ocular melanoma

Update on the CURE OM Patient Registry

June 2, 2017 | Categories: News, Ocular Melanoma

“As a patient with choroidal melanoma with metastasis to liver, lymph node and brain, I want to share as much information as possible with other patients, researchers and clinical teams while I still can. They should have access to my story, my history, what has worked for me, what has not worked for me. We need to make headway in finding a cure so the next generation is not asking the same questions we are.

In Faith's Words: Connecting with the OM Community

May 8, 2017 | Categories: Events, Ocular Melanoma, Patient Stories

My name is Faith Hauss and in February of 2015 I was diagnosed with ocular melanoma in my left eye at the age of 42. As compared to other forms of cancer, and even the more common cutaneous (skin) melanoma, the outlook for those with this rare disease can feel devastating to say the least, with as many as of 50% of patients succumbing to the cancer.

MRF's CURE OM Initiative Welcomes Jacqueline Kraska

October 6, 2016 | Categories: News, Ocular Melanoma

One of the central challenges with studying a rare disease is that there is little information available. Ocular melanoma (OM) is a rare disease, with only about 2,000 individuals diagnosed each year. To-date it has been difficult for the medical community to have access to information that would inform better prevention, diagnostics, treatments and outcomes.

In Kristin's Words: A Patient Perspective on Research

September 20, 2016 | Categories: News, Ocular Melanoma, Patient Stories, Research

Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding.

Summer's Story: The Need for an OM Patient Registry

August 24, 2016 | Categories: Causes, Ocular Melanoma, Patient Stories, Research

Summer shares her ocular melanoma story and why she joined the #CUREOM Unite! campaign to support the development of a national ocular melanoma patient registry.

In Linda's Words: 5th Annual CURE OM Eyes on a Cure Symposium

March 24, 2016 | Categories: Events, Ocular Melanoma, Patient Stories
Melanoma has been a part of my life since 2004. November 2004 I was diagnosed with Stage I cutaneous (skin) melanoma and in January 2008 I was diagnosed with ocular melanoma (OM). In March 2008 I had plaque brachytherapy treatment to treat the tumor in my eye.

Sheila - #GivingTuesday 2015

November 30, 2015 | Categories: Causes, Ocular Melanoma
#GivingTuesday is TOMORROW! Join Sheila in Supporting the MRF.
 
#GivingTuesday is in less than 24 hours! Your tax-deductible gift received on #GivingTuesday will help bring exciting research and treatment advances to those battling melanoma, as well as expand efforts to prevent future diagnoses.
 
Read why Sheila will support the Melanoma Research Foundation (MRF) on #GivingTuesday:
 

Julie & Amelia - #GivingTuesday 2015

November 25, 2015 | Categories: Events, Ocular Melanoma, Patient Stories
#GivingTuesday is Tuesday, December 1, 2015! Join Julie and Amelia in Supporting the MRF.
 

Guest Post: Dr. Sacks, Ocular Melanoma and Gratitude

November 12, 2015 | Categories: Ocular Melanoma, Patient Stories

Ocular melanoma survivor Anne Marie Montijo reflects on the passing of Dr. Oliver Sacks and her own goal to live each day with a spirit of gratitude.

Guest Post: Dr. Richard Carvajal - #CUREOM Unite!

October 14, 2015 | Categories: Causes, Ocular Melanoma

For the last decade, Dr. Richard Carvajal has dedicated his career to the research and treatment of rare cancers like ocular melanoma (OM) and understands the need for more funding to drive research breakthroughs in the field.

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