Patient Stories

In Faith's Words: Connecting with the OM Community

May 8, 2017 | Categories: Events, Ocular Melanoma, Patient Stories

My name is Faith Hauss and in February of 2015 I was diagnosed with ocular melanoma in my left eye at the age of 42. As compared to other forms of cancer, and even the more common cutaneous (skin) melanoma, the outlook for those with this rare disease can feel devastating to say the least, with as many as of 50% of patients succumbing to the cancer.

In Melissa's Words: Why I Support the MRF

March 8, 2017 | Categories: Causes, Events, Patient Stories

There are four words that no one can prepare you for in life.

When I was 31 years old I found a small lump on the left side of my neck. Two doctors and many friends and family told me it was nothing. My body and my mind were telling me otherwise. Unfortunately, I was right.

In J.B.'s Words: A Face of Mucosal Melanoma

January 27, 2017 | Categories: Patient Stories, Types of Melanoma

J.B. Ward is one of the 1% of melanoma patients with mucosal melanoma. She and the MRF have partnered to raise money for an educational video of mucosal melanoma patients to educate others about this extremely agressive cancer. Click here to learn more about and contribute to her efforts to help stop this especially deadly melanoma.

In Chrisi's Words: Coming Together to CURE OM

October 19, 2016 | Categories: Events, Ocular Melanoma, Patient Stories

When you have cancer, particularly a rare cancer like ocular melanoma, one of the most important things is to connect with others who understand what you are experiencing.

Meet Dr. David Abrutyn, Melanoma Survivor and MRF Awardee

September 27, 2016 | Categories: Patient Stories

Twelve years ago, Dr. David Abrutyn's wife, Danielle, noticed a mole on the back of his leg. He was initially assured by a dermatologist that it was benign and could just be watched. However, ten months later, while he was doing his sports medicine fellowship in California, he went to another dermatologist who biopsied it. It was melanoma.

In Kristin's Words: A Patient Perspective on Research

September 20, 2016 | Categories: News, Ocular Melanoma, Patient Stories, Research

Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding.

Summer's Story: The Need for an OM Patient Registry

August 24, 2016 | Categories: Causes, Ocular Melanoma, Patient Stories, Research

Summer shares her ocular melanoma story and why she joined the #CUREOM Unite! campaign to support the development of a national ocular melanoma patient registry.

In Christy's Words: The 2nd Annual Pediatric Melanoma Summit

August 22, 2016 | Categories: Events, Patient Stories

"Mommy, thank you so much for taking me to Great Wolf Lodge again!" Moses wrapped his arms around my neck, with great big tears streaming down his face.

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