Off-Topic Forum

The MPIP Off-Topic Forum is a community bulletin board that provides the melanoma community with a safe space to share experiences and to give and find support from others who can relate to having or caring for someone with a melanoma diagnosis. Please note: if you have an urgent question about melanoma to ask the community, visit the main MPIP Forum.

MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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dian in spokane's picture
Replies 1
Last reply 9/22/2010 - 6:13pm
Replies by: LV

Maybe about 6 pm? pacific that is..9pm eastern.

drop on in and chat!

dian

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I did, and I really liked it.

 

(Just talking to see if anyone's there :)

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Shelby - MRF's picture
Replies 38
Last reply 9/28/2010 - 4:28pm

Hello everyone,

Per some recent advice I have decided to post this on the off-topic bulletin board as well...

We at the MRF are trying our very best to increase membership and conversation on the bulletin board and on chat.  The bulletin board seems to be thriving, but unfortunately, the chat room is not...to say the least.  So, here are my questions to you:

1.  What would make YOU go into the chat room?

2.  Would you drop in the chat room if we had scheduled guests chatting about various topics?

3.  If so, what topics would you want to chat about?

4.  If so, who would you want to hear from?  Docs, patients, caregivers, Tim (our Director), etc.??

5.  If so, how often would you like to see scheduled chats?  Once/month, twice/month, every week, etc.??

We thank you so much for taking the time to help improve our online community!  Your opinions are very important to us and will not only help you, but also future members of our online community!

Sincerely,

Shelby Moneer, MRF Health Educator 

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Jocelyn's picture
Replies 7
Last reply 9/21/2010 - 4:47pm

Hey Lady Gaga is headlining a rally right near where I live. It's in support of repealing the "don't ask, don't tell" bullshit thing.

I think I will wander over there!

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bcl's picture
Replies 2
Last reply 9/20/2010 - 10:48pm
Replies by: bcl, LV

when I first saw this pic I remember thinking it was odd,  the guy in front was just sashaying along. - how  did he keep the lead at that pace. Now I see he didn't.. wonder what twit thought this one up.
http://ca.news.yahoo.com/s/yahoocanada/100917/canada/egyptian_paper_doctors_photo_of_mubarak_and_obama

 

 

 

warning, swearing follows

I am sickened with the goings on up here. Last weekend in BC a sixteen year old girl was drugged and gang raped, photos have gone viral. The girl has physical injuries. I have heard some of these poor victims do not remember their experiences, except for the trauma to their bodies -that's obviously horrific enough - but this girl has it in stereophonic. And may have for the rest of her life. I really thought that was the limit, but just now, when I went to find the story I see local students are supposedly arguing whether the drugging and violent assault of a girl counts as rape.   W    T    F   Lack of empathy ( or whatever this is) is on the rise and it makes me want to f'n scream.

 

http://ca.news.yahoo.com/s/capress/100917/national/rave_gang_rape

 

 

 

 

 

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Jerry from Cape Cod's picture
Replies 6
Last reply 9/19/2010 - 9:30am
Replies by: TinaR, Anonymous, kwahlbin

Anyone else having problems retrieving posts from the archive search.  I just did a search and tried to open the post.  The browser brought me back to the NEW forum.  I hope that's a temporary problem otherwise we have lost our best resource....

Jerry from Cape Cod

It's about kickin' Melanoma's butt! "Meh. Get on with it. Do not feed rabid monkeys. To fear is one thing. To let fear grab you by the tail and swing you around is another." in memory of NicOz

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jag's picture
Replies 4
Last reply 9/16/2010 - 8:59pm
Insert Generic Inspirational Motto Here

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Bonnie Lea's picture
Replies 6
Last reply 9/15/2010 - 5:37pm

But I simply have to add to the recent news that has made me so happy!   Just got a call from the surgeon I had for my recent axilla surgeries.  Both sides are NEGATATIVE  even some dug out lymph nodes.

 

I am assuming that all sorts of beast stuff was searched for and the whole hunk'o'bonnie is clear of any cancers!!!   Now just to get over one of my worst pain things yet in my opinion, though doctor says different!

Our mothers were right when we heard tales of  "be careful when you shave your armpits'  you do not want a nick there.  Well unfort both my 'pits' have 6 inch nicks attached the the already lines from the bilaterals   BUT I AM SO HAPPY!

And John.... kitties sniff scars too!  they (mine) know it hurts I think from my outbursts and they tap me on the chest front, and stare at my pits.  Don't think I would like them to get all  'licky'   ewwwwww  (a head is different though)

 

wink

Just Keep on Hanging In

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dian in spokane's picture
Replies 22
Last reply 9/16/2010 - 7:44pm

okay...so, obviously things are not fixed yet if both jerry and linda are still having problems logging in.

I know that the 'regular' members are down, but I'd like you ALL to clock IN on this topic and telL us.

If you choose STAY LOGGED IN as an option, are you staying that way? or are you having to reintroduce your information each time you open the page?

There are consequences to this.

you may read the board if you are not logged in, but if you try to post, you may only post as anonymous, unless you log in.. You can NOT get into chat if you are not logged in.

I think MANY people are just hopping on and reading the first few topics and not replying..

so fewer and fewer people reply because they don't want to go to the trouble of logging in

and of course no one comes to chat because you cannot get there without logging in.

please log in long enough to tell if this is an issue for you.

DO YOU HAVE TO LOG IN EVERY TIME YOU VISIT? OR IS THE SITE SAVING THAT AS A PREFERENCE FOR YOU?

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n

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dian in spokane's picture
Replies 6
Last reply 9/15/2010 - 8:52pm

Today I opened the site and found I was still logged in! YAY! thanks so much.

I have noticed this week that most people aren't logging in (probably because of his problem) So maybe now that it's fixed, we'll start to see a little more member activity.

Thanks a lot,

 

dian

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Kimmer's picture
Replies 2
Last reply 9/13/2010 - 7:51pm
Replies by: jag, LizzM

Just read your response on the on topic board...

I will always stand in awe of your strength.

Love you bunches, K.

And remember, no matter where you go, there you are. Confucius

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jag's picture
Replies 2
Last reply 9/13/2010 - 7:40pm
Replies by: jag, TinaR

Listened to this again, the other day, book on tape I first listened to as a young vet.  Amazing how it can be applied to virtually any situation that deals with change!

Hem

formerly of Cheese sector C.

Insert Generic Inspirational Motto Here

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Replies by: Amy Mason

Across the US, 750,000 individuals are living after a diagnosis of melanoma, and they and their 2 million first-degree relatives can play a huge role in public education. On Saturday, September 25, the Melanoma Foundation of  New England is holding its first-ever planning conference for patients and their families interested in public education outreach. We need your thoughts on how to build this network and create an action plan.

Course Directors: Alan Geller, Harvard School of Public Health and Deb Girard, Executive Director Melanoma Foundation of New England

Date: September 25, 2010
Time: 10am-2pm
Location: MIT Endicott House, Dedham, MA

To attend please RSVP to dgirard@mfne.org, call 978-371-5613 or visit www.mfne.org. There is no charge for the conference.

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