Patient Stories

Guest Blog: Nikki's Concert for a Cure

October 10, 2018 | Categories: Causes, Patient Stories

Guest blog post by Chrissy Sorrells.

In October of 2012, my little sister, Nikki, was diagnosed with stage IV metastatic melanoma and our lives were forever changed. This is her story:

Guest Blog: My Melanoma Experience

August 13, 2018 | Categories: Patient Stories

My Melanoma Experience
By David H. Marx

• ADVOCATE
• THE PERFECT NIGHT
• MY MELANOMA STORY BEGINS
• JOURNEY
• DIAGNOSIS
• GAME PLAN
• HOMEWORK: UNDERSTAND YOUR DIAGNOSIS
• ATTITUDE and POWERFUL EMOTIONS
• SURGERY
• TREATMENT
• AWARENESS
• COURAGE
• ATTITUDE IS EVERYTHING

Finding a Support Network: The MRF Lifeline

July 16, 2018 | Categories: Causes, Patient Stories

Most of us have had our struggles attempting to navigate the world of medicine. From working to make sure you meet with the right doctor to trying to understand the information given to you at an appointment, the healthcare system can be an overwhelming journey. This journey can be something simple, but for my younger brother, Steven Michael Bienz, the medical network became his second home and navigating this world was a fight for his life.

Guest Post: Finding Knowledge and Feeling Loved at the CURE OM Patient Symposium

June 26, 2018 | Categories: Causes, Events, Ocular Melanoma, Patient Stories

I first heard about the CURE OM Symposium via Facebook and wanted to attend. However, in the past the timing just didn’t gel with my work schedule. To my delight, this year’s meeting fell at a time that I was able to take off of work to attend. 

#GetNaked: Jackie's Story

May 10, 2018 | Categories: Causes, Patient Stories, Prevention

“While my friends were applying for jobs and graduate school, my doctor told me not to make plans beyond five years.” – Jackie

 

#GetNaked: Missy's Story

May 10, 2018 | Categories: Causes, Patient Stories, Prevention

“He had just had a full checkup. It changed that suddenly.” – Missy

 

#GetNaked: Joe's Story

May 10, 2018 | Categories: Causes, Patient Stories, Prevention

“One month before our wedding, I noticed a lump.” – Joe

 

Meet Chris, MRF Courage Award Recipient

May 2, 2018 | Categories: Causes, Patient Stories

May is Melanoma Awareness Month and we can think of no better way to start the month than by recognizing a melanoma warrior and celebrating the real and lasting impact that MRF supporters have on the melanoma community.

Rare Disease Day: Ross's Story

February 26, 2018 | Categories: Causes, Events, Patient Stories, Policy, Types of Melanoma

Guest blog post from April Muhlbauer, MRF advocate and mother of a 13-year-old pediatric melanoma warrior.

“I didn’t know anything about melanoma or skin cancer before I got it. I didn’t think I would ever get cancer. I want kids and adults to be aware and know about skin cancer so they can do things to prevent it from happening to them. I want people to know about my cancer and learn from it to protect themselves.”
- Ross Muhlbauer, 13

Pages