Off-Topic Forum

The MPIP Off-Topic Forum is a community bulletin board that provides the melanoma community with a safe space to share experiences and to give and find support from others who can relate to having or caring for someone with a melanoma diagnosis. Please note: if you have an urgent question about melanoma to ask the community, visit the main MPIP Forum.

MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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Rdmstm's picture
Replies 5
Last reply 8/3/2012 - 1:06am
Replies by: porton, wsx111, jag, KyCyn

I just received news that I have melanoma in situ and I'm very frightened and feel like I'm in a very bad nightmare. I have meetings next week with 2 differen surgeons to advise me treatment. I'm terrified that they are going to provide me with a bad prognosis. This is what my path report said:

melanoma in-situ, early lesion
 (note: the lesion extends to lateral margins)

Clinical Data History:
shave w/ margins, 0.2 x 0.3 new 2 tone macule, R/O A typical nevus

Microscopic Description
Melanocytes, some of which have hyperchromatic nuclei, are arranged as solitary units and in nests with the epidermis.  There is poor circumscription and in foci melanocytes arranged as solitary units predominate over nests.

Any words of wisdom or questions I should ask my doctor would be greatly appreciated! Thank you

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BonnieLea's picture
Replies 3
Last reply 6/15/2012 - 10:40am
Replies by: KyCyn, Kimmer, jag

well, On June 18th I head for shunt revision, this time with a programmable one.  (no magnets for me, means no MRI's anymore) woe betide.  The other more important news is my hubby is doing swell.

 

He had a heart attack on May 16th or rather they call it Ventricular Tachacardia.  Was in hobbithall for 12 days and ended up having a pacemaker/debibulator installed  (no magnets for him either)

 

Our kiddies have been great, helping with driving as Bob is not allowed to drive until check up on the 18th.  Ya ya same day as my brain surgery.  Oh well. But it all is good and I have been quite firm in 'making him sit, stay and be quiet'  His heart rate went up to 282 thereabouts. and much to his shock....he was zapped before they could sedate him. Even cutting off his clothes (one of which was his bestus Grundy Lake fleece zipped sweat.  He was at work, up on the travel lift, (he works in a marina)  he felt dizzy (no pain) came down, rested went back up came down, then one of the customers was wondering why Bob was not yelling at his staff as they were trying to move a big house boat and well, lets say Bob barks.  This customer was a paramedic and immed called 911.

He came over to get me, telling me  "Bonnie, I really need you to come with me"  now at my age......havent heard that one in eons. hahah  I did not know this man...but he saw my face, and immed said  Oh my name is so and so, I am a friend of Bob's and he has been taken to hospital.  You must come now.

MAN WHAT A SHOCK  but I quickly grabbed stuff to wear, (important things like my WINTER COAT? duh......  and away we went.  Had managed to call DD who in turn called her bro, and they all met us at the emmerg.

 

It has def been a May month I do not wish to repeat.   This is why I have been silent.   We still hope to go off into the woods and fight bears.  Me with bald head, and Bob with strange metal thing in his chest.  (now he has a larger boob)  hahah

 

Love Bonnie

Hang in There

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Replies by: Nad T, jag, BonnieLea

They volunteer to be warriors.

http://youtu.be/hkGzqpGx1KU

<iframe width="420" height="315" src="http://www.youtube.com/embed/hkGzqpGx1KU" frameborder="0" allowfullscreen></iframe>

Insert Generic Inspirational Motto Here

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Alanw12's picture
Replies 9
Last reply 12/16/2013 - 2:24am

I'm writting my paper and need to extract some paragraph out of pdf materials, but the pdf can not be copied, so I need to tranfer them to word so that I can use them freely. Any idea to do that? Do I have to use a software or any tools?

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Alanw12's picture
Replies 2
Last reply 3/6/2014 - 3:20am
Replies by: Barrieimage, arronlee

I'm writting my paper and need to extract some paragraph out of pdf materials, but the pdf can not be copied, so I need to tranfer them to word so that I can use them freely. Any idea to do that? Do I have to use a software or any tools?

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imissmommy2003's picture
Replies 1
Last reply 5/21/2012 - 11:47am
Replies by: Julie in SoCal

Hi I am a 17 year old girl from Washington State. I want to meet new people my age who have had to go threw the pains of melanoma.

 

(I myself have not had it but my mother passed away in June of 2003 from melanoma skin cancer)

Live Life to the fullest, and live with no regrets because at one moment, because at one moment it is what you wanted. Music is life. Love your mommy no matter what.

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BonnieLea's picture
Replies 1
Last reply 5/19/2012 - 7:24pm
Replies by: lhaley

well........ seems Ii am the only one here.  (lots reading though)

 

CT scan of last week showed a shunt malfunction.  So a rush appt was made for me to see the neuologist at a big Toronto hobbithall (the same one that put it in back in 2007.  sigh......  least it explains the falls, and dizzy and nausea, and NOT METS  whahoooo.

Luff BonnieLea

Hang in There

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BonnieLea's picture
Replies 7
Last reply 5/19/2012 - 10:03am
Replies by: Janner, jag, qaz444, Kimmer

whew..... the hospital called with a new CT scan date.  This coming Friday (may 11th)  fingers crossed my brain is still there.  Hope everyone is fine and dandy.   KJ Loved your MOON SHOT  imagine if you will Cappi sort of superimposed in front howling like some beeeeegledawgs do.  what a shot that would be.

I find it so very strange....you guys viewed the same moon at the same time as we did.  It shone into our bedroom kept the kitties all anxious.  ArCee is a werewolf I swear!  she chatters away.   Our ensuite has a sun/moon roof  and the beams just beam right in flooding the rooms.  But same moon, same sight.  Neat huh?

Hang in There

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Kimmer's picture
Replies 2
Last reply 5/7/2012 - 8:47am
Replies by: MarieM, Kimmer

I am replying with some kind of generic inspirational phrase here:

How friggin' kewl is this, JAG and Merry?

And remember, no matter where you go, there you are. Confucius

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BonnieLea's picture
Replies 5
Last reply 5/6/2012 - 1:25pm
Replies by: Kimmer, yoop, jag, BonnieLea

going for a brain scan tomorrow.  See whats up in there!  I am so sure I will glow in the dark.  Hope everyone is fine and dandy.  No word yet from the Jag of this world.

Hang in There

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BonnieLea's picture
Replies 2
Last reply 5/10/2012 - 8:01am
Replies by: BonnieLea, Anonymous

I just watched a video on the yahoo news thingy about a New Jersey woman who allegedly took her 6 year old (red hair fair skin) dotter into a tanning booth.  She claims the dotter was just in the room not in the what its called coffin?

 

However, the video of the woman arguing that she did nothing wrong,  she is the most leathery off colour person I have ever seen.  My oh My what is the world coming to.  She sounds like she has a bad smoking habit, (rough voice)  so what will get her first....HMMMM  I know I am prob being judgmental but hey!  I THOUGHT most of the states had outlawed it?  the tanning parlour also figures in the on going police investigation.  She is charged with child endangerment, and bail set for I think 25,000.00

Hang in There

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yoop's picture
Replies 8
Last reply 5/2/2012 - 5:30pm
Replies by: Kimmer, BonnieLea, jag, yoop

Hey Jag, what's the status?
Yikes, it's lonely in here. Five shillings for the dark side to be back.
Roll call maybe? Yawn, Dan, Bonnie lea, bill, jag, bg, Tina, Amy, den colt, fountainhead, Charlie, Jerry, sweeeeeet Marie, anon....?
Let's start with me.... All legal fun is a thing of the past.. Moved to the country..(more like bfe). Baby girl, (9), will have last cosmetic surgery for nasty dog bite that created a very large V on her forehead. And, I have a magazine that is going to publish my stories...
Yoop

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BarbieGirl's picture
Replies 1
Last reply 4/20/2012 - 5:46pm
Replies by: Bonnie Lea

I spoke with Allen just a bit ago, and found out his wife, Carol, passed away peacefully on April 14th. A 'celebration' of her life was held today. Even though Carol didn't have melanoma, I feel this needed to be posted on the main board. Allen hung around here for many, many years sharing his knowledge, wisdom, encouragement, hope and grief with so many. His family is there with him, and he said he's doing okay; just glad that Carol is now pain free in Heaven. Carol and Allen would have celebrated their 40th wedding anniversary this year; and she spent many of those years by Allen's side, fighting this beast. She encouraged him to do what he felt he needed to do, and go where he felt he needed to go, to fight his melanoma. Allen hasn't posted much here since the bulletin board changed, and his computer crashed, so he lost all his contacts. If you'd like to contact him, his email address is redneck_77 @ att.net (no spaces).

I've met Allen--he even stayed overnight once in my barbie room! =) I wanted to meet Carol sooo much, especially when I was in Ft. Lauderdale last summer, but things just didn't work out. I chatted with her on the phone several times over the last few years. My heart is breaking right now. Please keep Allen and the family in your hearts, thoughts and prayers.

I love you, Allen, and I'm so sorry. There are no words, only tears......

*Hugz* from my heart to yours,

~Lisa~ 

Life is NOT a journey to the grave with the intention of arriving in an attractive & well-preserved body, but rather to skid in sideways, champagne in one hand, strawberries in the other, body totally used up & worn out, & screaming WOOHOOO, WHAT A RIDE!!

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Wentworth Miller's picture
Replies 12
Last reply 7/10/2014 - 12:16am
Replies by: Rolaure, Julias, jhnjohn, Anonymous, gigiwill, angelahill, lilywen

There are some photos in my iphone and I have to transfer them to my pc for editing. So I synced my iphone to computer and open itunes. Normally the pictures will appear on itunes but this time the folder was empty! I really don't know what's going wrong! Could u pls help me...

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