Off-Topic Forum

The MPIP Off-Topic Forum is a community bulletin board that provides the melanoma community with a safe space to share experiences and to give and find support from others who can relate to having or caring for someone with a melanoma diagnosis. Please note: if you have an urgent question about melanoma to ask the community, visit the main MPIP Forum.

MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

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TinaR's picture
Replies 6
Last reply 8/14/2010 - 9:23pm
Replies by: TinaR, Bonnie Lea, DonW

Zip?  Sad.

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jag's picture
Replies 2
Last reply 8/14/2010 - 9:29pm
Replies by: jag, TinaR

Boston Med.

go to WABC.com and you can watch full episodes.   Phenomenal People. 

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DonW's picture
Replies 2
Last reply 8/15/2010 - 8:10pm
Replies by: Kimmer, LV

I found this message in the chat room ( you know how a few posts remain on the chat room screen after you log out and the next person sees it. ).

tanyasteve: this is a post for Jerry Ellis (Thomas). He is in the ICU at ST.Anthony Central in
Denver. He was badly injured while riding a horse last night. He was flight for lifed. He has
major trauma to his face.

So, bad news. I hope he's doing OK.

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TinaR's picture
Replies 9
Last reply 8/17/2010 - 11:47pm

Instead of NEXT YEAR my son is getting married....this fall.  Shopping for bride's wedding dress - fun. Shopping for Mother of Bride and Mother of Groom dresses...not so much.

#1. I don't mind the colors they say I can't wear --whatever the bride hates, the wedding party is wearing or her Mother, if it clashes with color scheme : fall colors- I'm cool toned skin/hair... NOT warm/fall, but  fine fine. No black...even though I feel...well, never mind- fine fine.

 

#2. I don't mind the length they feel the MOG should wear...whatever, I will do any but trashy micro mini.

 

#3. I don't mind taking the the general 'style' of the wedding into consideration ( Fal lcolors, sit down, jazz band- 3 attendants each)

 

# 4. I don't mind - I prefer that my dress be understated.

 

What I DO mind...

Suggestions that I wear THIS or THAT because the MOB isn't too thrilled I'm younger, smaller and able to show my legs, neck, arms, waist, elbows wrists, ankles, feet ( face?!?!!?).

Suggestions that I wear a LONG, long-sleeved beaded coat over suggested type dress( which is  baggy) .

 

Holy crap, scratch that...HOLY SHIT.

 

I HAVE A TERRIBLE HEADACHE and my heart is pounding--- I will be wearing a taupe burka, I just know it :(  On the up side, my daughter's brides maid dress is lovely...a pretty, understated, 50's style, satin, spaghetti strap, burgundy tea length with a  set in waist. The Maid of Honor and the other bridesmaid's dresses will be the same but strapless . Lovely.

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jag's picture
Replies 0

Sure she beats the hell out of people who take care of her, but behind it all, there is someone else who did something much worse. 

http://www.nypost.com/p/news/international/mandela_charity_official_resigns_FwoKHa1Wj2NFLSujzvO06K

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debbieVA's picture
Replies 59
Last reply 9/9/2010 - 6:11pm

This obtained from Jerry's son. Todd's, fb Account:

 

So, we left the hospital around 3am after Dads surgery. THey repaired his facial fractures, most anyways. Removed the endotracheal tube and gave him a tracheostomy for his neck now. He also had a Peg tube(feeding) put in. they hope to clear his cspine today by MRI. He also has a new arterial liine and the PICC line was taken out. Still no update as to his mental status, he hasn't awaken as of yet.
This update cut & pasted from Jerry's son's fb site. 
 
 
Please continue to lift Jerry and his family in your prayers.  
 
debbieVA
 

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jag's picture
Replies 12
Last reply 8/24/2010 - 6:49pm

 

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KyCyn's picture
Replies 2
Last reply 8/25/2010 - 3:31pm
Replies by: KyCyn, jag

It's soooo weird... I mean, she looks normal, but obviously she has something against cats!  I didn't want to watch the video but my Burly Man (not to be confused with Bonnie Lea's Burly Man :) told me it all ended well, so then I figured it was safe.

 

But I'm glad they know who did it, poor little kitty...

 

Cyn

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http://bedbugregistry.com/

 

( I hear they charge extra for your friendly guests who want to have a snack)

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jag's picture
Replies 6
Last reply 8/26/2010 - 4:28pm
Replies by: KyCyn, jag, Bonnie Lea, bcl, LV, Kimmer

Currently, I am in a bit of a tiff with the misses, since I don't have the heart to be mean to her, I have come up with an alternative plan: Moustache protest.  So far it hasn't worked.  Any advice?

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in one of my many visits to Princess Margaret Hobbithall,  (melanoma)  a nice hunky NEW doctor asked me about my heart murmer!  well I did not know I had a heart murmer, I never had one before.  He then  told me it was rather  pronounced.   He reported it all along with some strange observances, to my fam doc.  

 

During me 'pre surgical check by fam doctor)  which is needed prior to any surgeries my  fam doc ordered a  2D echocardiogram.  They got me inn the SAME DAY for this test.   It was NEAT to watch and listen.  No results yet.  But it better not stop my already scheduled 'extra side boob remmovals'

 

I know most murmers are innocent?  this one has a neat name.  "newly found Systolic Ejection Murmer'  I am afeered I will become more famous at my local hobbithall.  Yesterday, we went in for the pre surgical blood labs, tests, ECG, paper work, anasthesiologist consult, and pharmacutical check of the drugs I am on at present.   THEY ALL KNEW ME!  I think they think I live for the hobbithall.   EWWWW  it is a nice cosy one, but Ii am not in love with it! hahah.

Countdown to non reconstruction (shunt disqualifies me totally)  but I need the infamous 'dog ears'  (more like grapefruits removed from both axillae. (and pathology OF COURSE)  is September 8th.  I am taking bets on how many drains this time?  (turkey basters I mean)

 

Just Keep on Hanging In

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Little Pat's picture
Replies 1
Last reply 9/15/2010 - 11:03pm
Replies by: Anonymous

I just finished reading The Third Testament by John Eklund. It is one of the best Christian novels I've ever read. It is about a man whose daughter is diagnosed with metastatic melanoma. It is true to life and takes the reader through the experience of undergoing therapy with high-dose IL-2. It is very inspirational- it deepened my faith and gave me a greater sense of hope. I highly recommend it.

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jag's picture
Replies 13
Last reply 9/1/2010 - 12:43am

Sitting in Urgent care of MSKCC, hopefully my left sided weakness is only due to old scar tissue, MRI to come.

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jag's picture
Replies 2
Last reply 8/26/2010 - 2:30pm
Replies by: jag

but I do have a tremendous amount of respect for my doctors.

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