Patient Stories

In Chrisi's Words: Coming Together to CURE OM

October 19, 2016 | Categories: Events, Ocular Melanoma, Patient Stories

When you have cancer, particularly a rare cancer like ocular melanoma, one of the most important things is to connect with others who understand what you are experiencing.

Meet Dr. David Abrutyn, Melanoma Survivor and MRF Awardee

September 27, 2016 | Categories: Patient Stories

Twelve years ago, Dr. David Abrutyn's wife, Danielle, noticed a mole on the back of his leg. He was initially assured by a dermatologist that it was benign and could just be watched. However, ten months later, while he was doing his sports medicine fellowship in California, he went to another dermatologist who biopsied it. It was melanoma.

In Kristin's Words: A Patient Perspective on Research

September 20, 2016 | Categories: News, Ocular Melanoma, Patient Stories, Research

Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding.

Summer's Story: The Need for an OM Patient Registry

August 24, 2016 | Categories: Causes, Ocular Melanoma, Patient Stories, Research

Summer shares her ocular melanoma story and why she joined the #CUREOM Unite! campaign to support the development of a national ocular melanoma patient registry.

In Christy's Words: The 2nd Annual Pediatric Melanoma Summit

August 22, 2016 | Categories: Events, Patient Stories

"Mommy, thank you so much for taking me to Great Wolf Lodge again!" Moses wrapped his arms around my neck, with great big tears streaming down his face.

In Linda's Words: 5th Annual CURE OM Eyes on a Cure Symposium

March 24, 2016 | Categories: Events, Ocular Melanoma, Patient Stories
Melanoma has been a part of my life since 2004. November 2004 I was diagnosed with Stage I cutaneous (skin) melanoma and in January 2008 I was diagnosed with ocular melanoma (OM). In March 2008 I had plaque brachytherapy treatment to treat the tumor in my eye.

In Amy's Words: Despicable Melanoma - My Minions at Universal Studios

March 17, 2016 | Categories: Diagnosis, Events, Patient Stories
Six years ago I noticed a dark line in my finger nail that continued to worsen over the course of the year. After my nail started lifting from the nail bed, I went to see my dermatologist where I was told I had nothing to worry about. I decided to seek out a second opinion where the reaction was, "I am sure it's fine, but we can do a biopsy if you'd like." I was diagnosed with acral melanoma two weeks later on April 18, 2011. I was only 25.

Julie & Amelia - #GivingTuesday 2015

November 25, 2015 | Categories: Events, Ocular Melanoma, Patient Stories
#GivingTuesday is Tuesday, December 1, 2015! Join Julie and Amelia in Supporting the MRF.
 

Guest Post: Dr. Sacks, Ocular Melanoma and Gratitude

November 12, 2015 | Categories: Ocular Melanoma, Patient Stories

Ocular melanoma survivor Anne Marie Montijo reflects on the passing of Dr. Oliver Sacks and her own goal to live each day with a spirit of gratitude.

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