MRF Blog

A Day With the Doctors

May 14, 2012 | Categories: Ocular Melanoma, Research

I spent the day last week in a meeting with doctors and researchers who gathered to discuss ocular melanoma, or melanoma of the eye.  It was the first bi-annual scientific meeting of CURE OM, the MRF’s program focusing on this rare cancer.  Spending 11 hours discussing the science of this cancer was informative and, frankly, rather exhausting.  Several things struck me about this meeting:

  • Some three dozen people volunteered their time to travel from across the country and Europe so they could sit in a windowless hotel meeting room, eat cafeteria-type food, and discuss the best ways to advance the understanding of this cancer.  This reflects amazing commitment to helping patients live longer and better.
  • Finding ways to collaborate across research centers and disciplines is essential to accelerating progress.  We cannot afford the price of institutional and professional rivalry, and the commitment of these researchers to collaborate with each other was impressive .  
  • With rare cancers and cancers in which the field is changing quickly, the place where a patient receives their care and the professional who provides that care, can have a significant impact on how long and how well they live.  People fighting this disease must be ready to advocate for themselves and seek out second, third and fourth opinions, fearless of offending anyone.
  • Despite tremendous progress in understanding the biology of cancer, we still have too many unanswered questions.  Cancer cells are riddled with mutations that give them the ability to do something they should never be able to do—divide out of control, avoid being destroyed by the immune system, shut down the normal self-destruct mechanisms.  This makes these cancer cells remarkably difficult to kill.

Most of all, though, I was struck by the atmosphere of hope.  At the end of the meeting, we described several specific actions that CURE OM can coordinate that will advance the science, improve standards of care for patients, and facilitate collaboration.  For me, that was a very long day, very well spent.


- (5/30/2012 - 11:31am)

I agree completely with the sentence, "People fighting this disease must be ready to advocate for themselves and seek out second, third and fourth opinions, fearless of offending anyone."

With two separate doctors, I have experieced anger and animosity when I have inquired, very politely, their opinion on whether a specific symptom was permanent.  Their attitude was that if I was alive, I should be grateful and not waste their time asking about symptoms.  (My eye tumor was small and grew very slowly, with a consequent low risk of metastasis.) 

It has been a shock and disappointment that the doctors with whom I have to deal in this rare disease, have so little  empathy with their patients.

- (8/5/2012 - 11:52pm)

The entire world is acutely aware in retaining alone green and that is what dominates the prom of the new approaching year. Inexperienced attire are gracing catwalks and at the initial. Regarded as timeless masterpieces you will discover shades of inexperienced for a refreshing makeover. Not just green it in regards to the all new earthy feel by cladding attire blending in with it. Other hues competing with them range from mossy to turquoise, and a person to suit every skin tone.   Go to the new arrival promenade gown variety for suggestions around the most recent tendencies and fashions developing in earthy <strong><a href="">Karen Millen Dresses</a></strong> colour promenade attire. Earthy colors compliment halter necks fully in time and available in manner to <strong><a href="">Coast Dresses Sale</a></strong>  fit absolutely everyone, layering and ruffling is absolutely fun, flirty and attractive and adorned lacy waistlines and also the cinching and folding done on promenade attire with excessive care and sophistication adapt by themselves fantastically aided by the glam prom celebration.     Apparel web sites go green with Layered hi to reduced superb <strong><a href="">Karen Millen Outlet</a> </strong> outfit in Grass Inexperienced, strapless prom attire <strong><a href="">Coast Dress</a> </strong> with asymmetrical embellished borders and ruching along the bodice and Column model promenade dress with layers in hi to low hemline, impeccably tailored interesting strapless bodice promenade dresses in light inexperienced comforting hue complimented by a graceful ball gown silhouetted pleated web skirt. It can be simply just stylish to go to the pure colors and that is an embodiment of favor Regardless of whether it can be about the charmeuse gown owning scooped neckline with a lower back again or perhaps the glamorous rhinestone on the bust line or about promenade attire owning a ball gown silhouetted skirt in Emerald inexperienced, or even the modishly made prom attire at an astounding value, the <strong><a href="">Coast Dresses UK</a></strong> A line skirt in net with flares as well as two tier accented layers in Olive, Ocean Inexperienced and in Army green, it is actually planning to be a full coloration transformation inside the most eco-friendly manner. It may for that reason start a revolution in prom manner for 2010 also viewed on star studded superstar parties and on the academy awards.  Then arrives the at any time the greater desirable short lengths formal attire that is in vogue, competing with equal majestic feel with it counterpart promenade dresses in very long lengths. The stylish limited version is therefore, catching attention. There may be the ruched cross above styled strapless bodice prom dresses as well as a pleated brief skirt in remarkable pistachio, glamorous outfit by using a strapless bodice and belted waistline with frills that flatter and terrific silhouetted knee duration promenade attire in Inexperienced.   You can expect to also be fascinated by the refreshingly distinctive and completely vivacious flattering shades of 'chocolate' brown on the subject of celebration promenade dresses this calendar year. Shades of brown look fantastic on most skin tones and appear specifically good over a tan skin tone and is a neutral shade contrasting alone with all the other in pattern mixing up while in the two tone promenade attire in addition. Other lively colours are the, not so earthy but very in trendy metallic shades, like gold or silver, more eco-friendly colors like Turquoise, Forest Inexperienced, Lime, Green Yellow, Chartreuse and even more on the earthy and nature helpful Mint, Moss, Tea Inexperienced, Pear, Pistachio in excellent mermaid, A- line and ball robe silhouettes using the asymmetrical prom dresses in array. The fashion assertion for 2010 is hence to receive in fashion with these colors and silhouettes in head for glamorous makeovers for 2010 proms.

- (6/18/2013 - 9:27am)

Have you ever eaten something at a five-star restaurant and wanted to buy the secret recipe? Have you ever tried to make the same recipe at hom? The tips provided in this article will help you figure out how to create your most-loved meals,NBA caps as well as discover new favorites. Many people love to cook and find it an enjoyable and rewarding activity. Try adding cauliflower to your mashed potatoes to lower the fat content. Because cauliflower has a pretty bland taste, it blends well with the potatoes and enhances the flavors of the other ingredients. Additionally, cauliflower has the same texture and color as mashed potatoes, so it makes it an easy, healthy addition to your dish. Give pie and tart crust a little longer baking time than you normally would for the best results. It will help if you achieve a darker, more delicious golden caramel color, rather than stopping when the crust is still pale. This deeper color is evidence that the sugar has caramelized in the crust for added sweetness. Preparation is key when cooking for family or friends. Make sure you have all the ingredients ready. Get out everything that you'll need including the ingredients and utensils a day ahead of time. Doing so allows you to focus on the cooking itself. A lot of preparatory work can be done ahead of time in order to speed up time spent cooking. Look at your recipe and decide which steps you can do in advance without worry of food spoilage.New Era Snapback caps Do the prep work the day before. Even if you are faced with a challenging recipe, it can make everything go quickly. If you are seasoning some meats, you should try a small  piece of it before you cook all of it. Hamburgers, meatballs and meatloaf all require some careful seasoning. Do not cook everything right after adding the seasoning. Instead, make a little piece into a patty and cook it first. After you do this you can either completely cook it or add more seasoning as you see fit. Before frying raw potatoes, allow them to soak for half an hour in a bowl of cold water; this will result in crispier fries. A cold water soak helps the potatoes stand up to the rigors of deep fat frying. Use vegetable or chicken stock to saute hats pink This way you'll use less oil while still giving the veggies a nice flavor. You will thoroughly enjoy this way of preparing your vegetables. It can also be used on other foods, rather than just on meat. You can add it to scrambled eggs or make a tasty snack by sprinkling a bit on some roasted pumpkin seeds. Everyone will wonder what you're doing to make things taste so delicious! Now you are on the path to being a chef at home! Let your creativity take control, and experiment with new flavors,  ingredients and recipes for all your meals. Because there are so many different foods from so many different cultures, the possibilities are endless! Click here

macknigsley - (9/4/2013 - 2:41am)

I must say that would be a better experience spend a entire day with a doctor brings several health changes among us. We are getting quality information from the doctors in regarding how to maintain a good health and to prevent from disease. During our health falls we should go for a health expert (doctor) who is professionally trained to deal with such problems. So I was just estimating that spending a day with a doctor should brings several informative action in our minds towards dealing with health problems and also brings several informative things in regarding different kind of diseases.

Urgent care Phoenix

Add new comment

Filtered HTML

  • Web page addresses and e-mail addresses turn into links automatically.
  • Allowed HTML tags: <a> <blockquote> <br> <cite> <code> <dd> <div> <dl> <dt> <em> <li> <ol> <p> <span> <strong> <ul>
    Allowed Style properties: background, background-attachment, background-color, background-image, background-position, background-repeat, border, border-bottom, border-bottom-color, border-bottom-style, border-bottom-width, border-color, border-left, border-left-color, border-left-style, border-left-width, border-right, border-right-color, border-right-style, border-right-width, border-style, border-top, border-top-color, border-top-style, border-top-width, border-width, color, height, margin, margin-bottom, margin-left, margin-right, margin-top, min-height, min-width, padding, padding-bottom, padding-left, padding-right, padding-top, text-indent, width
  • Lines and paragraphs break automatically.

Comment filtered HTML

  • Web page addresses and e-mail addresses turn into links automatically.
  • Allowed HTML tags: <a> <blockquote> <br> <cite> <code> <dd> <div> <dl> <dt> <em> <img> <li> <ol> <p> <span> <strong> <ul>
  • Lines and paragraphs break automatically.

Plain text

  • No HTML tags allowed.
  • Web page addresses and e-mail addresses turn into links automatically.
  • Lines and paragraphs break automatically.
By submitting this form, you accept the Mollom privacy policy.