Off-Topic Forum

The MPIP Off-Topic Forum is a community bulletin board that provides the melanoma community with a safe space to share experiences and to give and find support from others who can relate to having or caring for someone with a melanoma diagnosis. Please note: if you have an urgent question about melanoma to ask the community, visit the main MPIP Forum.

MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

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BonnieLea's picture
Replies 5
Last reply 8/28/2010 - 6:05pm
Replies by: Rodensir

Today it is sunny and bright, and your day of days.  Right now you are prob noshing on Amish Breakfast -  and soon you will be  MRS. BURLEY MAN.  ENJOY the day (and the night)devil

 

CONGRATULATIONS and long long life

Bonnie Lea

Hang in There

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Nad T's picture
Replies 1
Last reply 8/28/2010 - 7:33am
Replies by: Anonymous

Unlike Bill, I am a MAN who still works and commands topshelf.  Is any one else on the list to wipe his drool?

 

Hall of Famer she is.

 

Iron ButterFly

 

 

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<object width="400" height="224" ><param name="allowfullscreen" value="true" /><param name="allowscriptaccess" value="always" /><param name="movie" value="http://www.facebook.com/v/139953356045871" /><embed src="http://www.facebook.com/v/139953356045871" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="400" height="224"></embed></object>

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jag's picture
Replies 6
Last reply 8/30/2010 - 10:02pm

Now I'm going to have some weekend fun

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jag's picture
Replies 1
Last reply 8/31/2010 - 12:41pm
Replies by: Yawn

Now I'm going to have some weekend fun

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KyCyn's picture
Replies 15
Last reply 9/1/2010 - 12:35am

Happy Friday everyone!

Can you believe it, I'm getting married tomorrow!!!!!! How the heck did THAT happen????

Actually, it's worked out extremely well, but we didn't know that until the last minute.

Tomorrow morning we're meeting my family at the local Farmer's Market for breakfast  - an Amish family that sells homemade breads, desserts, and milk products has set up a tent with picnic tables and griddle tops.  We ate there before - the menu changes weekly, but last time I got a huge pancake, link sausage (the size of keilbasa) and fresh milk for $3.50.  Then we're stopping by another booth and picking up some sunflowers to decorate the boat, and I ordered a couple of ribeyes from a local farmer and we'll pick those up at the same time.

Burly Man's best friend since childhood will be marrying us, and his wife will be the witness.  The plan is to go out on the boat (we are so lucky weather-wise; it's been in the high 90s for weeks, but a cold front moved in and we are being blessed with 80 degree temps during the day, and 50s at night) and find a little cove.  I'm wearing a white sundress and he's wearing a white shirt and shorts.   The preacher will marry us, his wife will take pictures, then we'll have champagne and music and the fun will begin!!!

It's hard to believe... neither of us ever thought we'd be doing this, but we are both very happy. 

 

YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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BillMFl's picture
Replies 2
Last reply 8/27/2010 - 10:29am
Replies by: KyCyn, jag

Been really busy boating, eating lobster and avoiding politics.  Concerned about what I see as a deepening economic state of stagnation. Following the disasterous and extremely costly wars, I fully expected a period of stagnation and inflation like that which followed the Vietnam war.  Looks different this time. The trillions of dollars thrown away in Iraq and Afganistan should have resulted in an inflationary spiral  as the true costs (much of which is buried in secret budgets) eventually had to be paid with borrowed money. But the effects of the GLOBAL recession are exacerbating and prolonging our domestic problems. Real prices are falling across the board as businesses strugle to increase their sales. Normally this would be considered a healthy "adjustment" to a previously over heated economy. But too much deflation can have negative effects that can further deepen an already stagnate economy. The general public is not confident enough to spend even with falling prices. Safe investment (CDs and Treasuries) are paying little. Business keeps lowering prices but the consumer is afraid to spend or can't afford to spend as jobs are lost and even employed workers feel fear of being laid off. If the economy continues to deflate, small businesses will feel the impact first, but larger industries will eventually too. I am seeing major reductions in existing home prices wherever I go. Cash really talks now (I bought a large boat at a very low price). Its definitely a buyers market if you have the cash. But until the average person regains confidence, jobs and job security, the downward spiral of deflation could be a major risk to the economy. Many investment strategies involving stocks and real estate are based on protection against inflation. My personal opinion is delation is the more important risk at least until the economy stabalizes and improves.

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jag's picture
Replies 6
Last reply 8/27/2010 - 10:32am
Replies by: KyCyn, BonnieLea, bcl, dian in spokane, Anonymous, jag

MRI# 36 shows a midline shift, I am being admitted overnight.  10mg Decadron IV,  2years NED and now this.  Saw the MRI before any doctor came to talk to me.  Back to Being Elmer Fudd.  Back to survival mode.  Cancel the trip to Europe (Merry always did want to see Paris) Now all of the regular work I have has to be canceled again.    Will likely work through the weekend, pretty sure the Neurosurgeon regularly cuts on Tuesdays.  I feel no emotion at all.

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jag's picture
Replies 2
Last reply 8/26/2010 - 2:30pm
Replies by: jag

but I do have a tremendous amount of respect for my doctors.

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jag's picture
Replies 13
Last reply 9/1/2010 - 12:43am

Sitting in Urgent care of MSKCC, hopefully my left sided weakness is only due to old scar tissue, MRI to come.

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Little Pat's picture
Replies 1
Last reply 9/15/2010 - 11:03pm
Replies by: Anonymous

I just finished reading The Third Testament by John Eklund. It is one of the best Christian novels I've ever read. It is about a man whose daughter is diagnosed with metastatic melanoma. It is true to life and takes the reader through the experience of undergoing therapy with high-dose IL-2. It is very inspirational- it deepened my faith and gave me a greater sense of hope. I highly recommend it.

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in one of my many visits to Princess Margaret Hobbithall,  (melanoma)  a nice hunky NEW doctor asked me about my heart murmer!  well I did not know I had a heart murmer, I never had one before.  He then  told me it was rather  pronounced.   He reported it all along with some strange observances, to my fam doc.  

 

During me 'pre surgical check by fam doctor)  which is needed prior to any surgeries my  fam doc ordered a  2D echocardiogram.  They got me inn the SAME DAY for this test.   It was NEAT to watch and listen.  No results yet.  But it better not stop my already scheduled 'extra side boob remmovals'

 

I know most murmers are innocent?  this one has a neat name.  "newly found Systolic Ejection Murmer'  I am afeered I will become more famous at my local hobbithall.  Yesterday, we went in for the pre surgical blood labs, tests, ECG, paper work, anasthesiologist consult, and pharmacutical check of the drugs I am on at present.   THEY ALL KNEW ME!  I think they think I live for the hobbithall.   EWWWW  it is a nice cosy one, but Ii am not in love with it! hahah.

Countdown to non reconstruction (shunt disqualifies me totally)  but I need the infamous 'dog ears'  (more like grapefruits removed from both axillae. (and pathology OF COURSE)  is September 8th.  I am taking bets on how many drains this time?  (turkey basters I mean)

 

Just Keep on Hanging In

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jag's picture
Replies 6
Last reply 8/26/2010 - 4:28pm
Replies by: KyCyn, jag, Bonnie Lea, bcl, LV, Kimmer

Currently, I am in a bit of a tiff with the misses, since I don't have the heart to be mean to her, I have come up with an alternative plan: Moustache protest.  So far it hasn't worked.  Any advice?

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http://bedbugregistry.com/

 

( I hear they charge extra for your friendly guests who want to have a snack)

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KyCyn's picture
Replies 2
Last reply 8/25/2010 - 3:31pm
Replies by: KyCyn, jag

It's soooo weird... I mean, she looks normal, but obviously she has something against cats!  I didn't want to watch the video but my Burly Man (not to be confused with Bonnie Lea's Burly Man :) told me it all ended well, so then I figured it was safe.

 

But I'm glad they know who did it, poor little kitty...

 

Cyn

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