Off-Topic Forum

The MPIP Off-Topic Forum is a community bulletin board that provides the melanoma community with a safe space to share experiences and to give and find support from others who can relate to having or caring for someone with a melanoma diagnosis. Please note: if you have an urgent question about melanoma to ask the community, visit the main MPIP Forum.

MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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KyCyn's picture
Replies 9
Last reply 9/28/2010 - 4:56pm
Replies by: Yawn, jag, NicOz, KyCyn

I saw your posting in the 'chat' stream, but since we can't change subject lines I thought I'd start a new one to say

 

cheekyyesGood To See You Here!!!!!  smileyheart

 

(Emoticons in honor of John and Roxanne :)

 

How's things with you and your daughter these days?

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TinaR's picture
Replies 12
Last reply 9/24/2010 - 9:15am
Replies by: TinaR, Kimmer, jag, KyCyn, Bonnie Lea

*~* Thanks to our President ...

1.  Insurance companies will no longer be permitted to exclude children because of pre-existing health conditons ( 72,000 children will be covered today!) 

2. Insurance companies will be prohibited from imposing lifetime limits on benefits  

3. Customers who join new plans are permitted to keep their old doctors AND appeal reimbursement issues to a third party *~*

And others...but these are what make me happy today  *~* smiley *~*

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is the way that new replys bring the post to the top.  It wasnt' a feature of older board software like the evolution of the MPIP.  It's hard to follow older posts and put them in perspective. It's human nature to think if something is at the top it's a new discussion.  It's great if your on a forum discussing Camping, pets or just about anything else, but in my opinion it really s*cks with a cancer board. 

Tonight was the worst.  I returned from a meeting, turned on the computer, navigated to MPIP and the first post on the main forum was a thread started in July by a member who has recently entered hospice.  Maybe I'm just too sensitive recently.  But I think I'm about to give up the battle over this community.  It's now the MRF Bulletin Board.... Long live the MPIP.

It's not that I try to forget about folks because I ride a bike with names of Warriors and Angels every day abd I add more on a regular basis.  I give thought to them many times a day.  I guess I've just got to pull back and find another place to spend more time.

Jerry from Cape Cod

It's about kickin' Melanoma's butt! "Meh. Get on with it. Do not feed rabid monkeys. To fear is one thing. To let fear grab you by the tail and swing you around is another." in memory of NicOz

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jag's picture
Replies 4
Last reply 9/23/2010 - 12:55am
Replies by: Anonymous, bcl, NicOz

Right after your neurosurgeon removes the stitches that have been irritating you for 3 weeks.

Insert Generic Inspirational Motto Here

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Anonymous's picture
Replies 3
Last reply 9/23/2010 - 6:56pm
Replies by: dian in spokane, Anonymous

Many of us have been here a long time, and can't help but compare how things are now with how they used to be. Like most websites, this one was freer, easier, and funner years ago before a lot of controls and limitations set in. You have all described many of these, so I won't repeat. I will only add that most newer websites that I have seen are less fun and less user-friendly than those that emerged early in the babyhood of the internet. It seems to be the nature of the Web.

But what I am wondering, is how do the newer participants or viewers, who were not nurtured for years on the earlier version of this site, find it? I notice many newer posters on the main board expressing the same kind of joy and gratitude about this board, that most of us did for years before things changed. Since we clearly want more and more patients to benefit by this site, I would like to hear how the newer ones react to it. It drives to the heart of the purpose we are trying to serve.

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dian in spokane's picture
Replies 1
Last reply 9/22/2010 - 6:13pm
Replies by: LV

Maybe about 6 pm? pacific that is..9pm eastern.

drop on in and chat!

dian

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I did, and I really liked it.

 

(Just talking to see if anyone's there :)

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Shelby - MRF's picture
Replies 38
Last reply 9/28/2010 - 4:28pm

Hello everyone,

Per some recent advice I have decided to post this on the off-topic bulletin board as well...

We at the MRF are trying our very best to increase membership and conversation on the bulletin board and on chat.  The bulletin board seems to be thriving, but unfortunately, the chat room is not...to say the least.  So, here are my questions to you:

1.  What would make YOU go into the chat room?

2.  Would you drop in the chat room if we had scheduled guests chatting about various topics?

3.  If so, what topics would you want to chat about?

4.  If so, who would you want to hear from?  Docs, patients, caregivers, Tim (our Director), etc.??

5.  If so, how often would you like to see scheduled chats?  Once/month, twice/month, every week, etc.??

We thank you so much for taking the time to help improve our online community!  Your opinions are very important to us and will not only help you, but also future members of our online community!

Sincerely,

Shelby Moneer, MRF Health Educator 

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Jocelyn's picture
Replies 7
Last reply 9/21/2010 - 4:47pm

Hey Lady Gaga is headlining a rally right near where I live. It's in support of repealing the "don't ask, don't tell" bullshit thing.

I think I will wander over there!

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bcl's picture
Replies 2
Last reply 9/20/2010 - 10:48pm
Replies by: bcl, LV

when I first saw this pic I remember thinking it was odd,  the guy in front was just sashaying along. - how  did he keep the lead at that pace. Now I see he didn't.. wonder what twit thought this one up.
http://ca.news.yahoo.com/s/yahoocanada/100917/canada/egyptian_paper_doctors_photo_of_mubarak_and_obama

 

 

 

warning, swearing follows

I am sickened with the goings on up here. Last weekend in BC a sixteen year old girl was drugged and gang raped, photos have gone viral. The girl has physical injuries. I have heard some of these poor victims do not remember their experiences, except for the trauma to their bodies -that's obviously horrific enough - but this girl has it in stereophonic. And may have for the rest of her life. I really thought that was the limit, but just now, when I went to find the story I see local students are supposedly arguing whether the drugging and violent assault of a girl counts as rape.   W    T    F   Lack of empathy ( or whatever this is) is on the rise and it makes me want to f'n scream.

 

http://ca.news.yahoo.com/s/capress/100917/national/rave_gang_rape

 

 

 

 

 

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Jerry from Cape Cod's picture
Replies 6
Last reply 9/19/2010 - 9:30am
Replies by: TinaR, Anonymous, kwahlbin

Anyone else having problems retrieving posts from the archive search.  I just did a search and tried to open the post.  The browser brought me back to the NEW forum.  I hope that's a temporary problem otherwise we have lost our best resource....

Jerry from Cape Cod

It's about kickin' Melanoma's butt! "Meh. Get on with it. Do not feed rabid monkeys. To fear is one thing. To let fear grab you by the tail and swing you around is another." in memory of NicOz

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jag's picture
Replies 4
Last reply 9/16/2010 - 8:59pm
Insert Generic Inspirational Motto Here

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Bonnie Lea's picture
Replies 6
Last reply 9/15/2010 - 5:37pm

But I simply have to add to the recent news that has made me so happy!   Just got a call from the surgeon I had for my recent axilla surgeries.  Both sides are NEGATATIVE  even some dug out lymph nodes.

 

I am assuming that all sorts of beast stuff was searched for and the whole hunk'o'bonnie is clear of any cancers!!!   Now just to get over one of my worst pain things yet in my opinion, though doctor says different!

Our mothers were right when we heard tales of  "be careful when you shave your armpits'  you do not want a nick there.  Well unfort both my 'pits' have 6 inch nicks attached the the already lines from the bilaterals   BUT I AM SO HAPPY!

And John.... kitties sniff scars too!  they (mine) know it hurts I think from my outbursts and they tap me on the chest front, and stare at my pits.  Don't think I would like them to get all  'licky'   ewwwwww  (a head is different though)

 

wink

Just Keep on Hanging In

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dian in spokane's picture
Replies 22
Last reply 9/16/2010 - 7:44pm

okay...so, obviously things are not fixed yet if both jerry and linda are still having problems logging in.

I know that the 'regular' members are down, but I'd like you ALL to clock IN on this topic and telL us.

If you choose STAY LOGGED IN as an option, are you staying that way? or are you having to reintroduce your information each time you open the page?

There are consequences to this.

you may read the board if you are not logged in, but if you try to post, you may only post as anonymous, unless you log in.. You can NOT get into chat if you are not logged in.

I think MANY people are just hopping on and reading the first few topics and not replying..

so fewer and fewer people reply because they don't want to go to the trouble of logging in

and of course no one comes to chat because you cannot get there without logging in.

please log in long enough to tell if this is an issue for you.

DO YOU HAVE TO LOG IN EVERY TIME YOU VISIT? OR IS THE SITE SAVING THAT AS A PREFERENCE FOR YOU?

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n

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