cancer Sucks Shit Happens Nothing is ever 100% bad, there is a reason and silver lining in everything. Sometimes I need a good light and my glasses to find it though. You can't fix stupid.

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 Just testing new board....looks great

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