I just read your profile. I really didn't know that you have been through much. Sure glad you are here!
My son recently took a bad fall at work and has suffered his second subdural hematoma. Luckly this time did not require surgery, but his brain injury is more severe; cumualtive damage to left frontal lobe. We are happily getting him back up to speed without so much thrapy this time and it looks like he will be able to return to his normal life.
He was originally give Dilantin for the first head trauma. That was 10 years ago for the subdural hematoma which was evacuated; craniotomy, coma, whole 9 yards; he took the Dilantin with no ill effects for 4 years and was given the green light to discontinue it.. His latest anti-seizure med was Keppra. He kind of languished for 8 days making no real progress cognitively even though the CT scans showed that the trauma was resolving. No EEG or MRI was ordered. I asked for them to put him on Dilantin from the beginning because I knew that he had no problems with it before, but what do I know? They liked Keppra better, no blood serum levels to check, less bad for the liver, etc.
At day 9 after the injury, he became very disoriented, could not follow simple commands, and was speaking gibberish (aphasia). It was horrible. Neurosurgery had been following his case and they were wringing their hands, psychiatry requested an EEG, neurosurgery said NOPE, so Psychiatry called in Neurology who said that he was having non-convulsive seizures and ordered an EEG. The EEG confirmed this and low and behold he was given IV Dilantin and a bunch of IV B vitamins (Rally Pack). He was coherent but sleepy in 4 hours.
Either he is in the 1% of people who have severe adverse reactions to Keppra or it did not control the seizure activity. (I still question why an EEG wasn't done as soon as possible.) I noticed in your PatNet that your seizures became worse on Keppra. Are you still taking it? Do you have any 'insider info' about the medication. The folks at the hospital were a little mute about it...I guess I had pitched a bit of a fit early on about the Dilantin.
I would appreciate opinions or findings on this medication.
Many thanks, K.