Off-Topic Forum

The MPIP Off-Topic Forum is a community bulletin board that provides the melanoma community with a safe space to share experiences and to give and find support from others who can relate to having or caring for someone with a melanoma diagnosis. Please note: if you have an urgent question about melanoma to ask the community, visit the main MPIP Forum.

MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Expand/ Collapse Topic
Replies By
View Topic   Peace to you all this holiday!

Login or register to post replies.

BillMFl's picture
Replies 2
Last reply 12/26/2011 - 10:58am
Replies by: Nancylee, vickie

Introducing  Zoie, my 17 month old great grand daughter.  I will never be the same!  They are here for Xmas and I am thrilled  to see a bit of my genetic material result in this fantastic little sweetie.  


Login or register to post replies.

BillMFl's picture
Replies 1
Last reply 12/24/2011 - 4:14pm
Replies by: BillMFl

So I was zip lining down a mountainside on Kauai. The actual site where Jurassic Park was filmed. As far as I know, I was the only dinosauer there haha. 

Login or register to post replies.

dencolt's picture
Replies 8
Last reply 1/25/2012 - 7:30pm

Highs, lows, ups, downs.

Exciting business trips to Singapore, Shanghai, Bangkok, Hamburg, Manchester, Korea... and then being let go due to downsizing.

Losing loved ones; seeing my daughters grow and blossom and become the most unexpected things of all:  individual adults with a glow all their own.

Reconnecting with friends.  Quarreling with family. 

Sleepless nights pondering the future, followed by the joy of sitting down to breakfasts and dinners with my family for the first time in eight years.

Seeing my wife being so happy to see me at home ... and then gently asking if I should spend some time at the outplacement office because, let's face it, I'm not a picnic to be around for 24 hours every day.

A good year, a bad year, an amazing year..

But we're still here.  We're still fighting.  Remembering what's important.  Still making our presence felt to loved ones and friends.

Merry Christmas to you all.  My hopes for a fantastic 2012.

Login or register to post replies.

My dearest wish for all of us here, is that we all get and maintain wellness for ever .   Merry Christmas  and Happy Chanukah and every other time. 

2012 will be a brand new year, new starts for everyone, unfinished business finished. and Faith in Human kind renewed for those that need that particular wish.

Please everyone lets take care of each other.  Only we know how it is.


Love and Much respect

Bonnie Leasmiley

Hang in There

Login or register to post replies.

BarbieGirl's picture
Replies 2
Last reply 12/21/2011 - 9:38am
Replies by: Anonymous

an Asian escort and a pair of Christian Louboutin fuzzy boots!!    (OKOKOK....I'll take the boots!  They're prettier than those fugly UGGS!   If you need my addy, lemme know! I expect them by the 24th!!) 

What's with all the spam here these days?!?   (Oh..... size 9, btw!!)


Merry Christmas, everybody!!

Things are fixin' to get real busy 'round here----mom's coming home from rehab Thursday (still can't put weight on her leg--what the heck am I gonna do?!?)  I'll figure out something!  FIRST thing is getting her outta those damn diapers they have her in.  Ugh!!

Then my oldest sis and bro-in-law are coming the 23rd---first time we've spent Christmas together in decades!! I'm so excited!!   I cooked a turkey at Thanksgiving, but got lazy and ordered a Tyler, TX "Greenberg" Smoked Turkey for Christmas.  Haven't had one in years, they're GREAT, but they are quite pricey.  It's prolly not too late to order one ( 

I wish you all a wonderful Christmas, filled with love, peace, and hope!   I hope Santa brings you everything you need and most of what you want!

Love to you all,



Life is NOT a journey to the grave with the intention of arriving in an attractive & well-preserved body, but rather to skid in sideways, champagne in one hand, strawberries in the other, body totally used up & worn out, & screaming WOOHOOO, WHAT A RIDE!!

Login or register to post replies.

dian in spokane's picture
Replies 7
Last reply 12/21/2011 - 6:29pm

hmm..well.. I have been offline for about a week, and the last day before I left, I couldn't get on here because the site was under construction. Now My link to the off topic forum brings me to the cure ocular melanoma forum, though.. it seems the posts are still from the otbb.


I can't seem to find an actula link TO the off topic forum, so ..has it been dissolved? I also don't see any explanation from the forum owners...can anyone fill me in?


befuzzling it is



Login or register to post replies.

BonnieLea's picture
Replies 4
Last reply 12/15/2011 - 8:42am
Replies by: BonnieLea, lhaley, jag

Picture this....   Today is Monday December 12th.  I was just nodding off for a early afternoon nap.  (in fact so darn lazy still was jammie-fied)  phone rings grab glasses and see that it is one of those  000-0000 numbers  I have learned to answer these.


On Saturday December 10th I had a Neurology appt (remember guys and guyettes I have a VP shunt to help control NPH)  so  along with a brain bleed that happened last May.....I  have never quite regained my senses (I feel)  also moderate constant headache.  But with all this kidney cancer crap shunt problems are furthest from my mind.   SOOOO  my nice neuro guy makes up a request for CT scan of my addled brain.  Me thinks  well par for this course it be ages.  Breathe a sigh of relief.

So back to today....I answer phone..   tis the hobbithall that I am having the kidney thing done next month, and they asked if I could come in  at 1:00 pm. TODAY!    So I had to say  well, I have to call my husband to see if he can take me.  One no car for Bonnie, and plus I don't drive anymore.  So I do, and call them back.  Bob comes home leaving a BOAT IN THE SLINGS  (he was in the middle of hauling out a winterized boat that had caught fire last week)  he leaves said boat hanging,  tells the miserable owners he will be back.

we go to hobbithall,  I get the scan done,   lady pulls me out of machine after the initial scan  asks nicely   "when were you born?"  I answered  she pushes the button and back in I go....zap zap zap  out I roll,  she comes back asks me....did you just come from a doctors office?  (now I am getting worried)  I said well, I had appt on Saturday, they faxed the request today maybe.  She says well thats fine, you are done.


Home I come.  Here I am.  thinking a nap sounds good....but Dr. Phil is soon on here, and then comes Dr. Oz  so what to do what to do?  life of Bonnie.


SIGH!!!  I hope I am done withh appts till after christmas.  Tomorrow I have a GYN appt (scheduled last dec for just a check up)  if they find anything or send me for anything I will BLOW MY TOP!  Just kidding, I will remain calm, cool and collected as per.

Hang in There

Login or register to post replies.

Eehgads's picture
Replies 4
Last reply 12/22/2011 - 8:40pm

She is tucked away in a really special place in my heart. A place only she and I shared. Life has gone on but it is not the same.  I guess it is never the same once you've known Melanoma.

I remember all my special friends that passed away during this time of the year. It is too painful to think aboutmost of the time but once in a while I allow myself to remember.

 I remember our last call,  I didn't realize that three days later her journey would come to an end.

I'd like to think she ise watching over us and laughing, with spaghetti coming out of her nose! (inside joke)




Login or register to post replies.

BonnieLea's picture
Replies 6
Last reply 12/20/2011 - 10:14pm
Replies by: KyCyn, BonnieLea, jag, lhaley

Finally..........  I have  renal cell carcinoma.   NO METS from either Melanoma or Breast Cancer.  Just plain old RCC.  I will have a open partial nephrectomy on Jan 16th. 


What a relief to stop all this worry.  so more Bonnie parts will adorn the shelves only this time it be at a different hospital.  So it (kidley) won't be sitting side by side with boobs, and eyelid.  and various dysplastic goodies.  they will start living life elsewhere.   How weird that this is the 3rd totally unrelated cancer in me.  (cannot say little old me)  but old yep. 

well that be my news for now.

Love Bonnie Lea

Hang in There

Login or register to post replies.

Shaggy 's picture
Replies 8
Last reply 12/19/2011 - 11:54am

Just seeing if any of my old mates are still plenty of news if you remember me....which i doubt many will.Been clear of MM for 16 years now

Login or register to post replies.

BillMFl's picture
Replies 1
Last reply 12/5/2011 - 7:13pm
Replies by: Nad T

Great time with my neices and nephew and their beautiful little ones (7 total). I am "Uncle Bill" to all of them and heap big chief of the clan since my sister passed. Thanksgiving is my favorite holliday, getting together for all the right reasons, sharing food and stories with loved ones.

Eeghads hope you see this. Saw my ex brother in law at Thanksgiving. First time in 20 years since he and my sister divorced. He played for Wisconsin in the "63 Rose Bowl when we were all students there. See that Wisconsin is going back again, two years in a row. Geeze its been a long long time since I stood in Camp Randall Stadium and sang "Varsity".  Have a great time and "U Rah Rah Wisconsin, hail to thee we sing"   Dam I wish I could go back in time and be there again. The 60's were wild and crazy. Now I'm an old fart with memories!

Login or register to post replies.

raysa's picture
Replies 5
Last reply 12/9/2011 - 12:13am

Just checking in to say Hi to all my old friends.  I am doing well.  It was 10 years last May that my husband died from Melanoma.  Wait, did I say yesterday?  Feels like that so many days.  Still feels so fresh and so raw.  And  yet it is better.  My step is lighter.

The people of this board and also the Dark Side (except when it got really bad) helped me so much.  There were so many laughs.  So many fun times.

Just spent the day with Yawn.  He is still the same.  He sends his love.


Login or register to post replies.

Bonnie Lea's picture
Replies 5
Last reply 12/16/2011 - 4:03am
Replies by: Kim K, Bonnie Lea, Nad T, jag, Yawn

Dear Guys and Guyettes. 


Well I survived yet another bx.  this one HURT like the dickens.  I was frozen, (only skin)  but when he plunged what ever into my kidney, man I could not even yell our moan and groan as I was in middle of   "HOLD YOUR BREATH" routine.  But I am sure I whimpered enuff to let them know I was not a happy Bonnie Lea.

He tried a diff sort of way.  Did the pre contrast scan, got where he would see the kidney and lump clear and came back, told me and asked that I maintain that same amount of breath in lungs, as the kidney bobbed up to where he could get perfect view.  So that thought kept my mind focused and it worked, he was very pleased. 

tried the ultra sound prior to this as too many CT scans for me of late..... but it did not show very clear enuff for him to bx the spot.


Home after 5 hours  and stay in bed the rest of the time making up for 24 hours.  Results will (should) be in at my urologists office by next Friday, which amazes me, as first time was 21 days????   (think I slipped through cracks in his office)  but the doctor yesterday said DEF it be in both the urologists office and my little cute lady oncologist (at same hospital)


thats all for now.  Bright sunny day here,  kids have gone on a long day trip to visit their grandmother.   its a four hour drive there and 4 hours back. But she is 93 and felt she was tooo unhappy being here with us  (dark, cold she always said)  well same thing where she is with dear dear family friends who adore her.  It releived tons of stress from me.  Hard to look after a elderly disabled person  (deaf since birth, and now almost blind)  who refuses to acknowledge I am me, and a grown up.  ETC ETC


so I am well as can be expected.  Let you all know when I know.  Thanks for all your good wishes...continue to pray or what ever that this is NOT a met.

Just Keep on Hanging In

Login or register to post replies.

BonnieLea's picture
Replies 4
Last reply 11/30/2011 - 2:20pm
Replies by: Nad T, BonnieLea, yoop, jag



I have the repeat biopsy this friday on la kidley!  third time's a charm I was told.  First time, machine broken for contrast, second time the biopsy was not conclusive and still suspicious now again.  Maybe by the time they finish with me, they will have so many core samples the whole thing will be more holes than a swiss cheese.


Well, one never knows.

Hang in There

Login or register to post replies.