Off-Topic Forum

The MPIP Off-Topic Forum is a community bulletin board that provides the melanoma community with a safe space to share experiences and to give and find support from others who can relate to having or caring for someone with a melanoma diagnosis. Please note: if you have an urgent question about melanoma to ask the community, visit the main MPIP Forum.

MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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Has anyone else seen the episode where she does reading at a Melanoma fundraiser?

Hoped a few Melanoma Angels would have come through. 

Hopefully she'll continue to spread awareness & raise funds!

Love her!

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I'm me, not a statistic. Praying to not be one for years yet.

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JerryfromFauq's picture
Replies 1
Last reply 10/4/2013 - 12:56am
Replies by: JerryfromFauq

Seems like this is a good place for this topic to be addressed.

I'm me, not a statistic. Praying to not be one for years yet.

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My heart is shattered and I can't stop the tears.  I just read Cigar Bob's post on facebook.  I just can't believe it. It hurts so damn bad.  I can't imagine how Bob is feeling. 

Dian was so intelligent, encouraged and inspired everyone on this board and others, loved and played and sang her beloved blues and bluegrass music, was such a beautiful lady, inside and out, and she was my friend, and a friend to many all over the world. 

I'll always love you, dear sweet Dian, and we're all going to miss you terribly. Rest in peace, Dian.  You fought one helluva fight, all the way to the end; it's time to rest now. 

DAMN MELANOMA ALL TO HELL!!!!!!!!!

 

You fought one helluva fight, all the way to the end; it's time to rest now.   You fought one helluva fight, all the way to the end; it's time to rest now.  

Life is NOT a journey to the grave with the intention of arriving in an attractive & well-preserved body, but rather to skid in sideways, champagne in one hand, strawberries in the other, body totally used up & worn out, & screaming WOOHOOO, WHAT A RIDE!!

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Aimileah's picture
Replies 3
Last reply 8/28/2013 - 5:35pm
Replies by: Aimileah, Dick_K

Hi I'm new to this site so not sure if this is the right place to voice my concerns but I hope you can help. I'm a 28yr old female and for the last year at least I have had a small flat brown mole on the sole of my foot. However recently I have noticed it has grown slightly and has a small white area in the middle of it. Should I be worried? I mentioned it to a nurse practioner a few weeks ago and she just said keep an eye on it? I should also mention my grandad had skin cancer at a young age and that I'm a very fair redhead! Any advice would be great thanks x

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On September 22, 2013 the “7th Annual Miles for Melanoma New Jersey” event takes place at Ginty Field, Morris Township, New Jersey; it’s a 5K run or I mile walk.  NYU has a team, “NYU Fights Melanoma” and you can join it.  You can get to the event through the MRF site or go directly using this link.

http://events.melanoma.org/faf/home/default.asp?ievent=1066302

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jag's picture
Replies 2
Last reply 8/7/2013 - 12:01pm
Replies by: Janner, jag

Hi everybody!

 

Meredith and I are starting what will hopefully be an annual event, maybe we will even get more people to join us as the years go on.  This year we are going to be in an event that raises money for cancer by making us walk 5k around Yankee stadium.  Thats right, all of the stairs and a lap around the field,  You can donate on either one of our pages, 

 

My wife is 

http://runyon5k.kintera.org/meredithre

mine is

http://Runyon5K.kintera.org/gallagherjohna

 

 

If anybody would like to join in with us, you can create your own team, or join ours, (blackmoles).  Just watch out for all of the syringes from A-rod when you pass 3rd base.-you might even get to watch me being passed by a grandma and a little girl since I only have 1 lung and my left leg coordination is all screwy from the brain surgeries I've had.  The great thing about Damon Runyon, is that it doesn't raise money for any specific cancer research it gives grants based on the best researchers for all different types of cancer.  Jedd Wolchok(our oncologist), of Memorial Sloan Kettering once received one of these grants and that turned into a new and better FDA approved treatment for melanoma. (Yervoy)

 

The first 10 donors get a shamwow, and especially big donors will get a PBS tote bag with a Ken Burns CD collection.  Donate within the next 10 minutes and we will even throw in a Slapchop!   

 

Best to everybody and back to the more serious matters at hand  which is you doing your best to kill the beast.

 

As for updates on me, I'm 5 years out with no evidence of disease 40 years old (was especially happy to make it to 40, as that made it 10 years since my diagnosis (30th birthday).  Meredith and I have a son named Jedd, he is now 15 months old and already much more mature than his father.

Meredith and I run a successful mobile veterinary business, and my current treatments are just daily antiseizure medication which I am currently weaning off of.  I thank God for the gift of life every single day.

 

 

God Bless everybody in their battle

 

John/Elmer Fudd (yep the guy nobody liked from the DS.)

Insert Generic Inspirational Motto Here

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dhrahn's picture
Replies 1
Last reply 7/28/2013 - 12:07am
Replies by: JerryfromFauq

Hi everybody - My husband was diagnosed 1 year ago with Stage IV melanoma.  He has been on zelboraf for a year and we had some awesome results but both adrenals are tumors and have started growing again as of last week ct scan.  Devastated, yes.  This last year was almost surreal because my husband was feeling overall really good.  Our oncologist has now presented 2 options...  yervoy or clinical trial.  What do we do?????  We are heading up to Angeles clinic in Santa Monica this Monday and then plan to fly out to Moffitt but I questioning if we should stick with yervoy..... As all of you know this is all so overwhelming.  Any advice would be greatly appreciated. -Holly and Dave

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bridges's picture
Replies 1
Last reply 7/28/2013 - 12:03am
Replies by: JerryfromFauq

Melanoma is a kind of skin cancer which is highly dangerous as stated by many health experts. What are the signs to look for Melanoma ? I am trying to find numbers of signs and symptoms of Melanoma. Can anyone share some details on the subject ?

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BillMFl's picture
Replies 2
Last reply 9/30/2013 - 11:37am
Replies by: BonnieLea, KyCyn

waving hello at ya !

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Anonymous's picture
Anonymous
Replies 2
Last reply 9/30/2013 - 12:04pm
Replies by: BonnieLea, KyCyn

We know Uncle

...........an old Prick!

I know Yawn. Out there just like all of them.

Phillip,

Willie was first person to reply to me. Watching and blended a Barbie Doll post that smelled like fish. I enjoy 2 pieces of her art everyday .

Lot of people. I saw that crazy one armed bike rider at Karmanos and we gave him a party.

Don, post story if have. Help me here.

Dan Patrick sports radio today and a chilling add for us.

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Replies by: JerryfromFauq

People are missing the Main MPIP Melanoma Bulletion Board and not getting responses.   Click on the "GO TO MPIP"  problem is the splitting of

I'm me, not a statistic. Praying to not be one for years yet.

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Story at-a-glance
  • An unapproved strain of genetically engineered (GE) wheat has been found growing on a farm in Oregon. The finding now threatens US wheat exports as many countries do not permit the importation of GE wheat
  • Japan has canceled orders for US wheat in response to the findings. Other major wheat importers are monitoring the situation, and the EU has ordered member states to test imported wheat for contamination
  • The House Agricultural Committee will soon vote on an amendment that would lend support to a potential nullification of states’ rights to label GMOs. Your urgent action is needed!
I'm me, not a statistic. Praying to not be one for years yet.

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My Mom is 79 years old and she was diagnosed with a recurrence of Melanoma yesterday.   Her story with Melanoma has been a couple of years.  About 4 years ago she had some Melanoma on her right arm.   It was determined by a surgical oncologist to to a wide cision graft.  Unfortunately it came back and last year at this time they did it once more.  This past January she broke her leg and we sort of forgot about the Melanoma (my fault) and it was not until the weather got warmer that I noticed it was back.  She thought it was scar tissue as she noticed it nine months earlier and pointed it out to the surgical oncologist who said it was probably scar tissue from the latest graft.

 

I am scared to death for her.  Tommorow she gets an MRI and Thursday she is getting a PET Scan.   What confusing me is the doctor did not do a biopsy he is assuming that since that is the sight of the previous melanoma that this would be a natural conclusion.

 

Has anyone heard of scar tissue that masks itself as melanoma?

 

 

Jim

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patrick mccarthy's picture
Replies 2
Last reply 6/8/2013 - 3:43pm
Replies by: patrick mccarthy, POW

Hi everybody I'm new here. My brother been diagnosed with stage 4 melanoma he also has an 8any help NM brain met where do we start?

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