News

Support CURE OM with DIFF & Joelle Fletcher

November 22, 2016 | Categories: News

The MRF’s CURE OM initiative is proud to announce a partnership with DIFF Charitable Eyewear and former star of The Bachelorette,

MRF's CURE OM Initiative Welcomes Jacqueline Kraska

October 6, 2016 | Categories: News, Ocular Melanoma

One of the central challenges with studying a rare disease is that there is little information available. Ocular melanoma (OM) is a rare disease, with only about 2,000 individuals diagnosed each year. To-date it has been difficult for the medical community to have access to information that would inform better prevention, diagnostics, treatments and outcomes.

Honoring President Carter, A 2016 Courage Award Winner

October 5, 2016 | Categories: News

The MRF honors President Jimmy Carter with a Courage Award in recognition of his fight against melanoma and the awareness he raised by sharing his experience with the public.

In Kristin's Words: A Patient Perspective on Research

September 20, 2016 | Categories: News, Ocular Melanoma, Patient Stories, Research

Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding.

In Memoriam: Randy Lomax

July 29, 2016 | Categories: News

The MRF and the melanoma community are mourning the loss of Randy Lomax, who died from melanoma on July 28, 2016.

Randy was diagnosed with Stage III melanoma in 2000, a time when no real treatment options existed. He knew that he was at a high risk of recurrence and so enrolled in clinical trials to try to lower that risk. And he became an advocate. Not just any advocate, but one who made a major contribution.

MRF & the Vice President's Cancer Moonshot Program

July 27, 2016 | Categories: Events, News
Last month I was invited to participate in a summit meeting for Vice President Biden’s Cancer Moonshot program, the aim of which is to achieve 10 years of progress in fighting cancer in only five years. Already this initiative has resulted in significant new collaborations and synergies, and I want to share a few details with you:
 

#CUREOM Unite! - Thank You!

October 30, 2015 | Categories: News, Ocular Melanoma

The results are in and #CUREOM Unite! was a tremendous success! Thank you to everyone who gave so generously to this campaign to further patient-centered ocular melanoma (OM) research!

A Global Effort Against Melanoma

December 19, 2014 | Categories: Events, News

In November, the MRF convened an international group of melanoma patient advocates with the goal of advancing the global fight against this disease.

It Takes a Village - the Surgeon General's Call to Action

July 31, 2014 | Categories: News

Your voice is needed now more than ever before.

Guest Post: What the FDA Tanning Announcement Means to Me

June 5, 2014 | Categories: News

Melanoma survivor Danielle Russo shares her thoughts on the tremendous FDA announcement about increasing regulations on indoor tanning beds.

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