MRF Blog

In Chrisi's Words: Coming Together to CURE OM

October 19, 2016 | Categories: Events, Ocular Melanoma, Patient Stories

When you have cancer, particularly a rare cancer like ocular melanoma, one of the most important things is to connect with others who understand what you are experiencing.

MRF's CURE OM Initiative Welcomes Jacqueline Kraska

October 6, 2016 | Categories: News, Ocular Melanoma

One of the central challenges with studying a rare disease is that there is little information available. Ocular melanoma (OM) is a rare disease, with only about 2,000 individuals diagnosed each year. To-date it has been difficult for the medical community to have access to information that would inform better prevention, diagnostics, treatments and outcomes.

Honoring President Carter, A 2016 Courage Award Winner

October 5, 2016 | Categories: News

The MRF honors President Jimmy Carter with a Courage Award in recognition of his fight against melanoma and the awareness he raised by sharing his experience with the public.

Meet Dr. David Abrutyn, Melanoma Survivor and MRF Awardee

September 27, 2016 | Categories: Patient Stories

Twelve years ago, Dr. David Abrutyn's wife, Danielle, noticed a mole on the back of his leg. He was initially assured by a dermatologist that it was benign and could just be watched. However, ten months later, while he was doing his sports medicine fellowship in California, he went to another dermatologist who biopsied it. It was melanoma.

In Kristin's Words: A Patient Perspective on Research

September 20, 2016 | Categories: News, Ocular Melanoma, Patient Stories, Research

Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding.

Summer's Story: The Need for an OM Patient Registry

August 24, 2016 | Categories: Causes, Ocular Melanoma, Patient Stories, Research

Summer shares her ocular melanoma story and why she joined the #CUREOM Unite! campaign to support the development of a national ocular melanoma patient registry.

In Christy's Words: The 2nd Annual Pediatric Melanoma Summit

August 22, 2016 | Categories: Events, Patient Stories

"Mommy, thank you so much for taking me to Great Wolf Lodge again!" Moses wrapped his arms around my neck, with great big tears streaming down his face.

In Memoriam: Randy Lomax

July 29, 2016 | Categories: News

The MRF and the melanoma community are mourning the loss of Randy Lomax, who died from melanoma on July 28, 2016.

Randy was diagnosed with Stage III melanoma in 2000, a time when no real treatment options existed. He knew that he was at a high risk of recurrence and so enrolled in clinical trials to try to lower that risk. And he became an advocate. Not just any advocate, but one who made a major contribution.

MRF & the Vice President's Cancer Moonshot Program

July 27, 2016 | Categories: Events, News
Last month I was invited to participate in a summit meeting for Vice President Biden’s Cancer Moonshot program, the aim of which is to achieve 10 years of progress in fighting cancer in only five years. Already this initiative has resulted in significant new collaborations and synergies, and I want to share a few details with you: