MRF's CURE OM Initiative Welcomes Jacqueline Kraska

October 6, 2016 | Categories: News, Ocular Melanoma

One of the central challenges with studying a rare disease is that there is little information available. Ocular melanoma (OM) is a rare disease, with only about 2,000 individuals diagnosed each year. To-date it has been difficult for the medical community to have access to information that would inform better prevention, diagnostics, treatments and outcomes.

In Kristin's Words: A Patient Perspective on Research

September 20, 2016 | Categories: News, Ocular Melanoma, Patient Stories, Research

Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding.

In Linda's Words: 5th Annual CURE OM Eyes on a Cure Symposium

March 24, 2016 | Categories: Events, Ocular Melanoma, Patient Stories
Melanoma has been a part of my life since 2004. November 2004 I was diagnosed with Stage I cutaneous (skin) melanoma and in January 2008 I was diagnosed with ocular melanoma (OM). In March 2008 I had plaque brachytherapy treatment to treat the tumor in my eye.

Sheila - #GivingTuesday 2015

November 30, 2015 | Categories: Causes, Ocular Melanoma
#GivingTuesday is TOMORROW! Join Sheila in Supporting the MRF.
#GivingTuesday is in less than 24 hours! Your tax-deductible gift received on #GivingTuesday will help bring exciting research and treatment advances to those battling melanoma, as well as expand efforts to prevent future diagnoses.
Read why Sheila will support the Melanoma Research Foundation (MRF) on #GivingTuesday:

#CUREOM Unite! - Thank You!

October 30, 2015 | Categories: News, Ocular Melanoma

The results are in and #CUREOM Unite! was a tremendous success! Thank you to everyone who gave so generously to this campaign to further patient-centered ocular melanoma (OM) research!

Guest Post: Dr. Richard Carvajal - #CUREOM Unite!

October 14, 2015 | Categories: Causes, Ocular Melanoma

For the last decade, Dr. Richard Carvajal has dedicated his career to the research and treatment of rare cancers like ocular melanoma (OM) and understands the need for more funding to drive research breakthroughs in the field.

Guest Post: Connie's Story

October 6, 2015 | Categories: Causes, Ocular Melanoma, Patient Stories

Guest blogger Connie Popp shares her experience as an ocular melanoma caregiver, advocate and participant in Miles for Melanoma in support of the CURE OM Unite! campaign.

Guest Post: Why I Fight

August 28, 2015 | Categories: Ocular Melanoma, Patient Stories

Guest blogger Frank Nichols shares his story as an ocular melanoma patient, advocate and participant in Miles for Melanoma NYC.

Guest Post: 4th Annual CURE OM’s Eye on a Cure Symposium

March 27, 2015 | Categories: Events, Ocular Melanoma

Meeting summary written by By Esther Damaser, Ph.D., ocular melanoma survivor and CURE OM Patient Steering Committee member.

Mission vs. Business

February 26, 2014 | Categories: Causes
I had coffee recently with a woman who has a family member with pediatric melanoma. “No one is doing anything about this,” she told me. No one has built a website for this group, no Facebook page exists for exchange of ideas and support, and no single source of information on this issue is available online. She spends hours every week talking with others like her, trying to answer their questions and offer some support and guidance. Her ask was simple—have the MRF help meet this need.