Ocular Melanoma

#EyeGetDilated: Alina Itkis

December 8, 2017 | Categories: Ocular Melanoma, Patient Stories

#EyeGetDilated because… I want to continue exploring the world with my mom. I know this statement may not exactly make sense, so let me explain.

#EyeGetDilated: Deborah Smith

November 22, 2017 | Categories: Ocular Melanoma, Patient Stories

Guest blog post by OM survivor and #EyeGetDilated advocate, Deborah Smith:

#EyeGetDilated: William Karp

November 15, 2017 | Categories: Causes, Ocular Melanoma, Patient Stories

Guest blog post by OM survivor and #EyeGetDilated advocate, William Karp:

Near Life Experiences

October 25, 2017 | Categories: Ocular Melanoma, Patient Stories

Ocular melanoma survivor and 2017 MRF Courage Award recipient Aaron Davis on the importance of "near life experiences."

Update on the CURE OM Patient Registry

June 2, 2017 | Categories: News, Ocular Melanoma

“As a patient with choroidal melanoma with metastasis to liver, lymph node and brain, I want to share as much information as possible with other patients, researchers and clinical teams while I still can. They should have access to my story, my history, what has worked for me, what has not worked for me. We need to make headway in finding a cure so the next generation is not asking the same questions we are.

In Faith's Words: Connecting with the OM Community

May 8, 2017 | Categories: Events, Ocular Melanoma, Patient Stories

My name is Faith Hauss and in February of 2015 I was diagnosed with ocular melanoma in my left eye at the age of 42. As compared to other forms of cancer, and even the more common cutaneous (skin) melanoma, the outlook for those with this rare disease can feel devastating to say the least, with as many as of 50% of patients succumbing to the cancer.

In Chrisi's Words: Coming Together to CURE OM

October 19, 2016 | Categories: Events, Ocular Melanoma, Patient Stories

When you have cancer, particularly a rare cancer like ocular melanoma, one of the most important things is to connect with others who understand what you are experiencing.

MRF's CURE OM Initiative Welcomes Jacqueline Kraska

October 6, 2016 | Categories: News, Ocular Melanoma

One of the central challenges with studying a rare disease is that there is little information available. Ocular melanoma (OM) is a rare disease, with only about 2,000 individuals diagnosed each year. To-date it has been difficult for the medical community to have access to information that would inform better prevention, diagnostics, treatments and outcomes.

In Kristin's Words: A Patient Perspective on Research

September 20, 2016 | Categories: News, Ocular Melanoma, Patient Stories, Research

Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding.

Summer's Story: The Need for an OM Patient Registry

August 24, 2016 | Categories: Causes, Ocular Melanoma, Patient Stories, Research

Summer shares her ocular melanoma story and why she joined the #CUREOM Unite! campaign to support the development of a national ocular melanoma patient registry.

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