MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Expand/ Collapse Topic
 
Replies By
View Topic
Sherron's picture
Replies 0

Just testing this out, to be sure I am understanding all this correctlly.

Take Care,

Sherron

 

 

Login or register to post replies.

MaryBZ's picture
Replies 0

Just playing around with the new set up!

You don't know what your future holds but you know who holds your future!

Login or register to post replies.

Tim D's picture
Replies 0

Testing 123

Login or register to post replies.

Hope it works.

Cancer Sucks Shit Happens Nothing is ever 100% bad, there is a reason and silver lining in everything. Sometimes I need a good light and my glasses to find it though. You can't fix stupid.

Login or register to post replies.

 Just testing new board....looks great

Login or register to post replies.

tab22's picture
Replies 0

Just see whether I know how to use the new forum.

Login or register to post replies.

Kimmer's picture
Replies 4
Last reply 7/29/2010 - 11:27am
Replies by: kwahlbin, dian, Carver

Just testing the new format along with some other people.  For some reason I have to be Kimmer now instead of KimJ, but my other aliases have been Kim from Birmingham, Beaufort, Florida, Floridogz, etc.

Take good care, K.

And remember, no matter where you go, there you are. Confucius

Login or register to post replies.

lhaley's picture
Replies 4
Last reply 7/29/2010 - 11:28am
Replies by: kwahlbin, dian, Carver

I'm just testing and discovered that I am now lhaley instead of Linda from Myrtle Beach.  That's ok because we are officially moving from the beach next Wed.!!  

This will take some time to get used to but it's interesting seeing how many times a post has been viewed and how many are online. If one person views a post twice does it go down as one view or two?

I just scanned downand saw that you can be alerted if people reply. That is a great addition!

Linda

Login or register to post replies.

admin's picture
Replies 4
Last reply 7/29/2010 - 12:10pm
Replies by: kwahlbin, W., admin

from miket

 

On the main board, the topics are not in chronological order.

 

Is there any way I can alter this?

 

What is the logic for the current order?

 

Also when I click on the back button, it takes me two windows back and the I have to click on the bulletin board to go one window forward to the main board.

 

I am using firefox rather than ie6. Does this make a difference?

 

I appreciate the effort in trying to improve the format and I guess an old f--t like me will have to learn some new tricks.

 

regards

 

miket

 

ps I am double spacing right now as single spacing does not work for me and all my sentences run into one another

Login or register to post replies.

Anonymous's picture
Anonymous
Replies 3
Last reply 7/29/2010 - 4:02pm
Replies by: kwahlbin, Anonymous

Just wanting to see if the bold, italics, and underline features function and if inserting a link google.com shows and functions as a link directly in the body of the text. 

If all this works I'll give it a   and if not a  .  I see if you enter an emoticon and press the space bar it vanishes....so insert the emoticon, then left click your mouse  THEN press the space bar and presto.... yep, that works

Login or register to post replies.

Charlie S's picture
Replies 1
Last reply 7/29/2010 - 4:12pm
Replies by: kwahlbin

ONLY on registration are we asked for a birthdate, birthdate is not listed or asked for anywhere else, so why is my birthday (even though it is a fake birthdate) showing up in the right hand field when clicking on my profile?

I posted it here because many people do have privacy concerns, and this would certainly be a privacy concern.

Regards

Login or register to post replies.

Anonymous's picture
Replies 2
Last reply 7/29/2010 - 4:44pm
Replies by: gbaum, kwahlbin

 Help finding old posts in archives?

Login or register to post replies.

Hi guys.

A huge thanks for the following advancement.

Activity is based upon the time of the last reply and not on the time of the original posting. This way an active discussion stays near the top of the board.

I used to find it annoying on the old board when I had to go back 3 or 4 pages sometimes to read new replies to an older active posting of interest to me.

I put that badly. All postings are important to me as they represent feelings of fellow patients but some postings capture my attention a teency more.

Good job guys

miket or talian44

Login or register to post replies.

 Hi,

   I think you are asking me why I didnt do systemic treatment....I was given that option along with the option of going to Boston for the ILP......and I went down for the consult at Mass General and felt the ILP was a good option for me....and I would "save" the bio chemo for "later"....so the ILO has an 85% "cure" rate.....according to the surgeon I saw who did the procedure...I was NED for 7 months after the procedure......so anyways after two more reoccurences (now have had 6), the only treatment offered (other than clinical trials, which werent offered but I looked into and decided I ddint want to do any yet), was radiation...so I thought I would do that again.....shut down the lymph channels as I have in transit (in the lymph system) mets.....does this help????

Donna in Vermont (now Vermont_Donna)........lol......stage 3 

Login or register to post replies.

Nancy's picture
Replies 2
Last reply 7/29/2010 - 8:10pm
Replies by: kwahlbin, sal d

I can't figure this one out- sorry -

You would think they would make it easier --

Thanks,\

Nancy

 

Login or register to post replies.

Pages