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Privacy Policy

Privacy Policy

Melanoma Research Foundation Privacy Policy

The Melanoma Research Foundation (“MRF” or “we,” “us,” or “our”) is committed to protecting your privacy. We have prepared this Privacy Policy to describe to you our practices regarding the Personal Data (as defined below) we collect when you use our website as well as when you communicate with us or provide us information offline (collectively, the “Service”).

1. User Consent.  By submitting Personal Data through the Service, you agree to the terms of this Privacy Policy and you expressly consent to the processing of your Personal Data in accordance with this Privacy Policy.

2. A Note to Users Outside of the United States.  Your Personal Data may be processed in the country in which it was collected and in other countries, including the United States, where laws regarding processing of Personal Data may be less stringent than the laws in your country.  We adhere to the United States / European Union Data Protection Safe Harbor Arrangement, which can be located at https://www.export.gov/safeharbor/.

3. Types of Data We Collect.  The MRF collects Personal Data and Anonymous Data from you when you send us information or communications and/or when you use the Service.  “Personal Data” means data that allows someone to identify or contact you, including, for example, your name, address, telephone number, e-mail address, as well as any other non-public information about you that is associated with or linked to any of the foregoing data.  “Anonymous Data” means data that is not associated with or linked to your Personal Data; Anonymous Data does not permit the identification of individual persons.  We collect Personal Data and Anonymous Data, as described below.

3.1 Personal Data You Provide to Us.  We collect Personal Data from you, such as your first and last name, e-mail and mailing addresses, and phone number, when you do any of the following:

  • Donate money through the Service;
  • Sign up for an online newsletter or other informational or promotional communications;
  • Sign up as a volunteer or member;
  • Create or modify your account on the Service;
  • Provide us feedback or contact us via e-mail or the Service;
  • Elect to post or submit messages, questions, comments, or other content to the Service; or
  • Provide information at any point in the Service that states that Personal Data is being collected.

3.2 Personal Data Collected via Technology.  To make our Service more useful to you, we collect Personal Data from you through our servers (which may be hosted by a third party service provider) and/or third party tools,  including:

  • Browser type, operating system, and Internet Protocol (IP) address (a number that is automatically assigned to your computer when you use the Internet, which may vary from session to session);
  • Date/time stamp for your visit; and
  • Cookies (as defined below) and navigational data like Uniform Resource Locators (URL) to gather information regarding the date and time of your visit and the solutions and information for which you searched and which you viewed.  Like most Internet services, we automatically gather this Personal Data and store it in log files each time you visit the Service.  “Cookies” are small pieces of information that a website sends to your computer’s hard drive while you are viewing a web site.  We may use both session Cookies (which expire once you close your web browser) and persistent Cookies (which stay on your computer until you delete them) to provide you with a more personal and interactive experience on our website.  Persistent Cookies can be removed by following Internet browser help file directions.  If you choose to disable Cookies, some areas of our website may not work properly.

4. Use of Your Data

4.1 General Use.  In general, Personal Data you submit to us is used either to respond to requests that you make, or to aid us in serving you better.  If you contact or interact with us offline and provide us with your phone number, name, street address, or email address, we will retain that information for our records, and may combine that information with information collected online or from third-party sources. We may use that information to contact you regarding events, news items, or health-related topics.The MRF uses your Personal Data in the following ways:

  • Provide improved administration of the Service;
  • Improve the quality of experience when you interact with the Service;
  • Facilitate the creation of and secure your account on our network;
  • Send you administrative e-mail notifications, such as security or support and maintenance advisories;
  • Respond to your inquiries related to employment opportunities, questions about melanoma, or other requests;
  • Respond to comments or messages you post on the Service;
  • Thank you for your donation; and
  • To send you promotional communications or our online newsletter.

4.2 Creation of Anonymous Data.  We may create Anonymous Data records from Personal Data by excluding information (such as your name) that makes the data personally identifiable to you.  We use this Anonymous Data to analyze request and usage patterns so that we may enhance the content of the Service and improve site navigation.  The MRF reserves the right to use and disclose Anonymous Data in its sole discretion.

4.3 Feedback.  If you provide feedback to us on the Service, we may use such feedback for any purpose; provided we will not associate such feedback with your Personal Data.  The MRF will collect any information contained in such communication and will treat the Personal Data in such communication in accordance with this Privacy Policy.

5. Disclosure of Your Personal Data

5.1 Affiliates.  Although we currently do not have a parent company, any subsidiaries, joint ventures, or other companies under a common control (collectively, “Affiliates”), we may in the future. We may share some or all of your Personal Data with these Affiliates, in which case we will require our Affiliates to honor this Privacy Policy.  If another company acquires our company or our assets, that company will possess the Personal Data collected by it and us and will assume the rights and obligations regarding your Personal Data as described in this Privacy Policy.

5.2 Other Disclosures.  Regardless of any choices you make regarding your Personal Data (as described below), the MRF may disclose Personal Data if it believes in good faith that such disclosure is necessary to (a) comply with relevant laws or to respond to subpoenas or warrants served on the MRF; or (b) protect or defend the rights or property of the MRF or users of the Service.

6. Third parties

6.1 Personal and/or Anonymous Data Collected by Third Parties.  We may receive Personal and/or Anonymous Data about you from other sources like telephone or fax, or from companies that provide services, such as, but not limited to, co-branded websites or services and online donations (“Third Party Companies”).  Our Third Party Companies may supply us with Personal Data, such as your name, address, and email address.  We may add this information to the information we have already collected from you via the Service to improve the Service, to send you a thank you, or to send you our online newsletter. Our provision of a link to any other website or location, such as, but not limited to, donation processing websites, is for your convenience and does not signify our endorsement of such other website or location or its contents.  When you click on such a link, you will leave our site and go to another site.  During this process, another entity may collect Personal Data or Anonymous Data from you. We have no control over, do not review, and cannot be responsible for, these outside websites or their content.  Please be aware that the terms of this Privacy Policy do not apply to these outside websites or content, or to any collection of data after you click on links to such outside websites.

6.2 Disclosure to Third Party Service Providers and Third Party Companies.  Except as otherwise stated in this policy, we do not generally sell, trade, share, or rent the Personal Data collected from our services to other entities. We will not share the information we collect from you offline with third parties, other than parties acting on our behalf, such as contractors, agents, or vendors. Unless you provide your consent, we will not share information you provide offline with parties engaged in online behavioral advertising or for purposes other than those described in this Privacy Policy. However, we may share your Personal Data with third party service providers to provide you with the Service; to conduct quality assurance testing; to facilitate creation of accounts; to provide technical support; to send you our online newsletter, to enable online donations, or to provide other services. These third party service providers are required not to use your Personal Data other than to provide the services requested by the MRF.  You expressly consent to the sharing of your Personal Data with our contractors and other service providers for the sole purpose of providing services to you. We do not sell or share your Personal Data with Third Party Companies. If you wish to have your information deleted from our records, please contact the MRF at [email protected] or (800) 673-1290.

6.3 Links to Other Sites.  Our Service contains links to Internet sites maintained by third parties. These links are provided for your reference only. We do not control, operate or endorse in any respect information, products, or services on such third-party sites and are not responsible for their content. Many third-party sites have their own privacy policies that differ from ours. This Privacy Policy only covers our Service and does not cover any other site.

6.4 Social Media. The MRF believes that the information contained on our social media pages might be helpful for our families and supporters. Sharing this information does not indicate an official endorsement from the MRF of the organizations from where the information was shared.

Like many other websites on the Internet, our site uses social network or third-party sharing plug-ins and widgets that may provide information to the associated third-parties and social networks about the pages on our site you visit, even if you do not “click” on or otherwise interact with the plug-in or widget. The information transmitted to the social network may include your unique identifier for the social network (that they may use to personally identify you) as well as the title (or “URL”) of the page on our site you visited. If you use social network tools or visit social networking sites, you should read their privacy disclosures, to learn what information they collect, use and share.

7. Donation Information.  If you choose to donate to the MRF via our website, we or our third-party service provider will collect your payment information. To make any payments via the Service you will be required to give us, or our third party service providers a valid credit card number and associated payment information at the time you are required to make such payments, including all of the following: (1) your name as it appears on the card, (2) the credit card type, (3) the date of expiration of your credit card, (4) any activation numbers or codes needed to charge your card, and (5) billing address. You agree that no additional notice or consent is required before we (or our third party service providers) invoice your credit card provided to us for all amounts payable. We use our partners and third-party service providers to assist with billing and payment processes. Any Personal Data you provide to such third-party service provider will be subject to that third-party service provider’s privacy policy and website terms of use, and not to this Privacy Policy or our terms of use.

8. Your Choices Regarding Your Personal Data

8.1 Choices.  We offer you choices regarding the collection, use, and sharing of your Personal Data.  We may periodically send you free newsletters and e-mails that directly promote the use of the Service and /or provide you information on our goals and progress.  When you receive newsletters or promotional communications from us, you may indicate a preference to stop receiving further communications from us and you will have the opportunity to “opt-out” by following the unsubscribe instructions provided in the e-mail you receive or by contacting us directly (please see contact information below).  Should you decide to opt-out of receiving future mailings, we may share your e-mail address with third parties to ensure that you do not receive further communications from third parties.  Despite your indicated e-mail preferences, we may send you administrative e-mails regarding the Service or notices of any updates to our terms of use or Privacy Policy.  You may not opt-out of these communications, which are not promotional in nature, but if you do not wish to receive these announcements, you have the option to deactivate your membership account.

8.2 Changes to Personal Data.  You may change any of your Personal Data in your account by sending an e-mail to us at the e-mail address set forth below.  You may request deletion of your Personal Data by us, but please note that we may be required (by law or otherwise) to keep this information and not delete it (or to keep this information for a certain time, in which case we will comply with your deletion request only after we have fulfilled such requirements).  When we delete any information, it will be deleted from the active database, but may remain in our archives.

9. Shared or Public Areas of the Service.  Please be aware that if you enter any Personal Data into public or shared sections of the Service, such as, but not limited to, the chat room and bulletin board, your Personal Information will be displayed to anyone who has access to these sections of the Service.  The MRF has no control over, and will have no liability to you regarding, other users’ use or disclosure of such Personal Data.

10. Security of Your Personal Data.  The MRF is committed to protecting the security of your Personal Data.  We use a variety of industry-standard security technologies and procedures to help protect your Personal Data from unauthorized access, use, or disclosure.  Despite these measures, you should know that the MRF cannot fully eliminate security risks associated with Personal Data and cannot guarantee that unauthorized access to your information will never occur.

11. Contact Information.  The MRF welcomes your comments or questions regarding this Privacy Policy.  Please e-mail us at [email protected] or contact us at the following address or phone number:

Melanoma Research Foundation
Attn: Website Coordinator
1420 K Street NW 7th Floor
Washington, D.C. 20005
(800) 673-1290

12. A Note About Children.  We do not intentionally gather Personal Data about visitors who are under the age of 13.

13. Changes to This Privacy Policy.  This Privacy Policy is subject to occasional revision, and if we make any substantial changes in the way we use your Personal Data, we will notify you by prominently posting notice of the changes on the Service.  Any material changes to this Privacy Policy will be effective thirty (30) calendar days following our posting of notice of the changes on our site.  These changes will be effective immediately for new users of the Service.  In any event, changes to this Privacy Policy may affect our use of Personal Data that you provided us prior to our notification to you of the changes.  If you do not wish to permit changes in our use of your Personal Data, you must notify us prior to the effective date of the changes that you wish to deactivate your account with us.  Continued use of the Service following notice of such changes shall indicate your acknowledgement of such changes and agreement to be bound by the terms and conditions of such changes.

Last Updated: July 22, 2020