Events

Guest Post: Finding Knowledge and Feeling Loved at the CURE OM Patient Symposium

June 26, 2018 | Categories: Causes, Events, Ocular Melanoma, Patient Stories

I first heard about the CURE OM Symposium via Facebook and wanted to attend. However, in the past the timing just didn’t gel with my work schedule. To my delight, this year’s meeting fell at a time that I was able to take off of work to attend. 

Trial participants invited to "Meet the Scientist" in Denver, attend MRF Gala

March 20, 2018 | Categories: Events, Treatment

Meet the Scientist: Your Chance to Speak with the Mind Behind the COLUMBUS Phase 3 Trial in BRAF-Mutant Melanoma

Rare Disease Day: Ross's Story

February 26, 2018 | Categories: Causes, Events, Patient Stories, Policy, Types of Melanoma

Guest blog post from April Muhlbauer, MRF advocate and mother of a 13-year-old pediatric melanoma warrior.

“I didn’t know anything about melanoma or skin cancer before I got it. I didn’t think I would ever get cancer. I want kids and adults to be aware and know about skin cancer so they can do things to prevent it from happening to them. I want people to know about my cancer and learn from it to protect themselves.”
- Ross Muhlbauer, 13

2017 Miles for Melanoma Top Fundraisers

December 19, 2017 | Categories: Events, News

As we cross the finish line for the 2017 season, the MRF's Miles for Melanoma team is reminded of the wonderful memories, powerful experiences and dedicated individuals and teams we met at events across the country this year. From Boston to San Diego, volunteer fundraisers came together to celebrate each other, honor loved ones and, most importantly, raise much-needed funds for life saving melanoma research. Below are the top individual and team fundraisers for each event:

Miles for Melanoma Boston

In Faith's Words: Connecting with the OM Community

May 8, 2017 | Categories: Events, Ocular Melanoma, Patient Stories

My name is Faith Hauss and in February of 2015 I was diagnosed with ocular melanoma in my left eye at the age of 42. As compared to other forms of cancer, and even the more common cutaneous (skin) melanoma, the outlook for those with this rare disease can feel devastating to say the least, with as many as of 50% of patients succumbing to the cancer.

#GetNaked in Times Square!

April 5, 2017 | Categories: Events, News

We are excited to announce that the MRF’s #GetNaked campaign for melanoma early detection is now being shared in one of the busiest locations in the world – Times Square! Located in the heart of New York City with over 300,000 visitors each day, this is an amazing opportunity to increase melanoma awareness and share the life-saving importance of early detection.

In Melissa's Words: Why I Support the MRF

March 8, 2017 | Categories: Causes, Events, Patient Stories

There are four words that no one can prepare you for in life.

When I was 31 years old I found a small lump on the left side of my neck. Two doctors and many friends and family told me it was nothing. My body and my mind were telling me otherwise. Unfortunately, I was right.

In Chrisi's Words: Coming Together to CURE OM

October 19, 2016 | Categories: Events, Ocular Melanoma, Patient Stories

When you have cancer, particularly a rare cancer like ocular melanoma, one of the most important things is to connect with others who understand what you are experiencing.

In Christy's Words: The 2nd Annual Pediatric Melanoma Summit

August 22, 2016 | Categories: Events, Patient Stories

"Mommy, thank you so much for taking me to Great Wolf Lodge again!" Moses wrapped his arms around my neck, with great big tears streaming down his face.

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