CURE OM

Guest Post: Finding Knowledge and Feeling Loved at the CURE OM Patient Symposium

June 26, 2018 | Categories: Causes, Events, Ocular Melanoma, Patient Stories

I first heard about the CURE OM Symposium via Facebook and wanted to attend. However, in the past the timing just didn’t gel with my work schedule. To my delight, this year’s meeting fell at a time that I was able to take off of work to attend. 

CURE OM Patient Registry Update

June 21, 2018 | Categories: News, Ocular Melanoma, Research

 

Update on the CURE OM Patient Reported Registry

CURE OM Research Grant Recipient Announced

June 14, 2018 | Categories: News, Ocular Melanoma, Research

Walter Fast, Ph.D.The Melanoma Research Foundation (MRF) is pleased to announce that Walter Fast, Ph.D. has been selected as the recipient of a one-year MRF CURE OM Pilot Proposal Focused on GNAQ/11 Mutant Uveal Melanoma. Dr. Fast is a Professor and the William I. Dismukes Fellow in Pharmacy, Division of Chemical Biology and Medicinal Chemistry, College of Pharmacy at the University of Texas at Austin.

#EyeGetDilated: Deborah Smith

November 22, 2017 | Categories: Ocular Melanoma, Patient Stories

Guest blog post by OM survivor and #EyeGetDilated advocate, Deborah Smith:

#EyeGetDilated: William Karp

November 15, 2017 | Categories: Causes, Ocular Melanoma, Patient Stories

Guest blog post by OM survivor and #EyeGetDilated advocate, William Karp:

Update on the CURE OM Patient Registry

June 2, 2017 | Categories: News, Ocular Melanoma

“As a patient with choroidal melanoma with metastasis to liver, lymph node and brain, I want to share as much information as possible with other patients, researchers and clinical teams while I still can. They should have access to my story, my history, what has worked for me, what has not worked for me. We need to make headway in finding a cure so the next generation is not asking the same questions we are.

In Faith's Words: Connecting with the OM Community

May 8, 2017 | Categories: Events, Ocular Melanoma, Patient Stories

My name is Faith Hauss and in February of 2015 I was diagnosed with ocular melanoma in my left eye at the age of 42. As compared to other forms of cancer, and even the more common cutaneous (skin) melanoma, the outlook for those with this rare disease can feel devastating to say the least, with as many as of 50% of patients succumbing to the cancer.

Support CURE OM with DIFF & Joelle Fletcher

November 22, 2016 | Categories: News

The MRF’s CURE OM initiative is proud to announce a partnership with DIFF Charitable Eyewear and former star of The Bachelorette,

MRF's CURE OM Initiative Welcomes Jacqueline Kraska

October 6, 2016 | Categories: News, Ocular Melanoma

One of the central challenges with studying a rare disease is that there is little information available. Ocular melanoma (OM) is a rare disease, with only about 2,000 individuals diagnosed each year. To-date it has been difficult for the medical community to have access to information that would inform better prevention, diagnostics, treatments and outcomes.

In Kristin's Words: A Patient Perspective on Research

September 20, 2016 | Categories: News, Ocular Melanoma, Patient Stories, Research

Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding.

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