News

Update on the CURE OM Patient Registry

June 2, 2017 | Categories: News, Ocular Melanoma

“As a patient with choroidal melanoma with metastasis to liver, lymph node and brain, I want to share as much information as possible with other patients, researchers and clinical teams while I still can. They should have access to my story, my history, what has worked for me, what has not worked for me. We need to make headway in finding a cure so the next generation is not asking the same questions we are.

Melanoma Awareness Month and a New Look for the MRF

May 1, 2017 | Categories: News

Dear Friends,

Today marks the beginning of Melanoma Awareness Month, a time for our community to come together to educate others and support melanoma survivors and patients. Starting today, you will notice a change to the MRF logo. The MRF board and staff felt that now, our 21st year, was the perfect opportunity to update our logo to better reflect who we are and where we are going as an organization. 

Take Action: Students Need Sunscreen at School

April 19, 2017 | Categories: News, Policy, Prevention

Yesterday, both the Today Show and NBC Nightly News broadcast stories about a disturbing prohibition of sunscreen in schools and the difficulty many parents have in ensuring their child is sun safe during the school day. 

#GetNaked in Times Square!

April 5, 2017 | Categories: Events, News

We are excited to announce that the MRF’s #GetNaked campaign for melanoma early detection is now being shared in one of the busiest locations in the world – Times Square! Located in the heart of New York City with over 300,000 visitors each day, this is an amazing opportunity to increase melanoma awareness and share the life-saving importance of early detection.

Take Action: Stop the NIH Budget Cuts

March 21, 2017 | Categories: News, Policy, Research

The newly proposed federal budget would cut $5.8 billion from the National Institutes of Health (NIH) budget in fiscal year (FY) 2018, which would be a crippling blow to the scientific community.

Support CURE OM with DIFF & Joelle Fletcher

November 22, 2016 | Categories: News

The MRF’s CURE OM initiative is proud to announce a partnership with DIFF Charitable Eyewear and former star of The Bachelorette,

MRF's CURE OM Initiative Welcomes Jacqueline Kraska

October 6, 2016 | Categories: News, Ocular Melanoma

One of the central challenges with studying a rare disease is that there is little information available. Ocular melanoma (OM) is a rare disease, with only about 2,000 individuals diagnosed each year. To-date it has been difficult for the medical community to have access to information that would inform better prevention, diagnostics, treatments and outcomes.

Honoring President Carter, A 2016 Courage Award Winner

October 5, 2016 | Categories: News

The MRF honors President Jimmy Carter with a Courage Award in recognition of his fight against melanoma and the awareness he raised by sharing his experience with the public.

In Kristin's Words: A Patient Perspective on Research

September 20, 2016 | Categories: News, Ocular Melanoma, Patient Stories, Research

Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding.

In Memoriam: Randy Lomax

July 29, 2016 | Categories: News

The MRF and the melanoma community are mourning the loss of Randy Lomax, who died from melanoma on July 28, 2016.

Randy was diagnosed with Stage III melanoma in 2000, a time when no real treatment options existed. He knew that he was at a high risk of recurrence and so enrolled in clinical trials to try to lower that risk. And he became an advocate. Not just any advocate, but one who made a major contribution.

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