Adriana Cooper

I have friends tell me all the time how strong I am but it's hard sometimes when faced with this diagnosis. Two years ago I was Stage IIb and thought I was going to be good for a while...

I will admit, I have not always been playing it safe in the sun. I grew up in southern Ohio, lots of sun and swimming. We laid out with baby oil back then. I did do tanning beds as well. I am pale, freckled and blonde (well my hair is pink right now). So without further ado here is my melanoma story:

At the age of 36, I was diagnosed with Stage IIb on my upper left forearm. Had two nodes removed negative. Had a wide excision done removed a 2cm area. So thought, OK, get back to life. Guess cancer had other plans. I was almost 2yrs cancer free when I noticed a bump just above my elbow not too far from my primary. I went in for a check with my primary doctor and asked him to look.  He removed my first melanoma. He said it was most likely a fatty tissue and would remove it for peace of mind - great, one less thing. I then get the call to call him back ASAP. I knew. The dreaded M word. It was .8cm (the largest fragment). Next step: scans at Seattle Cancer Care and seeing my oncologist. Now I get the results from the scans: 15 spots in my lungs and the largest being 8mm. And 2 small spots in my liver. Meet with a pulmonary physician at University of Washington to do a lung biopsy on one spot, which came back melanoma. Now I was given the diagnosis no one wants - Stage IV metastatic melanoma. I was prepared for it. I have accepted it. I was more reaked out with the first diagnosis. 

It's a scary world to live in when cancer is involved. I have goals set for myself that I wish to accomplish before my time here is finished. I have a wonderful fiance who, without him, I would be going crazy. He is my rock. I have two wonderful children whom I adore. My life's goal is to see them graduate college. I plan on reaching that goal. I will fight to the end. And educate others as I go along. My story is not over.... 

There is no toe tag on my foot.....

Mon, 2014-06-02

Comments

holy moly melanomy - (9/22/2014 - 4:13pm)

This is completely random - I haven't been on this page for a good year or so.  I came on today to see if anyone knows of a support group in the OC where I am.  For some reason, I decided to go to patient stories and I see yours and click on it.  And then I see your story...

I wanted a support group because my latest freak out is a mass that is about an inch or so under my wide excusion scar.  The doctor also suspects that it's a lipoma/fatty tissue - but I am completely terrified for obvious reasons.  Also, in the last two months I have been having sciatic issues on the same left side as the scar/mass and I've never had those issues before in my life.  Not to mention the left leg seems to fall asleep quicker/more often than it has as well.  I have an appointment with a surgeon this Thursday and will insist on removal

So, completely random that I decided to pick your story out.  Did your feel like 'fat'?  Did you ever suspect otherwise?

I hope all is well with you!

"Everything happens for a reason"

holymolymelanomy.blogspot.com

 

Carlos P - (10/25/2014 - 10:48am)

Hi Adriana, I am so sorry to learn about your current conditions, keep up faith! I just found out that I am at stage IIb and waiting to see the plastic surgeon to remove more tissue from the side of my neck.

I am worried, and was wondering if you could offer some advise for when I see the surgeon, questions to ask, treatment etc...

 

Carlos

adriana cooper - (12/11/2015 - 12:51am)

SBRT on Arm followed by Yervoy

Failed Yervoy with severe joint and back pain and swelling resulting in need for can end walker for a period of time. Stopped after 3rd infusion.

Found small bone met in sacroiliac area.

On Predizone and Dexamethasone for quite some time for joint pain and BRAFi side effect control.

Zelboraf and Taf/Mek combo worked well for about 11 months(classic results with substantial tumor reduction)

Brain Met revealed and Gamma Knife Treatment 10/2015

Brain Met bleeding and edema 11/2015

12/2015 start Keytruda with swelling and joint pain on day 2 - we are concerned

 

Rob and Adriana

 

Adriana