News

September 20, 2016 | Categories: News, Patient Stories, Research

In Memoriam: Randy Lomax

July 29, 2016 | Categories: News

The MRF and the melanoma community are mourning the loss of Randy Lomax, who died from melanoma on July 28, 2016.

Randy was diagnosed with Stage III melanoma in 2000, a time when no real treatment options existed. He knew that he was at a high risk of recurrence and so enrolled in clinical trials to try to lower that risk. And he became an advocate. Not just any advocate, but one who made a major contribution.

MRF & the Vice President's Cancer Moonshot Program

July 27, 2016 | Categories: Events, News
Last month I was invited to participate in a summit meeting for Vice President Biden’s Cancer Moonshot program, the aim of which is to achieve 10 years of progress in fighting cancer in only five years. Already this initiative has resulted in significant new collaborations and synergies, and I want to share a few details with you:
 

#CUREOM Unite! - Thank You!

October 30, 2015 | Categories: News

The results are in and #CUREOM Unite! was a tremendous success! Thank you to everyone who gave so generously to this campaign to further patient-centered ocular melanoma (OM) research!

A Global Effort Against Melanoma

December 19, 2014 | Categories: Events, News

In November, the MRF convened an international group of melanoma patient advocates with the goal of advancing the global fight against this disease.

It Takes a Village - the Surgeon General's Call to Action

July 31, 2014 | Categories: News

Your voice is needed now more than ever before.

Guest Post: What the FDA Tanning Announcement Means to Me

June 5, 2014 | Categories: News

Melanoma survivor Danielle Russo shares her thoughts on the tremendous FDA announcement about increasing regulations on indoor tanning beds.

Government Shutdown - Essential Personnel

October 3, 2013 | Categories: News

For the first time in 2 decades, the U.S. government has shut down. Media have focused a great deal of attention on the closure of national parks and restrictions to veterans’ benefits. In social media, the outrage over the National Zoo’s “Panda Cam” has run high. Yet, the impact this shutdown will have on the health of Americans, and particularly those with cancer, is largely being overlooked.

FDA to Consider Patient Perspective in Drug Development

November 8, 2012 | Categories: News, Treatment, Research

The FDA is launching a new program in which they will consider and incorporate the patient perspective into drug development.  They will choose 20 diseases for the program and the MRF is lobbying to have melanoma be one of them.  As we all know, the patient perspective is important in any disease, but it is especially true with melanoma. 

Here is my letter to the FDA expressing this great need in the field of melanoma.

Teaching Our Kids Right From Wrong

May 4, 2012 | Categories: News, Prevention

Nobody has ever accused me of being at a loss for words. Ever. But I got awfully close to speechless when I saw the story of a New Jersey mom arrested for putting her daughter into a tanning booth at a salon. Many of the facts around the story are in dispute, though nobody is contradicting what the school nurse saw. A little girl with a serious sunburn. The girl told the nurse that her mom took her tanning.

Pages